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Old 09-04-2013, 06:12 AM   #301
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Shelby~ Damn
I think you are going to be a very valuable asset here.
I am interested deeply in hearing what all worked for you and what did not. You seem to be doing much better now.
I love STTM website. Very informative with a tinge of nasty The ladies on that board are (much like us) fed up with clueless and insensitive doctors!

I could not find my iron blood results last night. Im wondering now if they were even tested! I do not though, have any of the typical low iron symptoms but will make sure it is checked and will post results here, when i run sex hormone blood work again. Also, my Free T3 & Free T4 shows my labs at mid-upper range on both, so I think my liver is converting it over just fine

D3, now that is a whole nother issue.. can you take TOO much of that stuff?
I am going to re-read your posts shortly when things slow down here at work.

Blugg.. isnt it frustrating?! I hope you find a good doc but honestly, you have to do most of the work yourself and tell your doc what to order and what to RX.


I talked to the compounding pharmacist yesterday who was talking with her anti-aging hormone specialist guy and they said as long as im still symptomatic and my thyroid levels are normal, she will double my progesterone from .25 mg to 50 and up my bi-est to 80/20
I start that next sat. Cant wait
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Old 09-04-2013, 07:58 AM   #302
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Be careful going on symptoms alone though. With my symptoms, the clinic put me on more testosterone than I needed because of my symptoms. Turns out that level was too high and I needed to stop it for a while. So you can overdose on the hormones. You do need to be tested every few months for those. The progesterone, I started at 1/2 a trouche and then she doubled it---but when she doubled it she added estrogen. I am thinking they are interlinked because I wasn't on it before. Just a few words of caution there. Not saying they are wrong, but be sure to follow up and get tested.
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Old 09-04-2013, 08:32 AM   #303
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Be careful going on symptoms alone though. With my symptoms, the clinic put me on more testosterone than I needed because of my symptoms. Turns out that level was too high and I needed to stop it for a while. So you can overdose on the hormones. You do need to be tested every few months for those. The progesterone, I started at 1/2 a trouche and then she doubled it---but when she doubled it she added estrogen. I am thinking they are interlinked because I wasn't on it before. Just a few words of caution there. Not saying they are wrong, but be sure to follow up and get tested.
Oh defientely. And my insurance always covers the labs 100%. I last tested 07/19 so i plan to test again right about the 3 month mark and I guess will need to test on day 12 for estrogen and day 21 for progesterone. Two different sticks.
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Old 09-04-2013, 08:56 AM   #304
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I could not find my iron blood results last night. Im wondering now if they were even tested! I do not though, have any of the typical low iron symptoms but will make sure it is checked and will post results here, when i run sex hormone blood work again. Also, my Free T3 & Free T4 shows my labs at mid-upper range on both, so I think my liver is converting it over just fine

D3, now that is a whole nother issue.. can you take TOO much of that stuff?
I am going to re-read your posts shortly when things slow down here at work.

I talked to the compounding pharmacist yesterday who was talking with her anti-aging hormone specialist guy and they said as long as im still symptomatic and my thyroid levels are normal, she will double my progesterone from .25 mg to 50 and up my bi-est to 80/20
I start that next sat. Cant wait
The thing that made me think of the iron was the joint aching and the hair loss. Both are low iron symptoms and can also be an indication that your thyroid isn't quite right. Have you had a Reverse T3 test done? (More on that later. )

You can have too much D3 but a really good indication of toxicity is excessive calcium levels in the body. Generally speaking, toxicity falls somewhere in between 15,000 and 80,000 iUs daily over several months. The suggested upper intake limit for supplementation is 10,000iUs daily which is what I take. Even at that level, my last vitamin D test was right at 80 which is a good level (top of range is 100) for thyroid function and my calcium was smack in the middle of the range. When my D was so low, I couldn't raise it without taking 15,000 daily. I found the liquid form of D3 (something Like Liquid Sunshine) to be particularly helpful.

Good luck with the bi-est. It was incredibly helpful for me.
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Old 09-04-2013, 09:25 AM   #305
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Huh. Well I will defientely ask that my iron be tested on this next go round Thanks.

WOW on Vit D. I didnt know you could take that much but have read that most of us do not get nearly enough from food and sunshine. I only take 5K a day. I will also have that tested next go round.

Are you still on bi-est? Did you get it right the first try or have to tweak?
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Old 09-04-2013, 09:47 AM   #306
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I am on T and estradiol, separate compounded creams. I was actually progesterone dominant (which isn't any more fun than being estrogen dominant! lol). I started on 10mg of T per day (because my levels were nonexistent) and 3mg of estradiol. When I started to show signs of high T, I backed my dose down until they stopped and ended right around 2mg per day (1.75 actually). I was on 3mg of estradiol for about 2 years then my doc dropped my dosage to 1mg. I think it's a little low now but I need to get a few other things in order to be sure as my labs (free labs) are on the high end. It's really tough to tell with me because I have a Mirena (progesterone IUD) and I rarely have periods any more. I can usually tell when my basal body temperature rises that I am ovulating but it's hard to guess exactly WHEN that will happen when I have to make doctor's appointments weeks in advance. Last time I tried to time it for day 21 and hit about day 16. Mid-follicular normal ranges are so different lutual, kwim?
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Old 09-04-2013, 10:02 AM   #307
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I have aipd. Progesterone is not my friend yet I need some.
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Old 09-04-2013, 10:05 AM   #308
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Adding... My last test showed a progesterone deficiency--I think (probably related to some things I have going on with my cortisol). I am going to see a doctor in two weeks who sounds promising. A friend of mine went to her and she did some blood tests, diagnosed her with adrenal insufficiency, and started prescribing stuff based on afternoon blood cortisol levels . I told my friend before she started doing or taking anything to ask for a diurnal cortisol saliva and DHEA test AND THE DOCTOR GAVE HER ONE. I was shocked! I have never heard of a doctor actually willing to prescribe those. AND she takes insurance. I need a new hormone doc anyway (old OBGYN retired and new one doesn't want to mess with me--too complicated) so I am going to give her a try.
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Old 09-04-2013, 10:06 AM   #309
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I have aipd. Progesterone is not my friend yet I need some.
What is aipd?
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Old 09-04-2013, 11:03 AM   #310
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Autoimmune progesterone dermatitis
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Old 09-04-2013, 11:03 AM   #311
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What is aipd?
I don't know what it stands for but she cannot take progesterone because she is allergic to it. Even the bio-identical kind that mimics her own.
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Old 09-04-2013, 11:08 AM   #312
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I don't know what it stands for but she cannot take progesterone because she is allergic to it. Even the bio-identical kind that mimics her own.
Uh huh. In a nutshell
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Old 09-04-2013, 11:56 AM   #313
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Uh huh. In a nutshell
Ah yes. I remember that from earlier in the thread now. Wow.
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Old 09-04-2013, 12:15 PM   #314
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Blugg- This is going to sound like a dumb question. I seem to remember a previous post that you quit/were trying to quit smoking.

Did any of your symptoms get worse when you quit?
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Old 09-04-2013, 12:43 PM   #315
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Ok, I've got a little time so onward with the drama...

After endo #1, as I mentioned, I gave up on doctors for a year or so. I continued to take birth control but had switched at that point to Nuvaring which is an estrogen/progesterone transdermal med. I found it to be convenient but seemed to have more emotional outbursts when on it than on bc pills. I continued to gain weight and couldn't seem to get a handle on anything. I was struggling at work, I was sleeping an incredible amount, and worse, I started having a significant amount of joint pain. According to all my tests and doctors, everything was "normal." I just needed to take some Prozac and everything would be allllllriiiiight. Um, yeah, no thanks.

After an episode of intense back pain (sciatica) that resulted in several months of PT and no real diagnoses or resolution, I decided to try the thyroid route again or be stuck with pain or mind numbing meds for life. It was 2007 and STTM recommended using either pharmacists or NDT websites as resources. I went the route of using Armour's website to see which doctors were prescribing it and landed on an anti-aging specialist who was also an endocrinologist. We'll call him #2.

I went in to see #2 and spoke candidly about everything from the pain to the weight issues to the aching fatigue to the bad skin and hair. When he asked why I came to see him, I told him that I found him on the Armour website and was hoping this was my answer. He told me that he suspected I DID have a thyroid issue but preferred to treat with supplements and diet before medication. He told me I needed to clean up my diet, start exercising, take some supplements, and lose some weight. When I explained that I exercised at LEAST 5 days per week for an hour minimum, had basically cut wheat and most carbohydrates and sugar out of my diet years prior, and took a wide array of supplements (I had handed him a list earlier), he clearly thought I was lying. When he said "It's just calories in/calories out so clearly you are eating too much" I should have probably walked out. After doing a number of tests (neither blood nor saliva), he deigned to prescribe me a 1/2 grain of Armour (which is really not even close to a decent dose) and 5 proprietary supplements, which weren't covered by insurance. I took the supplements until they ran out and didn't go back for more as I hadn't noticed any difference except in my wallet. I took the Armour until my pharmacy told me they had stopped making it and had substituted Synthroid instead--without telling me. Again, when I stopped taking the thyroid meds, I didn't notice any difference at all so...why bother?
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Old 09-04-2013, 12:55 PM   #316
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Blugg- This is going to sound like a dumb question. I seem to remember a previous post that you quit/were trying to quit smoking.

Did any of your symptoms get worse when you quit?
No not at all. Everything was the same

I started having horrible peri symptoms and read that book about estrogen dominance. I started using progesterone. I felt relief and then my body went nuts. Hives, swelling, scratching. I read Suzanne somers and she talks about itching. It must be hormones! I start taking Bhrt I get tested for every ailment known , see countless specialists. No one has a clue. I'm charting symptoms and start to see a cadence to the worst of it. I go to another specialist and whammy..,,aipd. It was a very dark period in my life where I learned who was a real friend and who was bs. Kirk stood by me like no one ever has. Amazing how folks profess friendship until you need it. Ugh
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Old 09-04-2013, 01:06 PM   #317
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No not at all. Everything was the same

I started having horrible peri symptoms and read that book about estrogen dominance. I started using progesterone. I felt relief and then my body went nuts. Hives, swelling, scratching. I read Suzanne somers and she talks about itching. It must be hormones! I start taking Bhrt I get tested for every ailment known , see countless specialists. No one has a clue. I'm charting symptoms and start to see a cadence to the worst of it. I go to another specialist and whammy..,,aipd. It was a very dark period in my life where I learned who was a real friend and who was bs. Kirk stood by me like no one ever has. Amazing how folks profess friendship until you need it. Ugh
BTDT. I have a few who recognized it as temporary insanity and hung in there with me. Thankfully, DH was one of them.
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Old 09-04-2013, 01:57 PM   #318
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BTDT. I have a few who recognized it as temporary insanity and hung in there with me. Thankfully, DH was one of them.
Everything for a reason
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Old 09-04-2013, 02:26 PM   #319
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Blug

Shelby.. your doc #2 sounds alot like several I saw.. dontcha just want to cram your foot where the sun doesnt shine when they literally accuse you of lying about your diet and exercise?
I remember 2 years ago when I started piecing all of this peri crap together, I went to see my male doc and noticed he had lost a huge amount of weight. Practically overnight. I made a comment about it and he laughed.. said he cut out cokes and started skateboarding in the afternoon with his son.. wham.. 30lbs gone.
I just sat there.. shaking my head while he continued on with his calories in, calories out speech.
I never went back to him.
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Old 09-04-2013, 05:00 PM   #320
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Blug

Shelby.. your doc #2 sounds alot like several I saw.. dontcha just want to cram your foot where the sun doesnt shine when they literally accuse you of lying about your diet and exercise?
I remember 2 years ago when I started piecing all of this peri crap together, I went to see my male doc and noticed he had lost a huge amount of weight. Practically overnight. I made a comment about it and he laughed.. said he cut out cokes and started skateboarding in the afternoon with his son.. wham.. 30lbs gone.
I just sat there.. shaking my head while he continued on with his calories in, calories out speech.
I never went back to him.
Wait 'til you hear about the hematologist... OH NO HE DI'INT...

Blug, from here too.
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Old 09-05-2013, 06:19 AM   #321
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Wait 'til you hear about the hematologist... OH NO HE DI'INT...

Blug, from here too.
good grief.

I hate to imply that we should ever intentionally be cruel or brash about or to a physician but I rate the doctors that I see, every.single.one.

Its important. If they are great, I make sure others know. If I had to wait 45 mins past my appt time while the doc laughs and jokes (within ear shot) for half an hour with staff, I make sure others know that too.
My time is just as important as theres is.

Rate MD I think is one of the websites I frequent. Go rate your doctors
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Old 09-05-2013, 06:25 AM   #322
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My period is 4 days late
I went from having a cycle every 3 weeks to this? Oh how these hormones do mess with us.
I am literally preparing for a monsoon...

/ that is all.
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Old 09-05-2013, 07:39 AM   #323
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My period is 4 days late
I went from having a cycle every 3 weeks to this? Oh how these hormones do mess with us.
I am literally preparing for a monsoon...

/ that is all.
Lol
Mine was dud next week
It ended Monday

I've given up trying to keep track
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Old 09-05-2013, 09:52 AM   #324
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Lol
Mine was dud next week
It ended Monday

I've given up trying to keep track
me too at this point.
I just picked up my double strength progesterone It made such a huge difference last fall when I first started it. Cant wait to see how I feel on the stronger dose. If my period ever gets here, that is.
And she upped my estrogen. Stronger cream but using 0.5 ml daily instead of 1 ml. Less cream, more potent?
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Old 09-06-2013, 10:13 AM   #325
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Happy Friday ladies!

So my period went from every 3 weeks to 5 days (33 day cycle) late this month. It was a horrible crime scene picture. I was a little scared that I was bleeding this heavy...not like me at all. Cramps, bloating.. the whole nine.
A strong cup of coffee and some aleve and of course a shower, im good now.

I know estrogen drives the menstrual cycle but holy cow..im just thankful I was home and not at work or in a store!
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Old 09-19-2013, 06:23 AM   #326
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Ladies! How are we all? I need some updates

On me.. I am now 4 weeks on the bio idential Bi-est.. little bit higher dose after the first 2 weeks and started up my double dose progesterone on saturday. For the first time since January, I am in ketosis
I am down about 4 lbs for the week. I'll take it. No real change in the other symptoms yet but I know its coming.

I learned that progesterone is the master hormone over all the others and is the hormone that tells your body to burn its fat stores vs estrogen which tells your body to store fat and to make more fat to pull the estrogen from when levels are low... progesterone is the mack daddy.

I am bummed summer is over we live in a tiny seaside town and its rained so much this summer we have had almost no beach/ boat time.. so maybe my hormonal balancing is on the right track and I can focus on getting to my goal weight through the holidays vs mourning the loss of summer
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Old 09-28-2013, 02:09 PM   #327
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I went to my hormone clinic last week (Monday it will have been 2 weeks). We discussed my neverending TOM (the one that came in July and stayed for like 3weeks) and she said it was a side effect of the hormone treatment. I don't have a cyst on my ovary and it certainly isn't broken LOL. My body is trying to eek out the last eggs and the last bursts of whatever is in there and with the hormones I am getting, it is doing double duty. So it is to be expected--this extra bleeding. Yuck!! Other than that, I am OK. My insertion hurt like the dickens and I am still bruised. She hurt me real good!!! Nothing has changed with me, still getting a bit too much testosterone. But I can handle a few extra pimples, I am not vain in that regard. I keep hoping for some extra bursts of energy from it and it never shows up! Oh well. I know now that my energy is not from testosterone then. Something else, perhaps a vitamin, is lacking. I have started reading a book about perimenopause and I am starting to learn about all these hormones. Interesting indeed!!!
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Old 09-28-2013, 04:35 PM   #328
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I am MIA for a perfectly good reason , my cute, smart 85-year-old mom had a GIANT surgery that would kick the behind of a 40-year-old, says her surgeon. It was the Whipple procedure - removed the head of her pancreas, the duodenum, the gall bladder, some lymph nodes and part of her stomach.

This Thursday will be 2 weeks. Her docs say she is "ahead of the curve." She's eating transitional foods, but still in hospital and will be for probably another week. My sister and I are trading off each day spending the night and all of each day. She's weak and since out of ICU needs an advocate all the time. She has not had any problems with memory or fuzziness of brain, but her body is quite weak right now. Better every day, but not well enough to be alone.

I read your posts but will bow out for awhile...

Edited to add: Guess I should tell you why she had the procedure. She has had pancreatitis 4 times this year. Finally found a small cancer growing near her duct in the pancreas. It's smaller than a grape and stage 1, so we are hopeful. Surgeon thinks he got everything and then some, and we'll know more in a couple of days after the lymph nodes are through pathology.
She had a PET scan before surgery to see it hadn't spread - they would not have put her through that operation unless they knew it had not spread.
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Old 09-28-2013, 05:12 PM   #329
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Judy Wow, it sounds like you need a few of these. What stress you have been under. I am very glad to hear they caught it in time though. That is a serious surgery for anyone, and at her age?? Go Mom!!! Hope her recovery is smooth and you can get some rest along with her.
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Old 09-28-2013, 05:27 PM   #330
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WOE: EFGT wheat free (grain free)
Start Date: June 2012
Dawn you are so kind - I've seen you on lots of other threads and admired you from afar!
Thanks!
JMCM1 is online now   Reply With Quote
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