Low Carb Friends  
Netrition.com - Tools - Reviews - Faces - Recipes - Home


Go Back   Low Carb Friends > Health Support Groups > Thyroid
Register FAQ Search Today's Posts Mark Forums Read


Reply
 
LinkBack Thread Tools Display Modes
Old 10-18-2014, 12:15 PM   #1
Junior LCF Member
 
Join Date: Oct 2014
Posts: 5
Gallery: allthatis
5 weeks post partum, my appointment with endo- Anxietied, please read :(

Hello, just looking for some advice. I am feeling so anxious I am 5 weeks post partum, and my pcp did lab work and told me that I am hyperthyroid. Here are my lab results.

thyroxine, serum, free

1.38 ng/dL referred range-0.61-1.12 completed 10/13/2014
thyroid stimulating hormone, serum

0.06 u[iU]/mL referred range-0.34-5.60

I have had no other blood work done. I saw an endocrinologist yesterday , and she did a sonogram of my thyroid and saw one large nodule on the right side, and two small ones on the left side. She said she doesnt think its cancer and will not be biopsying.

She said that I could take tapazole but it could potentially kill me, lowering white blood count too low. Yikes! She then said she wants me to get a radioactive uptake scan, and them most likely radioactive iodine treatment.

I just feel instinctively this is not the way to go! Several others I have spoken to on another thyroid board says that she is pushing me to kill my thyroid when I may not have to. I am really just looking for some opinions on this from otherswho have maybe been in this situation.

I am definitely going to look into a second opinion. Just so scared!
allthatis is offline   Reply With Quote

Sponsored Links
Old 10-18-2014, 04:46 PM   #2
Administrator
 
cheri's Avatar
 
Join Date: Sep 2000
Location: Illinois
Posts: 40,067
Gallery: cheri
Stats: 150 + pounds lost - 4' 11"
Hi there!

Members are not allowed to give medical advice, but I am sure some can give you some input through their own personal experiences. My suggestion though would be to definitely get a second opinion.. Especially if you are feeling uneasy about her course of treatment. I have had a few bad experiences because I went with what my doctor said even though I didn't care for them or felt he wasn't listening to my concerns. Definitely do that.. It is better to go to a specialist or even 2 or 3 to narrow down the treatment that you are comfortable with.
__________________

I used to live to eat... now I eat to live!
Don't be a victim of Dieters remorse.. Don't cheat.. stay on plan!
cheri is offline   Reply With Quote
Old 10-18-2014, 05:00 PM   #3
Junior LCF Member
 
Join Date: Oct 2014
Posts: 5
Gallery: allthatis
My t3

Lab Report: Triiodothyronine (T3) - 10/14/2014
Lab Results
Results Value Reference Range Status Flag Date
GE use only - for LinkLogic import when terms are not otherwise specified

158 ng/dL 71-180 completed Not applicable 10/14/2014
Hold the SHIFT key while clicking column headers to sort by multiple columns.
allthatis is offline   Reply With Quote
Old 10-18-2014, 05:01 PM   #4
Junior LCF Member
 
Join Date: Oct 2014
Posts: 5
Gallery: allthatis
Thank you, I will definitely do that!
allthatis is offline   Reply With Quote
Old 10-19-2014, 03:39 AM   #5
Senior LCF member
 
Join Date: Nov 2007
Posts: 9,681
Gallery: Leo41
Stats: 340 then/145 now
WOE: Low carb/calorie cycling
I would definitely affirm Cheri's suggestion to get another opinion--in fact, try to get several opinions.

I've been fortunate in having two good endos for my hypothyroidism, but my sister, who has been hypo for over 20 years, has had terrible experiences with several endos. Friends of mine have also had bad experiences.

If you've been reading the Internet, you probably already know that finding a good doctor for thyroid can be a challenge, so I strongly suggest you 'shop' around before taking action on your problem.

Also consider the fact that where thyroid is concerned, symptoms are more important than lab results. I had severe hypo symptoms when my labs seemed 'fine' to my primary doctor. Are you having hyper symptoms--e.g., racing heart, weight loss, high pulse rate? That's a significant issue.

By the way, I, too, have thyroid nodules, and they are checked annually. About 85% of nodules are benign.

HOWEVER, nodules are often associated with HYPOTHROIDISM, and the most common cause is Hashimoto's (what I have--autoimmune). Some people are initially hyper with Hashi's and then swing into hypo. That actually may be what's happening to you, so you really need to find a doctor who is good with thyroid before accepting any treatment.

One last thought--thyroid issues in women often occur at times of hormonal shifts--puberty, childbirth, menopause--so it's a likely time for you to experience thyroid problems. My own came with menopause.

Last edited by Leo41; 10-19-2014 at 03:41 AM..
Leo41 is offline   Reply With Quote
Old 10-19-2014, 01:21 PM   #6
Junior LCF Member
 
Join Date: Oct 2014
Posts: 5
Gallery: allthatis
Yes I definitely hope to find a good endo! I am having those symptoms, along with high blood pressure. I am on atenolol, but still a bit off, because anxiety is so so high!
allthatis is offline   Reply With Quote
Old 10-19-2014, 01:46 PM   #7
Senior LCF Member
 
Join Date: Feb 2013
Posts: 835
Gallery: Ronnie51
Did your doctor test your thyroid antibodies? There is a very common thyroiditis that women get after pregnancy called "silent thyroiditis" where they have a lot of antibodies attacking their thyroid. It's not Hashimoto's, as it's usually temporary (but not always). You can google it. With silent thyroiditis, the patient is hyper while the thyroid is being attacked because it spills hormone into the bloodstream. After a few weeks, the patient becomes hypo which can last for a couple of years. Many women become normal after that, some do not and stay hypo for the rest of their lives. I have this, however, mine occurred after menopause and it seems to be permanent. Again, it is very common after pregnancy. I understand that you have nodules, but nodules do not cause it (I don't have nodules). My Mother has nodules and they are benign and do not affect her thyroid levels. Just something to think about.

My family doctor treated my hyper phase of silent thyroiditis by giving me a beta blocker to slow down my fast heartrate. Then, when I went hypo, he prescribed synthroid. That's it

Last edited by Ronnie51; 10-19-2014 at 01:48 PM..
Ronnie51 is offline   Reply With Quote
Old 10-19-2014, 03:45 PM   #8
Junior LCF Member
 
Join Date: Oct 2014
Posts: 5
Gallery: allthatis
She hasnt tested that. I actually called the oncall doctor and she said to do the uptake scan first, and if they weren't hot they would probably do more tests. I am going to call a different endo office Monday for a second opinion.

I just find it wild that this is starting right after my pregnancy, and my doctor is just CERTAIN that my nodules are causing it, this isnt post partum thyroiditis, it isnt cancer, it wont go away etc etc without even doing other tests. I am just so scared and frustrated! Hoping to be able to be seen by someone else asap.
allthatis is offline   Reply With Quote
Old 10-19-2014, 05:30 PM   #9
Senior LCF Member
 
Join Date: Feb 2013
Posts: 835
Gallery: Ronnie51
I'm glad you're seeing someone else. As I said, my Mom has nodules and they have no effect on her thyroid levels. It wouldn't hurt to check your antibodies. This first endo sounds like she wants to do major treatment without enough information. I hope you do find another doctor. Again, my family doctor is the one who diagnosed me....I 've never seen an endo. By the way, he did send me for a radioactive update and the results showed that my thyroid had practically no uptake (this was during my hyper phase). I was told I didn't have Graves, that it was thyroiditis. Good luck to you!
Ronnie51 is offline   Reply With Quote
Old 10-20-2014, 03:33 AM   #10
Senior LCF member
 
Join Date: Nov 2007
Posts: 9,681
Gallery: Leo41
Stats: 340 then/145 now
WOE: Low carb/calorie cycling
Ronnie-
I just learned something from researching the OP's issues. I, too, have thyroid nodules, but mine are from my Hashimoto's--nodules are characteristic of that disease--and do not affect thyroid hormones. However, there's also a 'condition' in which the nodules develop (unrelated to Hashi's) and actually stimulate excess thyroid hormone production, causing hyper symptoms. That seems to be what the OP's doctor is considering. I'd never heard of this before.

Just a comment on thyroid diagnosis. When I developed nodules (which my PCP could 'feel' on examination), he ordered an ultrasound to check for cancer--and when that was negative, he ignored the nodules. As my hypo symptoms escalated over the next 5 years, my PCP kept insisting I had no thyroid issues, based on my blood tests. I trusted him and never looked at the actual numbers myself, so I have only myself to blame for those years when I was progressively hypothyroid and undiagnosed. This is a cautionary tale for others to be pro-active in their medical care--as I am now!
Leo41 is offline   Reply With Quote
Old 10-20-2014, 07:36 AM   #11
Senior LCF Member
 
Join Date: Feb 2013
Posts: 835
Gallery: Ronnie51
Thanks for the info, Leo. I'm just surprised about allthatis' endo's suggestion for treatment. The only time I ever heard of radioactive iodine treatment to "kill" the thyroid was for Graves disease where the person is always hyper. I never heard of it being used for Hashi's or silent thyroiditis since the person always goes to a hypo stage. And the only way to know if it's autoimmune is to test the antibodies which this doctor didn't do. That's my understanding, anyway.
Ronnie51 is offline   Reply With Quote
Old 10-20-2014, 08:08 AM   #12
Senior LCF member
 
Join Date: Nov 2007
Posts: 9,681
Gallery: Leo41
Stats: 340 then/145 now
WOE: Low carb/calorie cycling
Ronnie-

Oh, I totally agree with you that if this doctor intends to 'kill' the thyroid, it's premature. The way I read the post is that the doctor was doing a variety of 'tests' to determine the reason for the hyper. That's why I mentioned the nodule 'causing' it issue. When it was mentioned, I had never heard of it, so this doctor is at least aware of that as a problem. It's possible that if the problem is due to the nodules themselves then 'killing' the thyroid may be the standard treatment. I have no idea.

The problem with testing for antibodies is that the test is notoriously false negative. My endos checked me for Hashi's repeatedly, and my antibodies never showed high enough. My Hashi's was finally diagnosed when I had a biopsy of one of my nodules.

That's why the OP should get several opinions of her 'issues' before proceeding with treatment, since whatever the problem is may take a while to diagnose.
Leo41 is offline   Reply With Quote
Old 10-20-2014, 08:13 AM   #13
Senior LCF Member
 
Join Date: Feb 2013
Posts: 835
Gallery: Ronnie51
I didn't know that about antibodies often being false positive. When I was tested my TPO? (not sure that's what it's called) was over 2000. Ridiculously high. I'm glad you finally found a good endo to sort it all out for you. Let's hope allthatis can find one too.
Ronnie51 is offline   Reply With Quote
Old 10-20-2014, 03:23 PM   #14
Senior LCF member
 
Join Date: Nov 2007
Posts: 9,681
Gallery: Leo41
Stats: 340 then/145 now
WOE: Low carb/calorie cycling
Ronnie--

No, the antibodies can be false negative--i.e., not show enough to confirm a diagnosis of Hashi's. From what I've read it's due to the fact that the antibodies only attack the thyroid intermittently, and unless the blood draw happens to coincide with the 'attack,' the antibody level is often low.

I don't know whether this is true or not, but when I was diagnosed via a biopsy, my endo told me that he had suspected that I had Hashi's, but my antibody level (on the blood tests) was always too low to confirm a diagnosis.

Many doctors don't bother with the antibody test because it's so unreliable--and it really doesn't change the treatment because the treatment is for hypothyroidism, regardless of the cause.
Leo41 is offline   Reply With Quote
Old 10-20-2014, 04:03 PM   #15
Senior LCF Member
 
Join Date: Feb 2013
Posts: 835
Gallery: Ronnie51
Quote:
Originally Posted by Leo41 View Post
Ronnie--

No, the antibodies can be false negative--i.e., not show enough to confirm a diagnosis of Hashi's. From what I've read it's due to the fact that the antibodies only attack the thyroid intermittently, and unless the blood draw happens to coincide with the 'attack,' the antibody level is often low.

I don't know whether this is true or not, but when I was diagnosed via a biopsy, my endo told me that he had suspected that I had Hashi's, but my antibody level (on the blood tests) was always too low to confirm a diagnosis.

Many doctors don't bother with the antibody test because it's so unreliable--and it really doesn't change the treatment because the treatment is for hypothyroidism, regardless of the cause.
Oh, that was my error, Leo. I knew you meant false negative, I don't know why I typed false positive. Sorry about that!
Ronnie51 is offline   Reply With Quote
Old 10-23-2014, 07:50 AM   #16
Junior LCF Member
 
Join Date: Jul 2003
Posts: 7
Gallery: savannahgrl
Hi, I completely understand your anxiety. I had this happen after both pregnancies. I'm most surprised that they are taking such agressive measures because postpartum thyroiditis usually levels itself out.

I previously had no known thyroid issues, but after my first pregnancy I became hyperthyroid for a few months then became hypothyroid and back to hyper. It leveled out eventually and I did not take any meds. The following pregnancy 4 years later I was hypothyroid after and then went hyperthyroid. My doctor said that postpartum thyroiditis is very common and they are cautious about treating it because it fluctuates before correcting itself.

I also found that I had a nodule after the second pregnancy. I had it biopsied and it was fine. They may be trying to check to see if it is a "hot" nodule which produces the thyroid hormone. They checked mine for this by doing the biopsy.
savannahgrl is offline   Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are On



All times are GMT -7. The time now is 09:27 PM.


Copyright ©1999-2014 Friends Forums LLC. All rights reserved. - Terms of Service | Privacy Policy
LowCarbFriends® is a registered mark of Friends Forums, LLC.