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Old 06-13-2013, 03:15 PM   #1
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Thyroidectomy on Monday.......

Dr. thinks it is now time to get thyroid removed. 3 or so yrs of medicating and nodules are continuing to grow slowly. Both sides will be coming out, as the largest on the right side is now at 1cm. It will be an out patient surgery, home that day. I'll post a follow up asap. Thanks!
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Old 06-26-2013, 07:15 PM   #2
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Had my surgery and pathology found a small cancer in the largest of the nodules. I'm on the mend and beginning to feel run down, tired, etc....my thyroid dose is very small. Will be going to my endo soon for labs and post surgery follow up.
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Old 06-26-2013, 08:13 PM   #3
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My goodness. I am glad you are doing OK.
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Old 06-28-2013, 11:45 AM   #4
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Here is a great support forum for thyca
ThyCa: Thyroid Cancer Survivors' Association
Very informative, and the forum will answer all kinds of questions with compassion and caring if they know the answers.
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Old 06-28-2013, 03:28 PM   #5
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My goodness..Glad you had it out!! My dd had 1/2 of hers out, but luckily no cancer.

Keep us posted on the next step..Rest up..
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Old 06-28-2013, 05:02 PM   #6
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Old 06-29-2013, 05:48 AM   #7
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Old 06-30-2013, 04:45 PM   #8
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Old 07-03-2013, 08:53 PM   #9
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ok thanks! I am feeling some symptoms of hypo sneaking back in, as I'm only on a 1/4 grain of BHT. But, my dr is on vacation until 7/15 or so. Think that's when my appt is. Afternoon naps are now almost a necessity now again. Swelling issues, cravings, wt. gain (12lbs within 2 days of surgery). Hoping an increase in meds will help that. Incision is healing up well, no infection and no soreness now. very interested to see what happens to my TSH (normally .01) after it coming out??? Thanks for the concern everyone!
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Old 07-04-2013, 12:14 AM   #10
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Originally Posted by Shancopp View Post
ok thanks! I am feeling some symptoms of hypo sneaking back in, as I'm only on a 1/4 grain of BHT. But, my dr is on vacation until 7/15 or so. Think that's when my appt is. Afternoon naps are now almost a necessity now again. Swelling issues, cravings, wt. gain (12lbs within 2 days of surgery). Hoping an increase in meds will help that. Incision is healing up well, no infection and no soreness now. very interested to see what happens to my TSH (normally .01) after it coming out??? Thanks for the concern everyone!
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Old 07-10-2013, 05:44 PM   #11
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Shancopp - I hope you're still doing well after your surgery!
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Old 07-10-2013, 08:36 PM   #12
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yes, doing ok. having many hypo symptoms sneaking back in. wt gain, carb cravings, fatigue, swelling, stiffness, facial puffiness, heavy period, numbness in hands, low libido, headaches, brain fog. Finally get into my endo on Monday. Hoping to try a new med....NatureThyroid. I'm on a bioidentical now, but hardly any.
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Old 07-24-2013, 06:28 PM   #13
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I had my thyroid out a year ago last June. I healed quickly and feel terrific. I take Nature Throid and am currently takikng 1 1/2 grains in the am and 1 1/2 grains in the early afternoon. My doctor let me dose myself until I felt "normal". I'm due for some labs but the last several have been in a perfect range. Hang in there. When you get where you need to be you will feel good again.
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Old 07-30-2013, 09:09 AM   #14
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My dr said no to animal based meds, because of antibodies.... I still have them, even after surgery. I have Hashis. He did double my meds tho, and says they will increase 3fold and maybe 4fold in 6 week increments. My meds are plant based....beets and wild yams, compounded.

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Old 07-31-2013, 08:39 PM   #15
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My dr said no to animal based meds, because of antibodies.... I still have them, even after surgery. I have Hashis. He did double my meds tho, and says they will increase 3fold and maybe 4fold in 6 week increments. My meds are plant based....beets and wild yams, compounded.
those meds are for your thyroid? or did i miss something?
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Old 08-01-2013, 07:48 PM   #16
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yes, they are bioidentical thyroid hormones, made from beets, wild yams, etc. Not porcine or synthetic. It is a compounded t3/t4 combo.
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Old 08-01-2013, 07:57 PM   #17
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how do you get thyroid hormones from beets and yams?
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Old 08-02-2013, 06:39 AM   #18
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found this on the compounding pharmacy website. American Hormones, Inc. ? Healthy Aging Therapies Found this info (using estrogen/progesterone as an example in the FAQ)

How are pharmacy compounded estrogen, testosterone and progesterone produced?

Precursors (sterols) to progesterone and estrogen are found in wild yams and soy but the human body does not have the ability to convert these sterols to hormones. Through a simple process (hydrolysis) these chemicals are converted into progesterone, estrogen and testosterone capable of being processed by the body. They are considered "natural" because they are derived from a natural plant (organic) source and are structurally identical to the hormones biologically made in the body.These hormones are then formulated by American Hormones, a specialty compounding pharmacy, into a strength and dosage form recommended by your physician.

When first developed, synthetic hormones were well received because they provided some of the benefits of hormonal replacement: controlling the symptoms of menopause and fighting osteoporosis. However some women cannot tolerate synthetic hormoes, often suffering side effects such as bloating, bleeding or mood swings. Pharmacy compounded hormones can help alleviate these side effects, based on the medical assessment and prescription of your physician.
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Old 08-02-2013, 06:59 AM   #19
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Ok. So that is for you SEX hormones, NOT your thyroid?

You're taking compounded Thyroid meds..NDT or synthetic?
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Old 08-02-2013, 07:55 AM   #20
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Yes, they compound thyroid hormones from the yams/beets too. Other hormones also.
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Old 08-02-2013, 07:55 AM   #21
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I see Dr. Kadambi, in Ft. Wayne, IN who was the doctor of the lady who used to answer so many people on here but left. Can't recall her name.
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Old 08-03-2013, 05:50 AM   #22
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Don't want anyone to get the idea that a doctor actually 'has T4 and T3 made from beets/yams'...um...it can be used as a 'filler' for T4, T3, but not made from them. Your T4/T3, if not from porcine, are being compounded from synthetics, and a little this and that added...but you can't get T4/T3 from beets and yams. You CAN, however get progesterone and BHRT prometrium, and BHRT estradiol from them.
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Old 08-03-2013, 08:21 AM   #23
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Thank you for clearing that up.. I KNOW you cant get that T3/T4 from yams and such.. Didnt want anyone to miss understand that info either; that was why I pressed it.
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Old 08-03-2013, 10:30 AM   #24
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thank you, I'll ask more about it
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Old 08-03-2013, 04:31 PM   #25
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I am well versed in your doctor's compounding procedures (I was a patient for many years...now stabilized on NDT). If it weren't for him...I wouldn't have all this energy and bright future I have today.
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Old 08-03-2013, 10:09 PM   #26
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may i ask which ndt med are on? I would like to try nature thyroid. But he tells me you can have antibodies increase on porcine NDT.
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Old 08-04-2013, 05:11 AM   #27
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I do believe, if you will do the research, that there have been about two cases in every 14,000 that have that happen. That just wasn't convincing enough for 'me' to not take NDT. I take Armour Thyroid, and have for over 15 years. Once the thyroid is 'dead' from being attacked by the antibodies OR have 'no thyroid to attack' the antibodies don't really bother the body all that much.

My antibodies were HUGELY high...in the tens of thousands...and I just watched my panels (FT's, etc.) to see if I was attaining a level of hormone I needed, and my symptoms of hypothyroidism were dwindling on NDT.

I think a patient should ask questions and do research...and that's what I did.

Now, in the case of thyroid cancer, many doctors rely on synthetic T3 to keep that at bay...and don't want T4 in the mix until the patient is truly free and clear of the cancer for some time.

BTW...the 'Naturethroid' part doesn't make a lot of sense to me either..it's porcine. ??? I was using Naturethroid for awhile, but it became very hard to get in this area. It was 'hit and miss' and my mail order pharmacy stocks Armour...so that's an easy choice for me.
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Old 08-04-2013, 08:33 PM   #28
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Originally Posted by Lokarbiebarbie View Post

I think a patient should ask questions and do research...and that's what I did.

Now, in the case of thyroid cancer, many doctors rely on synthetic T3 to keep that at bay...and don't want T4 in the mix until the patient is truly free and clear of the cancer for some time.
I wish there was a standard for this. Im working with a client that just had TT due to ca and doc put her on T4.
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Old 08-05-2013, 05:31 AM   #29
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Depends on what type of cancer Ileen...and if the patient is still having radiation or other treatment on the thyroid...if the cancer is in situ and completely removed with the lobe (either of them, or both) than the patient can be started on T4. But we KNOW that most need T3 also...to be fully suppressed.

On the other hand, I've seen plenty of doctors use only TSH as a marker of suppression proof, and we KNOW that doesn't always work to keep the cancer at bay either...so making sure the FT3 is 'up there' along WITH FT4 testing and TSH is the way to go.

The 'standard' for this is about as vague as the 'standard treatment with T4 only with TSH as testing' in a lot of places, unfortunately.
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