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Old 01-09-2013, 05:04 PM   #1
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Nature-throid friendly Dr. in Kansas City area?

Hi everyone,

I have a wonderful GP that has me on Nature-throid, but I have a pituitary issue and no TSH even when my FT3 and FT4 are off the bottom of the charts. I spent (lost) 2012 visiting various Endos, I have yet to meet one that isn't a complete bonehead. They insisted I go on T4 only and I was very, very sick and under-medicated (gained 40lbs in 6 months + God knows how much water)
Finally got an MRI and it was a waste - radiologist read my test in under 5 minutes and I have implanted teeth and no bottom sinus on one side of my head, and in my report it said my sinuses were "unremarkable" so pituitary micro features were a lost cause. Went back to GP, and he's fixing me, but I know he'd like me to find an endo I can work with.

I LOVE my Nature-throid . Does anyone in Kansas City area have an endo that is open minded enough to prescribe this wonderful medicine? Since returning to Nature-throid, I have lost 10 lbs and am able to get back into ketosis (couldn't do that when I was hypo), I don't need naps every day and generally I am on the mend. I am hoping to find someone who will take my regular Blue Cross, if that is possible.

Thanks for your help! Any ideas are appreciated,

Marian
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Old 01-10-2013, 03:32 PM   #2
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My dd goes to an endo lady at KU med who is giving her Synthroid and Cytomel. DD was on natural combo before, but this is doing really well..
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Old 01-10-2013, 06:45 PM   #3
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Originally Posted by CarolynF View Post
My dd goes to an endo lady at KU med who is giving her Synthroid and Cytomel. DD was on natural combo before, but this is doing really well..
Thank you CarolynF, that's encouraging. I didn't think there were any endos at KU med that would even consider anything by t4 only. I am still hoping to find an endo that goes with the natural meds. Maybe I just have wishful thinking.
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Old 01-11-2013, 04:30 AM   #4
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I'm not familiar with your state..but...running down a list I have, I see some doctors who have given natural thyroid. One in Columbia, one in 'Licking'...Reeds Spring (2 there).

I've been taking Armour for many years...and where I am, I had to travel to see the thyroid doctor who first put me on it..but once you are on it for quite some time, most other doctors (you know, like family MD) don't want to 'upset the apple cart'.

Go and google top thyroid doctors and see if you can come up with that list too.
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Old 01-11-2013, 03:42 PM   #5
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My PA in Coffeyville prescribes it for me all the time..But, you have to drive a bit...South East KS.

Call around at the pharmacies and if they carry it, then which doctors prescribe it.
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Old 01-12-2013, 04:08 PM   #6
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Thanks for the ideas guys, Columbia is 2 hours away as is Coffeeville. I believe Reed Springs is near St. Louis. I will try to google the top thyroid doctors, as I asked at my pharmacy and they did not have any Endos listed, all gp's. I looked on the Nature-thoid page and all their suggestions are naturo-paths. The old about.com thyroid list no longer has any doctors participating near Kansas City. Thanks for the ideas though. If I find one, I will let everyone know.
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Old 01-14-2013, 04:50 AM   #7
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Well, you see...most of us with thyroid disease travel at least two hours one way for a great thyroid doctor (and they usually aren't endocrinologists).
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Old 01-14-2013, 05:49 AM   #8
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You could get your script from you GP, then go to an endo for other problems? My lady is a PA..not an endo, but she will prescribe Natur-throid.

There is nothing wrong with GPs..

You know Mary Vernon is very open minded..She has a clinic in Lawrence and one in Overland Park..She deals a lot with diabetes patients and thyroid peeps..and is a LC expert.
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Old 01-14-2013, 11:06 AM   #9
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Dr Vernon has been my doctor for many years...she is brilliant but unfortunately she is in alot of trouble. My last appt. with her she didn't even show up. I hope the best for her. She recommended a dr from Emporia Ks. went to him last week and I really like him. First doctor that ever told me he liked what I was doing!
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Old 01-16-2013, 05:20 PM   #10
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I know GPs can be the best, mine is totally wonderful, and getting near retirement. He is reasonable about test results. Every time in my bloodwork, my TSH is non existant, and my ft3 and ft4, pulse, bp are normal, so I say I feel good and he says ok, here's another year. I'm just nervous this is my last year, and he acknowledges that having a very low TSH that doesn't seem to respond to the hormones in my system is not normal and would like me to have an endo about this. The endos they all do diabetes and don't seem to care about anything else.
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Old 01-17-2013, 05:39 AM   #11
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I see...well, there are endo's who specialize in thyroid (mine does...he's almost two hours away one way, and he's worth it) and there are MD's who 'specialize' in thyroid (five in a three hour one way driving radius around me do). 'Anywhere at all in range' for Free T's aren't 'acceptable' to any of these doctors...huh uh...and if I say 'I feel fine' than they won't take the time to check out anything...it's a 'done deal' and 'next!!!'. Can't say I'd blame them.

But they all never just ask that...they ask 'How is your concentration level?' "How are your joints and any types of pains?' "Do you have plantar fasciitis?' and so on (all the hallmarks of thyroid disease). They also ALL do an appropriate hormone panel, and if the TSH is VERY low yet the Ft's are also low, they'd be doin testing on your pituitary..and so on.

Around my area, a thyroid doctor would be apt to send you to a neuroendo if it was tertiery hypothyroidism (that's pituitary driven hypo) not an endo. Or a neurologist...but for years and years it's always been known that good thyroid endo's do NOT live around a corner from you (except in one case on here I remember...and one WAS right around the corner from the OP!). I gave names of doctors who ONLY do thyroid in some cases (yes, one of them ONLY does thyroid...seriously)...and if you have a thyroid MD or DO...who knows their stuff and you still need an endo..they would already have a name of someone who would work with that. That's why I'm saying and suggesting just 'doctors' who specialize in thyroid disease. My endo doesn't even DO TSH...he doesn't 'bother' with it except when it 'comes with the rest of the tests in a panel'.

Sorry everything is so far from you. I feel your pain.
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Old 01-17-2013, 06:01 AM   #12
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Quote:
Originally Posted by Lokarbiebarbie View Post
I see...well, there are endo's who specialize in thyroid (mine does...he's almost two hours away one way, and he's worth it) and there are MD's who 'specialize' in thyroid (five in a three hour one way driving radius around me do). 'Anywhere at all in range' for Free T's aren't 'acceptable' to any of these doctors...huh uh...and if I say 'I feel fine' than they won't take the time to check out anything...it's a 'done deal' and 'next!!!'. Can't say I'd blame them.

But they all never just ask that...they ask 'How is your concentration level?' "How are your joints and any types of pains?' "Do you have plantar fasciitis?' and so on (all the hallmarks of thyroid disease). They also ALL do an appropriate hormone panel, and if the TSH is VERY low yet the Ft's are also low, they'd be doin testing on your pituitary..and so on.

Around my area, a thyroid doctor would be apt to send you to a neuroendo if it was tertiery hypothyroidism (that's pituitary driven hypo) not an endo. Or a neurologist...but for years and years it's always been known that good thyroid endo's do NOT live around a corner from you (except in one case on here I remember...and one WAS right around the corner from the OP!). I gave names of doctors who ONLY do thyroid in some cases (yes, one of them ONLY does thyroid...seriously)...and if you have a thyroid MD or DO...who knows their stuff and you still need an endo..they would already have a name of someone who would work with that. That's why I'm saying and suggesting just 'doctors' who specialize in thyroid disease. My endo doesn't even DO TSH...he doesn't 'bother' with it except when it 'comes with the rest of the tests in a panel'.

Sorry everything is so far from you. I feel your pain.
Well you raise some excellent ideas. I need to look beyond regular endos, of which the types of specialists you mention - wow, I am not sure how to find anyone so specialized. Lots to think about, thank you for your perspective, it is very helpful.
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Old 01-18-2013, 01:18 AM   #13
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Ask a pharmacist.
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Old 01-18-2013, 04:37 AM   #14
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Terry has a wonderful post there...'ask a pharmacist'. Yes...call local and compounding pharmacies (compounders also ship their product..the doc calls in your specially derived compound and then they make it and will ship, dont JUST call your own town's pharmacies).

I started that way..called all the pharmacies from here to a radius of 100 miles around me (covered two states, lol) and found four compounding pharms. and dozens of regular pharms who said 'yes, we do have Cytomel and Naturethroid, and Armour and Thyrolar, and.....well...' and then when I asked 'Which doctors prescribe over one grain of Naturethroid or Armour or any other porcine thyroid you have?' and I had myself a nice little list.
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Old 01-20-2013, 11:46 AM   #15
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That's a very good idea. I did some asking at my local pharmacy, and they told me only GPs were filling Nature-throid. I will call the compounding pharmacies and see if I can make some headway. I did hear from my current GP that he's not expecting to test me until August, so I have some time. I appreciate all of the advice!
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