Sjogren's

ouizoid · 04-27-2012, 04:06 PM

hey there

I have had hashimotos since I was 25 and was DX'd today with Sjogren's .. Anyone here deal with that? What do I need to think about besides eyedrops (a necessity several times a day), lube (ahem), working with my crazy joint pain, etc.?

KeirasMom · 04-27-2012, 04:53 PM

Never heard of it. I wiki'ed it and it doesn't mention TD. Is it related to Hashi's?

watcher513 · 04-27-2012, 05:10 PM

It's another autoimmune condition which Hashi's is also. Not really related to TD as far as I know. I'd probably just do a search on the net to find out about it. Wish I could help.

brandywine12 · 05-02-2012, 05:11 AM

Hi , I was never diagnosed with Sjogrens syndrome , but , I have had this disease for over 20 years. I know when I don't have enough meds I get dry eyes and mouth!The drops moisten your eyes and make them feel refreshed. I by over the counter eye drops for that. But , I haven't had to use them alot per sey.I chew xtra sugarless gum to combat the dry mouth I get occasionally.
I do believe it is related tho, I get on another forum(thyroid) and some people over there are talking about it now and then,it is an autoimmune disease. I also have some joint pain every now and then .But since L'cbing i don't have much of it, only when it rains or snows it may act up.

kbeth · 05-03-2012, 05:46 AM

Hi there! I have Sjogren's. I think I've had it off and on for the last 15 years, but it wasn't until I had my son 6 years ago that I got pretty miserable with it. I was finally diagnosed 2 1/2 years ago. I was put on generic Plaquenil (hydroxychloroquine) and that did help me.
Low Carb and specifically Paleo-ish diets help me tremendously!! Cod liver oil, too.

How are you feeling? Are you taking any meds?

ouizoid · 05-03-2012, 06:42 AM

hey beth--

not feeling well at all, but very nervous about taking any meds, esp. where weight is concerned.

I believe I have had it for many years. I had many episodes of pneumonia as well as pleurisy when I was younger. Was evaluated for MS 5 years ago. The symptoms of dryness have recently really escalated, as well as fatigue, joint and muscle pain, neurologic symptoms, GI symptoms, weakness, etc.

I have been surfiing the sjogrens world boards and am just amazed at how many of my symptoms are explained by this disease.

Glad to hear that LC has helped you.

Leo41 · 05-03-2012, 07:35 AM

Ouis- Sorry that you're going through this, but I suspect you're right--i.e., that you've had this for years. I've read that unless our symptoms are very severe, many diseases remain 'hidden' and don't get diagnosed.

In retrospect, I was hypothyroid for many years before diagnosis, but no doctor 'connected the dots.'

I hope you get some relief--and I agree about avoiding meds except when absolutely necessary. My endo shares this belief and tells me that every Rx has some undesirable side effects, so it's always best to avoid medication if at all possible.

kbeth · 05-05-2012, 10:15 AM

Oui...it AMAZED me when I started researching it how many bizarre symptoms I had been having and would never have suspected they were all connected by Sjogren's.

By the time I was finally diagnosed, the neurological symptoms were so bad that I seriously didn't want to be here anymore if you know what I'm saying. I never would have done anything because of my beliefs and the fact that I had a toddler....but to feel like that all the time was not any kind of life.

I also wanted to do things naturally, in fact I have a slight phobia about meds (even Ibuprofen!) but I knew that I needed help and quickly. The main go-to medicine is the Plaquenil (hydroxychloroquine). Very, very low incidence of side effects, plus it covers a myriad of auto immune diseases. Do some research....when I first got on it I was freaked out, but I checked lots of forums and so many people considered it a lifesafer. Low Carb, cod liver oil, light exercise and plaquenil. As much as I dislike being on medication, I cannot deny that my quality of life has greatly improved.

Oh, and I actually lost weight when I first started it. Gave me a little nausea the first few months, lol.

Violeta · 05-15-2012, 06:19 PM

Ouizoid, see what you you think of this article. I have a friend whose daughter has Sjogren's so I've been thinking about it lately. Any of the diseases that they call autoimmune are just actually toxicity. This article explains a lot of different aspects of them, calcification being one of them. I have a lot of various issues myself, and I am always trying to figure out the root cause. They all seem to be leading to the same places.....calcium and it's corresponding magnesium deficiency, fibrin, hormones, pathogens, some form of acid. This article also adds an inherent mineral deficiency.

http://www.sunherb.com/Calcium%20Myt...20Mischief.pdf

A different friend of mine has Hashimoto's. She started taking Vitalzym(breaks up fibrin) for fibroids. In just a little over a month her goiter has shrunk a lot. She even brought a picture to work from last September, and we couldn't believe it. She is going to her doctor soon and can't wait to see what he says.

I hope this helps.

04-27-2012, 04:06 PM	#1
ouizoid Major LCF Poster! Join Date: Nov 2007 Posts: 2,920 Gallery: ouizoid Stats: 225/165/145 WOE: JUDDD	Sjogren's hey there I have had hashimotos since I was 25 and was DX'd today with Sjogren's .. Anyone here deal with that? What do I need to think about besides eyedrops (a necessity several times a day), lube (ahem), working with my crazy joint pain, etc.?

05-05-2012, 10:15 AM	#8
kbeth Major LCF Poster! Join Date: Apr 2004 Location: Chicago Posts: 1,627 Gallery: kbeth Stats: 5'4" 43yo 161/148/125 WOE: Paleo-esque Start Date: April 2002/Restart April 2012	Oui...it AMAZED me when I started researching it how many bizarre symptoms I had been having and would never have suspected they were all connected by Sjogren's. By the time I was finally diagnosed, the neurological symptoms were so bad that I seriously didn't want to be here anymore if you know what I'm saying. I never would have done anything because of my beliefs and the fact that I had a toddler....but to feel like that all the time was not any kind of life. I also wanted to do things naturally, in fact I have a slight phobia about meds (even Ibuprofen!) but I knew that I needed help and quickly. The main go-to medicine is the Plaquenil (hydroxychloroquine). Very, very low incidence of side effects, plus it covers a myriad of auto immune diseases. Do some research....when I first got on it I was freaked out, but I checked lots of forums and so many people considered it a lifesafer. Low Carb, cod liver oil, light exercise and plaquenil. As much as I dislike being on medication, I cannot deny that my quality of life has greatly improved. Oh, and I actually lost weight when I first started it. Gave me a little nausea the first few months, lol. __________________ <---Avatar Summer 2009. Soooo close to goal and then had a mad, passionate weekend with sugar. Let me be a lesson to you. Not sure you're strong enough to cheat and then get right back on plan?? Then don't do it!! Last edited by kbeth; 05-05-2012 at 10:25 AM..

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04-27-2012, 04:53 PM	#2
KeirasMom Blabbermouth!!! Join Date: Nov 2011 Location: Fresno, CA Posts: 7,331 Gallery: KeirasMom Stats: 277.6/155-159/165, 5'9", 40 y.o., Hypothyroid WOE: In Place of a Roadmap Start Date: Maintenance 1/23/13	Never heard of it. I wiki'ed it and it doesn't mention TD. Is it related to Hashi's?

04-27-2012, 05:10 PM	#3
watcher513 Major LCF Poster! Join Date: May 2007 Location: Sonoma County, CA Posts: 2,642 Gallery: watcher513	It's another autoimmune condition which Hashi's is also. Not really related to TD as far as I know. I'd probably just do a search on the net to find out about it. Wish I could help.

05-02-2012, 05:11 AM	#4
brandywine12 Senior LCF Member Join Date: Jan 2011 Location: Pa. Posts: 313 Gallery: brandywine12 Stats: 195/160-155 WOE: Atkins 100% Start Date: 1-4-11	Hi , I was never diagnosed with Sjogrens syndrome , but , I have had this disease for over 20 years. I know when I don't have enough meds I get dry eyes and mouth!The drops moisten your eyes and make them feel refreshed. I by over the counter eye drops for that. But , I haven't had to use them alot per sey.I chew xtra sugarless gum to combat the dry mouth I get occasionally. I do believe it is related tho, I get on another forum(thyroid) and some people over there are talking about it now and then,it is an autoimmune disease. I also have some joint pain every now and then .But since L'cbing i don't have much of it, only when it rains or snows it may act up.

05-03-2012, 05:46 AM	#5
kbeth Major LCF Poster! Join Date: Apr 2004 Location: Chicago Posts: 1,627 Gallery: kbeth Stats: 5'4" 43yo 161/148/125 WOE: Paleo-esque Start Date: April 2002/Restart April 2012	Hi there! I have Sjogren's. I think I've had it off and on for the last 15 years, but it wasn't until I had my son 6 years ago that I got pretty miserable with it. I was finally diagnosed 2 1/2 years ago. I was put on generic Plaquenil (hydroxychloroquine) and that did help me. Low Carb and specifically Paleo-ish diets help me tremendously!! Cod liver oil, too. How are you feeling? Are you taking any meds?

05-03-2012, 06:42 AM	#6
ouizoid Major LCF Poster! Join Date: Nov 2007 Posts: 2,920 Gallery: ouizoid Stats: 225/165/145 WOE: JUDDD	hey beth-- not feeling well at all, but very nervous about taking any meds, esp. where weight is concerned. I believe I have had it for many years. I had many episodes of pneumonia as well as pleurisy when I was younger. Was evaluated for MS 5 years ago. The symptoms of dryness have recently really escalated, as well as fatigue, joint and muscle pain, neurologic symptoms, GI symptoms, weakness, etc. I have been surfiing the sjogrens world boards and am just amazed at how many of my symptoms are explained by this disease. Glad to hear that LC has helped you.

05-03-2012, 07:35 AM	#7
Leo41 Senior LCF member Join Date: Nov 2007 Posts: 8,426 Gallery: Leo41 Stats: 340 then/145 now WOE: Low carb/calorie cycling	Ouis- Sorry that you're going through this, but I suspect you're right--i.e., that you've had this for years. I've read that unless our symptoms are very severe, many diseases remain 'hidden' and don't get diagnosed. In retrospect, I was hypothyroid for many years before diagnosis, but no doctor 'connected the dots.' I hope you get some relief--and I agree about avoiding meds except when absolutely necessary. My endo shares this belief and tells me that every Rx has some undesirable side effects, so it's always best to avoid medication if at all possible.

05-15-2012, 06:19 PM	#9
Violeta Junior LCF Member Join Date: May 2012 Posts: 7 Gallery: Violeta	Ouizoid, see what you you think of this article. I have a friend whose daughter has Sjogren's so I've been thinking about it lately. Any of the diseases that they call autoimmune are just actually toxicity. This article explains a lot of different aspects of them, calcification being one of them. I have a lot of various issues myself, and I am always trying to figure out the root cause. They all seem to be leading to the same places.....calcium and it's corresponding magnesium deficiency, fibrin, hormones, pathogens, some form of acid. This article also adds an inherent mineral deficiency. http://www.sunherb.com/Calcium%20Myt...20Mischief.pdf A different friend of mine has Hashimoto's. She started taking Vitalzym(breaks up fibrin) for fibroids. In just a little over a month her goiter has shrunk a lot. She even brought a picture to work from last September, and we couldn't believe it. She is going to her doctor soon and can't wait to see what he says. I hope this helps.