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Old 10-13-2012, 07:37 AM   #151
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One reason I get my labs done a week before my endo appointment is so that I can discuss the results with him and 'negotiate' if I don't agree with him about anything. It helps that I've been seeing him for about 5 years, and we have a trusting relationship. So if my labs don't indicate I need a change in dosage but I am having symptoms that concern me, he will often give me the increase because he knows that 1) labs are not the final word; 2) I monitor myself and would report any hyper symptoms.

Back to your doctor. Your T4 and T3 seem to be fine, so I'd be loathe to cut back on meds just because of the TSH--but all doctors tend to freak out over a very low TSH.

Unfortunately, you won't know whether you'll gain weight with the lowered dosage for some time because the T4 works so slowly in affecting the body. My suggestion would be to discuss your concern with the doctor. She may have some ideas about how you can proceed.

I actually lost weight when I was hypothyroid and undiagnosed, but years later when I began having conversion problems, and my T3 tanked, I rapidly gained weight until I could bring up the T3 with supplements. My point is that although your hormones may be too low with the new dosage, and in that case, you'll know with symtoms (my major one is always incredible fatigue), you may not have any immediate weight gain, and the other symptoms should convince the doctor to raise your dosage.

If you're not happy with this doctor, I'd suggest you 'shop around.' When you're dealing with a chronic condition that you'll have to monitor for the rest of your life, it really helps to have a compatible doctor whose opinions you trust.
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Old 10-13-2012, 08:33 AM   #152
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she is dr#10. my old drs ft4 range changed which was why I went to her to begin with . I heard a lot of good things about her and told her so,. I explained what he was trying to tell me about this stuff and she agreed, you know your self better than anyone she said, now this happens. What is it about the low tsh below range that freaks em out???What can it do? I have always had a low tsh . all my records will show it. doesn't matter how low they drop my meds. I was on this dose before and I got terribly ill on it, although it was generic by Mylan, switched over to brand and lost a few lbs of fluid weight. o u think that it will be a few months till I see a difference if at all in weight troubles?
I just started a fast pace job and cannot afford to loose any energy. I also had two lg cups of jo that morning of testing ...do u think it made it fall low? I am almost afraid to give a true reading in 6 weeks. for fear she will try to drop even more. thanks for responding back
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Old 10-13-2012, 09:59 AM   #153
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Quote:
Originally Posted by brandywine12 View Post
she is dr#10. my old drs ft4 range changed which was why I went to her to begin with . I heard a lot of good things about her and told her so,. I explained what he was trying to tell me about this stuff and she agreed, you know your self better than anyone she said, now this happens. What is it about the low tsh below range that freaks em out???What can it do? I have always had a low tsh . all my records will show it. doesn't matter how low they drop my meds. I was on this dose before and I got terribly ill on it, although it was generic by Mylan, switched over to brand and lost a few lbs of fluid weight. o u think that it will be a few months till I see a difference if at all in weight troubles?
I just started a fast pace job and cannot afford to loose any energy. I also had two lg cups of jo that morning of testing ...do u think it made it fall low? I am almost afraid to give a true reading in 6 weeks. for fear she will try to drop even more. thanks for responding back
Hi Brandi,
I'm not an expert in this stuff, by any means... but reading stopthethyroidmaddness and their web has helped me a lot. I go to a naturopath who treats me for adrenal fatigue as well. She says that if your adrenals are tanked the thyroid meds will do no good at all. I had a saliva test & found that cortisol levels were low, so am taking Isocort for that & its the first time in 40 yrs. that I've been able to skip napping! Its fabulous! You can actually test yourself for adrenal fatigue, and buy Isocort online too. They say Dr.'s ignore adrenal levels unless you have some extreme condition... not sure what your specialist would do with that.
Question: Did you skip taking your thyroid meds before your test? Some say that's really important to do... I'm going to do that before my next test, as I'm starting to feel much better, don't want to have my reading come out too low either.
Message me if you'd like more info on testing your adrenals.
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Old 10-13-2012, 10:19 AM   #154
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Brandy- The TSH that's lower than the lab range indicates you are moving from hypo to hyper, and that's what doctors want to avoid. They try to keep us 'balanced,' as our thyroids would do if they were working normally.

It's critical that you keep copies of all your lab work (I have mine from when I was first diagnosed) because if you have a history of very low TSH, that may be normal for you, but a doctor wouldn't know that unless you showed him/her your past lab reports.

That's what's difficult about thyroid and why I really dislike a lot of the hysteria that's all over the Internet about thyroid. What's 'normal' for one person may be 'abnormal' for another. For example, my own T4 and T3 levels are a little lower than the Internet gurus would approve of--but at that level I feel great and have no symptoms. Doctors have told me that people are very individual in their optimum hormone levels; few of us 'match' the textbook. That's why it's important for you to be pro-active about all this and develop a good relationship with the prescribing doctor.

All physicians are very conservative (or at least the good ones are) in prescribing thyroid hormones because the hormones are extremely powerful. There was a story online a while ago about a young woman (in her 20s) who decided that Cytomel (T3) would help her lose weight (it doesn't). She not only convinced her doctor that she needed it for her thyroid, but she immediately began taking a higher dose than prescribed. She ended up in the ER with a heart attack.

So keep all this in mind when you're dealing with a doctor. They have a different perspective than we do on all this. However, it's our bodies, and that's why you need to educate yourself as much as possible and be pro-active with the doctor.
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Old 10-13-2012, 05:16 PM   #155
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hyper? I am in no way going in that direction right now or in the past few months.
I have read up for a very long time on td and what it all means. I also know that every body is different in this condition, its not a one size fits all.
hyper in what way? my labs are not showing that at all right now. I was hyper when I first got diagnosed,...aka I had a toxic multinodular goiter , had to have RAI done as my heart was going to explode as I was told back then . it was beating at a very high rate , by 3 times higher. I had it done almost immediately after being hospitalized and in trauma unit. within 24 hours they did RAI.

I am symptom free when it is low like it is.I sleep very well , I have lots of energy ...not nervous energy. I had that in the very beginning.shook rattled and rolled lol! lost 65 lbs in 2 months , lost a ton of hair, ect. ect.
sos I don't think my labs show hyper in anyway, tsh is low always low for me.
I do keep records and get copies of all my labs when done. so sick of being jerked around my drs who think that #'s are what is needed. So , I am not going to take meds this next time around and see what she says then about my TSH.How can tsh be relevant , when I no longer have my gland to produce any thing.? well I do appreciate the responses . I needed some one to talk to about this as my dh doesn't understand any thing I tell him about this disease, he know tho when something isn't right!lol.(being ticked off all the time and as he calls it a smart ass.)
Thanks a bunch for chatting w/ me about this
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Old 10-13-2012, 05:23 PM   #156
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Hi , I take my meds before i go to bed for the night.
the only time I napped is when I didn't have enough medication. I haven't napped in a very long time.In fact I go to bed around 8-9 o'clock every nite, I get up around 4am. for work . I work 10 hours a day.I convert t3 very well also. no need for t3 meds.
I don't think I have any thing going on as far as my adrenals go tho.
thanks for your response.
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Old 10-14-2012, 01:45 AM   #157
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Quote:
Originally Posted by brandywine12 View Post
I convert t3 very well also. no need for t3 meds.
Are you sure? According to your labs, you're not even at mid-range for FT3. You're also over the mid-range for T4.

Sept 2012
on .112 mcg. T4
tsh .01 (0.35-4.94)
ft4 1.57 (0.7-2.19)......mid range is 1.44
ft3 3.04 (2.77-5.27) ...mid range is 4.02

2010
tsh 0.068(0.35-4.94)
ft4 1.89 (,07-2.19)
ft3 3.42 (2.77-5.27) on .125 mcgs was reduced back then to the .112's T4(synthroid).

My guess is that the TSH wasn't the only reason your doctor lowered the dose each time. Your FT4 was above the 3/4 range mark which is 1.82 in 2010 and it's still above mid-range now.

On the other hand, your FT3 was, and still is below mid-range, by a ways.
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Old 10-14-2012, 05:38 PM   #158
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I guess your right, I was doing 0.07 when I was doing the math , i was wrong. as for converting ....I thought as long as you are converting over it is ok? Again wrong! would a small dose of t3 be an ample amount to bring it up? would armour be what I need instead if t4 meds? I have been on t4 only this whole time(23 yrs). so you think I am hyper according to my labs because my t4 is above its range and t3 is low. I was always under the impression that t3 is what makes u hyper when its over range.not t4.thanks fro responding back , I will keep this in mind!
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Old 10-15-2012, 05:16 AM   #159
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Well.....looking at your dose and what it was before also, giving too much T4 does it also. When I started taking T3, before adding it I was originally on 100 mcg. T4 for a few years. They backed me down to 75 mcg. T4 and they added T3 also. It's a balancing act....and takes time. Unfortunately they added too much T3 for me at first (12.5 mcg.) and didn't tell me to split it which I called about the next day when it was was Way too much. Then the T3 was backed down immediately to 5 mcg. to start, once a day. Then later on it was 5 mcg. 2x/day. Then slowly worked up higher but my T4 is still 75 mcg. today (a little over 3 yrs. later).

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Old 10-19-2012, 03:52 AM   #160
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well I was thinking....if ur dr gave u t3 meds w/ ur t4 meds didn't (the t3 drive down ur tsh?I seem to think that not every body has to be in mid range , I always had a little higher t4 . I think that I am one that has to be that way.one size don't fit all.
for over 23 yrs my tsh has been lowish , it has to be that way in order for me to feel well.
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Old 10-19-2012, 04:01 AM   #161
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Oh, I agree, we're definitely all different. Yes, they both (T3&4 replacement) drive the TSH down. I feel best near the low end of the TSH range (which my doctor goes by), which is a little below the mid-range for my FT4 and around the 3/4 up the range for my FT3. I get my own tests because they won't run a FT3.

That's why they lowered the T4 when they introduced the T3.

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Old 10-27-2012, 05:38 AM   #162
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so ask for a bit less T4 and ask to try some cytomel??
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Old 01-30-2013, 09:47 PM   #163
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I am a former Synthroid user w/ a sluggish thyroid (due to goiter and tumors) and it worked decently. However, I didn't feel any different when I wasn't taking it than when I was. Then I asked my Dr about Armour (T3 & T4). My thyroid levels are now perfect, I feel better, and it was quite a bit cheaper than Synthroid ($3.89 vs $18.76 per month). Also, I know most generic drugs are just fine, but thyroid medicine is something that really should be brand name. If you switch to Armour, however, this isn't a problem because there isn't a generic form.
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Old 02-22-2013, 10:33 AM   #164
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To Inatic, I have tried to contact your coach twice now with no luck. I am also a hypothyroid patient and have been struggling with weight loss since being diagnosed. I am in pretty good shape muscle wise. I just can not get rid of the fat. So frustraed
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Old 02-28-2013, 06:22 PM   #165
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stephlemons. his wait list grows by the second. His site has a very slow response time due to site reconstruction. Maybe check his fb page?
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Old 04-19-2013, 07:38 AM   #166
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hi pam, long ago you told me i had to be on low carb to lose. i didn't listen.

Now, I have done some changes to my life and so far lost 4 lbs. It took someone's bad joke to get me started, "Lets go out for lunch because I know how you like to pack on the calories." I told a friend what this person said, and she mentioned the book Wheat Belly. I read it, went off wheat, and my energy level sky-rocked. Also, my blood pressure that the doctor was now concerned about was 160/105 before going off wheat and now it is around 130/76. After reading the book I know I will never eat wheat again. But still I didn't lose weight. I cut out sugar, and that helped a little. I was eating stevia and finally I realized that the last time I went low carb my appetite decreased almost daily. (I have the record of what I ate.) This time nothing. So I threw out the stevia and began losing. I have no idea if I will continue to lose, but 4 lbs feels better. And this is only recent.

Also my Westhroid meds are down to 30 mg. a day. Maybe I will be able to cut them further. But I certainly recommend the book, Wheat Belly.

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Old 04-21-2013, 09:40 AM   #167
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I agree with all of you. I have been hypothyroid since I was about 25 years old. 20 years later I am still battling it. I have been on synthroid the entire time and really I am still up and down. If I get my blood work done two weeks in a row the one week I will be high next I will be low. Routine hasn't changed it just must be how the body absorbs the medication so it is very frustrating.
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Old 06-14-2013, 12:22 PM   #168
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So far I have lost ten pounds and have been able to lower my dosage to 15 mg. of westhroid from 65 mg. My blood pressure went from 160/105 to 122/71, my indigestion went away, and i have more energy. I have not been on this diet for long, maybe 4 months. I cut out all grains and sugar. Going off wheat lowers the b/p and took care of my indigestion, etc. but i lost more weight when i went off sugar. This is not an easy diet, but because it has so many benefits I will not go off it, especially never the wheat because when i unknowingly eat wheat my b/p goes up. When i eat any grain or sugar my weight goes up. I suggest the books, Wheat Belly and It Starts with Food. "Wheat Belly just tells you how bad modern wheat is and why. It Starts with Food takes you off all grains and all sugars, even stevia and artificial. I could not lose the weight while I was eating stevia.

I eat veggies, fruits, nuts, some milk, eggs, chicken, fish, or pork.
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Old 06-17-2013, 07:46 AM   #169
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I am hypothyroid due to having had radioiodine therapy because of my hyperthyroidism (Graves disease). Unfortunately I wasn't one of the lucky ones who was thin when mine was hyperactive, but I did get the heart palpitations and felt like I was constantly running a marathon. It took me a long time to decide to go ahead with the radioiodine treatment because I knew it was irreversible and I was already at 275-280 pounds, but my doctor really pushed it because he said all you have to do is take one little pill a day to regulate it. Well at first they didn't put me on anything for it and I switched health insurance and primary care doctors so it was over a year before they got me on medicine for the hypothyroidism and I ended up ballooning up to 336 pounds. I was also on steroids for my rheumatoid arthritis at the time and that didn't help I'm sure. Anyway, the point I am getting to is that after I got so fed up with being so overweight and unhappy I decided to try anything to lose weight. I ended up going with the Atkins diet and I lost a little over 80 pounds. I also got off the steroids and on an antidepressant and on levothyroxine. I just had my blood work done and my TSH was 5.29, so I'm hoping they will increase my dose of levothyroxine. I had been off my diet since the holidays and gained 25 pounds back! We started a weight loss challenge here at work and our first weigh in was last Friday. As of last Friday I've been back on the Atkins diet and already lost 10 pounds as of this morning!!! In three days! That's just crazy to me. I know the whole water weight thing, but geez 10 pounds. So here I am at 270 and I'm determined to stick to my low carb way of eating. It really does work. I tried Weight Watchers and it also works, but it's hard for me to follow because once I start eating carbs I just crave more, more and more. Hopefully when I get my thyroid medication straightened out and keep up this way of eating I will lose a lot more weight and go below the 255 that I got to last year. One difference is I do zumba four days a week, a one-hour class. I can tell you one thing though I've been doing zumba four days a week since the end of January and I love it, but I cannot lose weight exercising alone. Until I changed my diet back to low carb I was steadily gaining even though I felt better and more toned. I have more energy and take the stairs without any problems now. I'm so sorry to ramble on and on. I just wanted to say that, even though I have hypothyroidism, the Atkins diet works for me.
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Old 07-23-2013, 02:12 PM   #170
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Looking for low carb help

I too have been diagnosed since 2006 with a hypothyroid problem. I currently have it under control and was able to loose 35lbs in 2011 with a lot of eating properly and hard exercise, but in 2012 I was introduced to the Atkins diet and lost 10lbs right away. I am at a standstill for the last 6 months. I seem to gain up to 5lbs and can lose it, but I can't get any further with it. I'm really frustrated. I want to lose another 40lbs or so. Can anyone suggest anything for me to try?

I admit that for a couple of months I wasn't watching what I was eating. Well, 5 days ago, I started the Induction Plan again and already I see 3 lbs off. I just feel like I'm starving myself and exercising occasionally, but not getting anywhere.
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Old 07-23-2013, 03:08 PM   #171
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If you're on the induction you should eat until you're satisfied. That's one of the things I love about the Atkins diet is I don't feel like I'm starving because the food is so satisfying. Do you eat a little something every couple of hours? If I'm hungry I grab a boiled egg or anything else that's on the induction list.
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Old 07-24-2013, 07:28 AM   #172
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I do eat every few hours. Sometimes if I'm busy, I forget, though. I know that's not good. I usually have celery sticks around. But hard boiled eggs are a good thing to have around, too. Where do I find this induction list you're talking about? I really need to have more variety in my meals. I try to surf the internet, and come up with things that seem like they have more carbs than I should have for these 1st 2 weeks.

Before I went to work this morning, I put a lasagna meal in the crock pot that someone recommended. It has turkey burger, low carb tomato sauce, green onions, garlic, ricotta cheese, mozzarella cheese, spinach and zucchini. I'm hoping this will be a new favorite. It smelled really good when I put it in the crock.

Thanks for talking.
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Old 07-24-2013, 03:16 PM   #173
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The induction food list should be right on the atkins website as well as a lot of recipes and if you sign up with the website they send you a little book with a list of pretty much all basic foods and the amount of carbs in them and they also sent me a couple of their low carb bars and coupons too. I don't know if they still send the same package or not, but it was totally free. I also like sugarfreesheila's website and she also has a list of the induction foods and some free recipes. Her story is a really encouraging one. She lost the weight years ago and has kept it off.

Let me know how the lasagna recipe turns out. It sounds good. As far as great recipes go, Linda's low carb recipes is a great one. I think if you google genaw it will pull up her website. I'm not sure what genaw stands for lol. She has tons of wonderful recipes. The thin crust pizza is so awesome! My kids and even my parents absolutely LOVE it. Even people at work have that are not dieting have tried it and loved it. It's pretty amazing. I microwave the pepperonis until their crisp and then put them on the pizza right before it's done.
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Old 07-25-2013, 07:08 AM   #174
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I can hardly wait to tell you that the lasagna recipe was wonderful! I did a couple of additions to it, though. When I browned the ground turkey and garlic, I added 2 green onions, drained it then added the tomato sauce. I sprinkled about 1tsp of Italian herbs and mixed. Then followed the recipe. Really good!

It's good to hear success stories. I'm fightin' mad right now about losing (or not losing) the weight. So I need encouragement. I will check out sugarfreesheila's site. I think I've been in genaw's site. I'll have to go back and see.

I try to do gluten free and much as possible. I haven't been diagnosed with celiac, but I am intolerant of wheat. Anyway, I found a recipe for ALL veggie pizza. The crust is made from a cauliflower and cheese mixture. My friend and I made it for a Christmas party last year and it was devoured. The crust is a little soft, but we are working on that to make it crisper. I'll have to find that recipe and share it.
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Old 07-25-2013, 11:49 AM   #175
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I've seen a recipe with cauliflower crust, but I haven't tried it yet. Using grated cauliflower as a rice substitute is wonderful though. The only reason I don't do it more is that it's so messy. I stir fry it with lots of veggies and chicken and soy sauce. Even my kids love it. I love chinese food and miss having rice and this really does do the trick for me. I've heard good things about the cauliflower pizza crust so I'll have to give it a shot.
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Old 07-25-2013, 10:31 PM   #176
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Frustrated!

Isn't the synthroid supposed to make it easier to lose weight??
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Old 07-26-2013, 05:24 AM   #177
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Only if the Synthroid converts to T3 in your body. Most of us adult women need tested for both T4 AND T3...the T3 should be higher than the T4.

And 'make it easier to lose weight'...means if you lowcarb and have enough T3 (this is the energy, libido, good hair, nails, happy thyroid hormone..) than yes, you will be rewarded for your not cheating way of eating.

If the T4 is not converting into T3 (and a TSH test will not show this...you need Free T4 and Free T3 testing) than it's like putting gasoline in a car with no engine.
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Old 07-26-2013, 07:27 AM   #178
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Join Date: Jul 2013
Location: PA
Posts: 26
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Stats: 218/170/130 - 5' 2"
WOE: Atkins
Start Date: October, 2012
I started reading sugarfreesheila's site and it is definitely a site I will be re-visiting! Some great food ideas and loads of info. Last night for dinner I tried her Low Carb Pancakes. They were really good, but a little thin. I'm wondering if an egg ring would allow the batter to stay put and make it a little thicker. I'll have to get one and try it. They were quick and easy to make.

I agree with Lokarbiebarbie. Synthroid will help you lose weight if it's working properly. But it takes a while to balance your system out. You should be tested yearly to make sure you're in balance.
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Old 07-26-2013, 03:13 PM   #179
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Join Date: Aug 2011
Location: Tulsa, OK
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Stats: 336/252/250 (mini goal)
WOE: Back on Atkins as of 6/14/13
Start Date: Originally, July 2011
Those pancakes r really thin. I usually wrap it around a sausage link. I make a batch and have breakfast for a few days
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Old 07-29-2013, 09:37 AM   #180
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Join Date: Jul 2013
Location: PA
Posts: 26
Gallery: goodeats
Stats: 218/170/130 - 5' 2"
WOE: Atkins
Start Date: October, 2012
I had a really good weekend. On Friday I made a new recipe for LC chicken dinner in the crockpot. It was a really good. My friend even complimented me on it. It has scallions, pecans and bacon and a sauce. Really tasty and the chicken stayed moist. The rest of the weekend I stuck to my guns and ate low carb, too. And I was rewarded yesterday by seeing 2lbs down on the scale. Now that I'm doing it, I'm definitely sticking to it. Hope all went well for you gals.
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