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Old 02-02-2010, 02:53 AM   #31
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she said so far, she is feeling much better.
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Old 02-02-2010, 05:50 AM   #32
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she said so far, she is feeling much better.
Wow, that's GREAT news!
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Old 02-04-2010, 06:21 AM   #33
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C'mon now...can ya call Tim or Faith or Boots or someone and ask who they go to? (J/K)

Pam
Yeah, because there are a LOT of celebrities in that area. And you KNOW some of them are going to thyroid docs. Of course they can easily fly anywhere for the best treatment but I would guess that some of them are definitely seeing docs in that area.

Sure do wish we had the inside scoop on that one!
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Old 02-04-2010, 07:43 AM   #34
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Um..I'm not saying..but I've had 'celebrities' write to me. Quite a few actually. Most from California...couple from Nashville...lots from the UK.

Pam
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Old 02-04-2010, 07:52 AM   #35
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Um..I'm not saying..but I've had 'celebrities' write to me. Quite a few actually. Most from California...couple from Nashville...lots from the UK.

Pam
WOW...........smart celebrities!!
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Old 02-06-2010, 02:25 PM   #36
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Had my appointment with Dr.Chapdelaine. I am glad to have someone understand what is wrong.Lots of tests though luckily i have bcbs which is one of the only insurance companies that cover the tests i have to do.Once all those test results in (stool,saliva,urine & blood) we will see once those all come in.He also gave me the name of an optometrist to go to for my eye problem and actually said that i am probably having eye problems because of my thyroid.He is very serious but knows what he is doing.He didn't try to sell me any supplements but had positive remarks about the supplements i am already taking (vitamin D & magnesium).

These are the test he is having done for my blood:
Comp Metallic Panel
Cardio crp
Cbc w/diff
vitamin b12/folic acid
free T3
Tpo
Thyroglob panel
TS1 ( i think weird drs writing)
Insulin
Vit d3

Urine

Organic Acids Test (OAT)

Stool

Comprehensive stool analysis

Saliva

Cortisol 6am-8am
Cortisol 11am-Noon
Cortisol 4pm-5pm
DHEA& DHEA (s) Pool
Testosterone

What do you think Pam

Sorry for the long post
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Old 02-06-2010, 08:32 PM   #37
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I have been waiting to see you post on Dr Chapdelaine. I have looked at his website. I see he does metal testing for mercury in amalgam fillings. Is that what Comp Metallic Panel is for. I have a lot of old amalgam fillings. No way can I afford to have them removed since the specialist dentists in that field are not covered by dental insurance. I wondered if one went to Dr Chapdelaine if he would tell me that I would have to have it done. Maybe mercury effects the thyroid? I am not sure if my insurance would cover him and all the different tests like you have listed. What problems are you having with your eyes? What optometrist did he refer you to? I see an optometrist and opthamalogist here in Hermitage. When will you get your tests results back? Sorry for so many questions. Thanks!
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Old 02-06-2010, 09:23 PM   #38
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I'm betting there is a Free T4 in there too (lol). So far, so good, but as we ALL know (those of us who have been treated) it's not the tests they do, it's HOW they interpret them.

pemmy, I've NEVER heard of a doctor saying you HAD to remove fillings (especially if you cannot afford that!). I have TED (Thyroid Eye Disease to the point where I have NO peripheral vision..it's from very high antibodies count and NO treatment and MIStreatment when I was younger). I also have Sjogrens syndrome (which causes dry eyes and many opthalmologists don't know squat about that (I saw TEN, for crying out loud!!! EVERY one said TED 'only happens with hyPER/Graves' and/or...that they'd never even seen a Sjogrens patient).

Pam

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Old 02-07-2010, 08:44 AM   #39
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I have been waiting to see you post on Dr Chapdelaine. I have looked at his website. I see he does metal testing for mercury in amalgam fillings. Is that what Comp Metallic Panel is for. I have a lot of old amalgam fillings. No way can I afford to have them removed since the specialist dentists in that field are not covered by dental insurance. I wondered if one went to Dr Chapdelaine if he would tell me that I would have to have it done. Maybe mercury effects the thyroid? I am not sure if my insurance would cover him and all the different tests like you have listed. What problems are you having with your eyes? What optometrist did he refer you to? I see an optometrist and opthamalogist here in Hermitage. When will you get your tests results back? Sorry for so many questions. Thanks!
I am not sure if he would asked you to have them removed. He did however look in my mouth for some but i don't have any.My eyes are really puffy on the upper eyelid,losing a lot of vision,double vision,eye strain,dry eye. My blood tests will be back in a week the urine is 2 weeks & the stool is 3 weeks i believe. They are sent off to a lab in kansas called Great Plains Lab.The name of the optometrist is Dr.Ludwig and she is downtown on 22nd. Does your optometrist have any experience with Thyroid eye disease? I have a new symptom losing hair on my forearms.Idk if its thyroid related but my baby and i have been noticing it.

I meant to tell you Pam when i was leaving a lady came in was talking to the receptionist about how armour was back at Costco. So they obviously prescribe Armour just not sure how many of the patients take it.I am very nosey and also overheard a conversation about dosing of armour.

Thought that may be some useful info

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Old 02-07-2010, 10:12 AM   #40
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But that's the new 'reformulated' Armour. We don't want that (ok..well, "I" specifically and most other patients do NOT want ANY MORE of THAT crap).

Hair loss on the forearms can be adrenal related OR thyroid related. And MY Sjogrens disease (which manifests also as dry, swollen eye) was 'caught' with a 'slit test'. Opthalmologists who are savvy about thyroid and autoimmune conditions will do a slit test FIRST...not Sjogrens' specific antibody. It's usually caught that way (my immunologist missed it, my pulmonologist missed it, and my first two MD's and internists missed it...but my endo/thyroid doctor (he's an endo but 'specializes in thyroid and BHRT') caught it and called the opthal to do a slit test. Usually a rheumy will also do slit test to 'catch' Sjogrens when it pertains to dry, swollen, itchy unfocusing eyes.

In my case, I also had removal of my salivary glands (but the hospital and doc who removed did NOT do a Sjogrens biopsy on them...sometimes this gets maddening, lol). And doctors kept arguing with me that ONLY Graves/hyPERtthyroid can have TED. WRONG.

OptomETRISTS ..um..aren't 'up' on Sjogrens and TED usually (doesn't mean they all are that way though)..I saw no less than SIX of them and all SIX misdx'd me as glaucoma (and it DOES look like glaucoma in certain stages).

Pam

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Old 02-07-2010, 10:15 AM   #41
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Wanted to add: In my small town (and a larger one an hour away) I could have gotten a dozen bottles of Armour at any time throughout all this...but it is the 'new reformulated' Armour of course. I know some states completely 'ran out' even the reformulated (cuz some patients don't have access to computer, or knowledge about how the reformulated just wasn't working for most) and when the doctors all call around to say "oh, you can get Armour 'now' or 'again" they don't 'get it'.

Pam
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Old 02-07-2010, 11:31 AM   #42
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Whats a slit test? I cannot wait to get these test results my throat actually hurts at times.Its annoying.I noticed the puffy eyes are accompanied *usually* by itchiness,dryness and burning in my eye.Also rashes on my eyelids and around my mouth. I am pretty sure those are from gluten though because i fell off my diet when i got my wisdom teeth out.( i know stupid).What thyroid medication should we be looking to get prescribed instead of Armour? I just really want a DR who will do the block & replace method.He also said something about Iodine I didn't quite follow.I know he wanted to start treatment but can't because i don't have the tests back yet.

Do you know any Opthalmologists in Nashville? They would be better fit to diagnose TED?
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Old 02-07-2010, 07:42 PM   #43
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No, I don't live in TN. I live in Indiana so found a rheumy, endo, immu, pulmo here (and an MD who 'ties it all together' for me).

A rheumatologist would know what a slit test is, but if you think it's Sjogrens (dry...dry eyes, dry throat, dry mouth, etc.) than you'll want to be seen by someone who has Dx'd and treated Sjogrens before (not just a doctor who's 'heard of it'). A slit test is where they put a special 'paper' that you hold between your eyelids (that's pretty 'Cliff's notes' it's way more than that, but it can show a rheumatologist that you have Sjogrens..mostly rheumy's diagnose and treat and one of those who 'gets it' as far as Sjogrens can be as difficult to find as a good thyroid doc).

If you have Hashi's or your thyroid is pretty well 'burned out' then all the iodine in the WORLD won't help. The thyroid uses iodine (not much either...less than 1/9 teaspoon of iodized salt a day) to MAKE thyroid hormones. But if your thyroid is 'diseased' than it can't make any anyway...so iodine is a moot point. Kind of like putting gas in a car that has NO transmission and expecting to go somewhere.

Read. Study. Learn. Research. Thyroid Mistreatment, Hypothyroid Scandals, and Thyroid Treatment Problems | Stop The Thyroid Madness is a good place to start.

Pam
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Old 02-08-2010, 10:29 AM   #44
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Armystolehim04: My optometrist told me his wife goes to Dr Chapdelaine. I had seen his website before that. I made sure to tell him and my opthamologist that I have thyroid antibodies and am not on any meds. My eye pressure is up so guess I am glaucoma suspect. I am very nearsighted. I have weak spots in my eye-they did some kind of eye picture. I have cataracts forming which I know is not from thyroid. I don't have dry eyes, etc. It is interesting Nonstickpam that you were misdiagnosed with glaucoma. I have no loss of peripheral vision. Right now, I don't think I have too many thyroid symptons. I used be tired for years but didn't have any blood tests until two years ago and that was when I was seeing a dr for parathyroids. I do have anxiety but have had that since I was a child. At times, it gets worse. So now I worry do I need to be on thyroid meds to keep my antibodies from going higher or worry about having heart problems, etc. I don't have much eyebrows but I plucked them years ago thin. I have always had thin hair but it has gotten thinner on my head. I am in menopause, too.

For Tennessee, have you ever used Ratemds. You can get patient reviews on doctors. I have tried looking up internal medical doctors and found some good reviews. Not for thyroid but wonder if an internal med dr would be a good dr to go to for thyroid.

I will be curious to see what Dr Chapdelaine prescribes for your thyroid, Armystolehim04. Thanks for you all information.
Thank you nonstickpam, too,

Pam in TN
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Old 02-08-2010, 10:31 AM   #45
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I am not tired now. Can't sleep well at night.
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Old 02-08-2010, 05:45 PM   #46
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Armystolehim04: My optometrist told me his wife goes to Dr Chapdelaine. I had seen his website before that. I made sure to tell him and my opthamologist that I have thyroid antibodies and am not on any meds. My eye pressure is up so guess I am glaucoma suspect. I am very nearsighted. I have weak spots in my eye-they did some kind of eye picture. I have cataracts forming which I know is not from thyroid. I don't have dry eyes, etc. It is interesting Nonstickpam that you were misdiagnosed with glaucoma. I have no loss of peripheral vision. Right now, I don't think I have too many thyroid symptons. I used be tired for years but didn't have any blood tests until two years ago and that was when I was seeing a dr for parathyroids. I do have anxiety but have had that since I was a child. At times, it gets worse. So now I worry do I need to be on thyroid meds to keep my antibodies from going higher or worry about having heart problems, etc. I don't have much eyebrows but I plucked them years ago thin. I have always had thin hair but it has gotten thinner on my head. I am in menopause, too.

For Tennessee, have you ever used Ratemds. You can get patient reviews on doctors. I have tried looking up internal medical doctors and found some good reviews. Not for thyroid but wonder if an internal med dr would be a good dr to go to for thyroid.

I will be curious to see what Dr Chapdelaine prescribes for your thyroid, Armystolehim04. Thanks for you all information.
Thank you nonstickpam, too,

Pam in TN
Oh, as soon as the antibodies kill off the entire thyroid (which can happen in months, or years, no one is the same) the antibodies 'go away'. Leaving a thyroid that doesn't work at all.

I had peripheral vision right up till I was finally able to get a doctor to treat me with both T4 AND T3 in correct amounts. I'm probably older than you though...and as TED goes on...it gets worse without treatment. Same for hypothyroidism.

Pam
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Old 02-11-2010, 01:37 PM   #47
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Thanks Pam for the information. I am going to be 56 this month. I am still looking for any other doctors anyone can suggest here in Nashville area. I had a list of a few names but can't seem to find it. I was going to post them but will if I find it to see anyone has heard of any of them. I got a kick out of your post on hey, can you call Tim, Faith, Boots to see what docs they go to. Yeah, there are a lot of country music entertainers living here and you'd think someone would have a thyroid problem. You don't hear of it. Except for Oprah whose dad does live in Nashville. I don't think she goes to a dr here. Thanks again!
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Old 02-11-2010, 03:39 PM   #48
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Oh, don't get me started on Oprah!!! LOL (one of these days when you're a little bored go to Thyroid Disease Information - Hypothyroidism - Hyperthyroidism - Thyroid Cancer - Autoimmune Disease - Hashimoto's - Graves' - Goiter - Nodules and put in search: 'Letters to Oprah' and you'll get an eyefull, ha ha.

Oh, we're about the same age! Cool..I'll be 56 in October.

Pam
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Old 02-11-2010, 10:06 PM   #49
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Armystolehim04: My optometrist told me his wife goes to Dr Chapdelaine. I had seen his website before that. I made sure to tell him and my opthamologist that I have thyroid antibodies and am not on any meds. My eye pressure is up so guess I am glaucoma suspect. I am very nearsighted. I have weak spots in my eye-they did some kind of eye picture. I have cataracts forming which I know is not from thyroid. I don't have dry eyes, etc. It is interesting Nonstickpam that you were misdiagnosed with glaucoma. I have no loss of peripheral vision. Right now, I don't think I have too many thyroid symptons. I used be tired for years but didn't have any blood tests until two years ago and that was when I was seeing a dr for parathyroids. I do have anxiety but have had that since I was a child. At times, it gets worse. So now I worry do I need to be on thyroid meds to keep my antibodies from going higher or worry about having heart problems, etc. I don't have much eyebrows but I plucked them years ago thin. I have always had thin hair but it has gotten thinner on my head. I am in menopause, too.

For Tennessee, have you ever used Ratemds. You can get patient reviews on doctors. I have tried looking up internal medical doctors and found some good reviews. Not for thyroid but wonder if an internal med dr would be a good dr to go to for thyroid.

I will be curious to see what Dr Chapdelaine prescribes for your thyroid, Armystolehim04. Thanks for you all information.
Thank you nonstickpam, too,

Pam in TN
I have ridiculous amounts of symptoms that are thyroid related.The one that is bothering me is the memory loss it has become ridiculous.I work as a contact rep and i can't remember on almost all my calls if i had asked the question i just said.Its getting so bad that i almost cried today. It gets really frustrating.My boss has been noticing it. I am always tired.As far as my eyes i lose vision at a ridiculous rate needing new glasses about every 3 months. They diagnosed me with glaucoma too but no one in my family has glaucoma but on my dad's side of the family all of the women have thyroid problems.I am 20 years old as well so that makes glaucoma unlikely.My upper eyelids are puffy which is NOT a glaucoma symptom its a TED symptom.I am also nearsighted.My hair falls out a lot i have to vacuum every time i do my hair.
I have anxiety as well but it comes and goes.Sometimes i can handle situations other times i can't.
I have an extremely hard time sleeping at night.When i lived in GA i went to a osteopath and he advised i take chelated magnesium it works like a charm.Plus i have bowel issues as well so it keeps things moving.Melatonin,Unisom all those do not work for me but Magnesium works very well and its cheap too!Also meant to say he was the first DR to actually physically examine my thyroid.He asked if anyone had ever done an ultra sound and to me it sounded like he was extremely surprised.Which leads me to believe it is atleast enlarged.I get throat pain and raspy voice at times and snore. He seemed like he really wanted to start a treatment plan but can't start until the labs which is understandable.I just want a Dr who will either kill off my thyroid or do the "block & replace" method.


BTW really sorry guys if i repeat myself like i said memory problem

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Old 02-12-2010, 08:42 AM   #50
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And if magnesium works well for sleep than you most likely need progesterone levels taken. (cuz when progesterone goes down, thyroid takes a dive...trying to 'make up for it'.)

Pam
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Old 02-18-2010, 08:39 AM   #51
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Pam are there any books out there you recommend to read that would help someone who has hashimoto's?
I have been trying to google this everywhere can't find much so figure I'd ask you.Is it true that people with a thyroid disorder shouldn't eat VLC because it won't help with weightloss and that they won't feel well?

Thanks
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Old 02-18-2010, 09:46 AM   #52
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Dr. Broda Barnes wrote a lot of books and he's the one who did the studies on hypothyroid patients and VLC and Very low carb. So, search for his books. One of my favorites is 'The Thyroid Solution' by Dr. Ridha Arem (but here's the 'catch'...Dr. Arem wrote a great book, but doesn't 'go by' his own rules...from what I hear nowadays...that's not surprising though). That book explains a lot though and 'how' a person with hypothyroidism should be treated.

Pam
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Old 02-18-2010, 12:46 PM   #53
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nonstickpam: I saw Oprah show the day she said she was cured of her thyroid disease. I do believe she had to come back later to correct that. I will go read those letters. Thanks!

Armystolehim: Are you on any of the glaucoma eye drops? My eye pressures were high normal. If they go a few points higher, then it will be time for eye drops. When will you be hearing about your lab results from Dr. Chapdelaine?

Of course, I can not find the list where I had other doctor names here. These are a few on top thyroid dr list in Nashville, Area. If anyone has heard of them, etc?

Tennessee Top Doctors -- Best Thyroid Doctors in the World as Nominated by Patients, from Mary Shomon
Dr Chapdelaine in Brentwood (We already know about him)
Dr Robert Owen in Franklin - He prescribes Armour
Dr. Allan Redash in Gallatin- Also armour
Dr Chaffin in Hendersonville
Dr Raymond Fuller in Hendersonville
Dr Julie Hendrix in Nashville
Dr Lee Parks in Nashville (Vanderbilt. I see another endo here who does not test FT3. I would not know if he is like her but he got a good review)
Dr David Forbes in Nashville
Dr Thomas Patten in Nashville- Armour
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Old 02-18-2010, 08:40 PM   #54
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Armystolehim: Are you on any of the glaucoma eye drops? My eye pressures were high normal. If they go a few points higher, then it will be time for eye drops. When will you be hearing about your lab results from Dr. Chapdelaine?
I am suppose to use glaucoma drops but they make my eyes hurt make me pass out and make me overall feel like crap.To top it off i still lose the same amount of vision.I stopped using them.And i am suppose to be hearing about the stool & urine in about a wk and i have been slacking because i haven't gotten my blood drawn yet.I am going tomorrow.I have been working overtime at work so i am exhausted and need all the rest i can get!

Pam i don't know if this is a gluten problem or thyroid but i noticed my front teeth seem scratched out of nowhere or like they are wasting away.Does this have anything to do with calcium malabsorbtion?

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Old 02-23-2010, 09:00 AM   #55
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Armystolehim04: There is a glaucoma specialist at Vanderbilt Eye Institute.
Dr. Rachel Kuchtey. I have heard she is very good but you have a long wait in the waiting room before your appointment.
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Old 02-23-2010, 07:40 PM   #56
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I did email my doctor and he gave me the number of Dr.Cynthia Payne.I made with an appointment with her that is March 6th i will tell you how it goes.If this Dr does not work out i will try that doctor at Vanderbilt.So you do think your eye problem is glaucoma?I am pretty sure mine isn't one of the main things is i get eye pain which doesn't happen in the type of glaucoma i was diagnosed with.
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Old 03-01-2010, 12:28 PM   #57
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I am glaucoma suspect. My eye pressures are high normal range. I think anything over 21, they start you on eye drops. I don't have glaucoma yet.
I have weak spots on my eye when dr did this one kind of picture. I was going every 3 mos to the optometrist to check. Now he says come every 6 mos. I saw the opthamalogist in April of last year so have to see him this April.

Does Dr Chapdelaine do bloodwork at his office or do you have to go elsewhere for it?
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Old 03-01-2010, 07:50 PM   #58
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You have to go elsewhere and he sends off for a lot of labs.
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Old 03-03-2010, 12:22 PM   #59
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Oh, as soon as the antibodies kill off the entire thyroid (which can happen in months, or years, no one is the same) the antibodies 'go away'. Leaving a thyroid that doesn't work at all.

I had peripheral vision right up till I was finally able to get a doctor to treat me with both T4 AND T3 in correct amounts. I'm probably older than you though...and as TED goes on...it gets worse without treatment. Same for hypothyroidism.

Pam
Do you mean you got your peripheral vision back after being treated with both T4 and T3? I have my yearly opthamalogist appt next month. I want to ask him about thyroid and if that would have anything to do with eye pressure going up? Did you eye pressure go up?
Thank you!
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Old 03-03-2010, 12:28 PM   #60
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Join Date: Mar 2009
Location: Hermitage, TN
Posts: 24
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Quote:
Originally Posted by Armystolehim04 View Post
You have to go elsewhere and he sends off for a lot of labs.
Thank you for info on Dr Chapdelaine. I have to decide soon what dr to go to as my yearly appt I was to make with my present endo is in April. I sometimes think since I had parathyroid surgery with the surgeon there that I should go back one more time to make sure calcium level is okay. My surgeon has now left.

Did your eye pressure go up? Why would you be put on eye drops? Sorry for so many questions. I hope you find out more with the eye dr you are going to go to.

Were you asking nonstickpam about your teeth being scratched? My name is Pam, too. I don't know about that.
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