interstital cystytis

JoLi · 02-08-2014, 07:18 PM

any one have experience with this?

Butternut · 02-08-2014, 07:53 PM

The only thing that helped me was an old anti-ulcer drug called Misoprostol.
It increases the mucus lining so that the bladder could try to heal itself.
I only take it now when I feel discomfort again. It can cause miscarriage, but I am
beyond childbearing years.
Tomato sauce bothers me the most or way too much caffeine.

Grammy G · 02-08-2014, 11:23 PM

I have a friend who has suffered with IC for years and years before it was diagnosed. She has finally found help through this doctor:

ICAMA | Interstitial Cystitis Alternative Medicine Association

Butternut · 02-18-2014, 12:25 AM

Lots of good water!

Karerose · 02-18-2014, 02:53 PM

My friend has that and it is really hard to go out to eat with her. She has so many things she can't eat. She also has to often ask them to cook her item in a separate pan rather than on the grill that can have cross-contamination. She can't have pepper and some many things are automatically salted and peppered before cooking. She slowly adds foods in to her diet to see if they bother her - I remembered her doing that with some varieties of cheese. I'm not sure if her doctor gave her a list of foods to be careful of, or she just figured it out by trial and error.

Bhambabe · 02-19-2014, 12:24 AM

I have it and in remission , it felt like I was dying very painful many months of special diets , meds , lots of meditation and prayers , months of painful Elmiron ints , which did finely help, tried to take ELMIRON orally for about a month it just made me too ill .

I still try to watch what I am eating and drinking and stress is a big factor with I.C. DIET AND STRESS if I can help just ask . Oh your PH is so important I drank and still drink ESSENTIA WATER , a yeast and candidia is a big factor for a lot of people . I wish you the best , your in for a lot of work my

to you I wish you the best .

Jane

cfine · 02-27-2014, 05:52 AM

I have had IC for 12 years. A LC diet helps immensely. If I eat carbage I start hurting and burning. I was off meds for several years but discovered I do better on the meds. I don't take them as often as prescribed because I don't need to. I take at night: Elmiron, neurontin, and hydroxizine. I still have flare ups in the spring and summer usually.

02-08-2014, 07:18 PM	#1
JoLi Senior LCF Member Join Date: Nov 2004 Location: Central Texas Posts: 459 Gallery: JoLi Stats: 196/191.5/160 WOE: JUDDD Start Date: 8/19/14	interstital cystytis any one have experience with this? __________________ .

02-08-2014, 07:53 PM	#2
Butternut Senior LCF Member Join Date: Jun 2002 Location: Indiana Posts: 140 Gallery: Butternut Stats: FAT WOE: No Flour, No Sugar Start Date: I have been very bad....	The only thing that helped me was an old anti-ulcer drug called Misoprostol. It increases the mucus lining so that the bladder could try to heal itself. I only take it now when I feel discomfort again. It can cause miscarriage, but I am beyond childbearing years. Tomato sauce bothers me the most or way too much caffeine. Last edited by Butternut; 02-08-2014 at 07:59 PM..

02-27-2014, 05:52 AM	#7
cfine Very Gabby LCF Member!!! Join Date: Apr 2012 Location: Tennessee Posts: 3,536 Gallery: cfine Stats: 276/212/199 WOE: NK Start Date: April 2012	I have had IC for 12 years. A LC diet helps immensely. If I eat carbage I start hurting and burning. I was off meds for several years but discovered I do better on the meds. I don't take them as often as prescribed because I don't need to. I take at night: Elmiron, neurontin, and hydroxizine. I still have flare ups in the spring and summer usually. __________________ Do or don't do, there is no try-Yoda Dieting is hard;being fat is hard; choose your hard.

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02-08-2014, 11:23 PM	#3
Grammy G Senior LCF Member Join Date: Jan 2004 Posts: 332 Gallery: Grammy G Stats: 235/185/150 WOE: Paleo	I have a friend who has suffered with IC for years and years before it was diagnosed. She has finally found help through this doctor: ICAMA \| Interstitial Cystitis Alternative Medicine Association

02-18-2014, 12:25 AM	#4
Butternut Senior LCF Member Join Date: Jun 2002 Location: Indiana Posts: 140 Gallery: Butternut Stats: FAT WOE: No Flour, No Sugar Start Date: I have been very bad....	Lots of good water!

02-18-2014, 02:53 PM	#5
Karerose Major LCF Poster! Join Date: Mar 2004 Location: CT Posts: 1,553 Gallery: Karerose Start Date: late 2003	My friend has that and it is really hard to go out to eat with her. She has so many things she can't eat. She also has to often ask them to cook her item in a separate pan rather than on the grill that can have cross-contamination. She can't have pepper and some many things are automatically salted and peppered before cooking. She slowly adds foods in to her diet to see if they bother her - I remembered her doing that with some varieties of cheese. I'm not sure if her doctor gave her a list of foods to be careful of, or she just figured it out by trial and error.

02-19-2014, 12:24 AM	#6
Bhambabe Senior LCF Member Join Date: Aug 2006 Location: Seattle, Wa Posts: 267 Gallery: Bhambabe Stats: R4P3 91 pounds released WOE: Dr. Simeon's Protocol HHCG Start Date: Started 7/21/09	I have it and in remission , it felt like I was dying very painful many months of special diets , meds , lots of meditation and prayers , months of painful Elmiron ints , which did finely help, tried to take ELMIRON orally for about a month it just made me too ill . I still try to watch what I am eating and drinking and stress is a big factor with I.C. DIET AND STRESS if I can help just ask . Oh your PH is so important I drank and still drink ESSENTIA WATER , a yeast and candidia is a big factor for a lot of people . I wish you the best , your in for a lot of work my to you I wish you the best . Jane