I need help...long.

[Screamer]

DGD #3 has not eaten any food or had anything to drink since Thursday. DDIL took DGD to Dr. on Monday. Dr sends DGD to hosp for a blood test. Hosp calls April within 1 hour to get her back to emergency room because her blood sugars is 40 and should be 70. Admits to hosp with IV with glucose water to up sugars, hoping that sugars coming back up will get her appetite back. No go. Send DGD to x-ray to see if there is a blockage. Negative. No temp. Ears, throat, sinus, etc clear and free from infection. All blood test come back normal. DGD can't even stand to look at food. They've tried M&M's. Chocolate. Pancakes with syrup. MRI was scheduled and results are normal. They were looking for tumor or something neurological. April asked Dr to check esophagus, (because DGS #1 had so much trouble) while she was out for the MRI. Negative again.

I suggested to DS to have a nurse come in with "medicine" like just plain ole maple syrup. Maybe that will give her a taste for food again.

She is fiesty. Got some fight in her. Wants Momma and nothing else. Doesn’t scream though. We thought: Infected tooth, blockage some where, maybe she got a taste of something spoiled and that turns her off to any food, really so many things we were just brainstorming to figure this out.

No fever, so that eliminates any infection. With the IV fluids blood sugars are normal. X-Rays show no blockage: upper or lower. Blood pressure is normal. We are waiting for blood cultures that should be ready for this morning.

Only one thing that we have no explanation for. There are times that she is the perfect healthy child. Talks fine and we can understand everything; laughs with nurses and goes to the playroom and has a ball. At the snap of a finger she is the complete opposite. Listless, can't talk, covers her eyes, won't play and just sits on Momma with her head in her blanket.

Waiting now for the blood results. Day 7 of no food. Not even the almighty M&M's.

Last night she was transported to Children’s in Chicago. Examined by Dr’s there.
We have a theory!!

She tested for too many keotones in her urine. They gave her a superblast of sugar in the IV last night. Then they took her off the IV to see if the Keotones subside making her at least thirsty.

DDIL and DS are exhausted. It's more painful to not know what is wrong. Just find something give it a dose of whatever and go home. It'd be wonderful if it would be that easy.

Any suggestions gladly accepted. Has anyone ever heard of such a thing? We are looking for the most miniscule of ideas from any where. I’ve exhausted WebMD

*Slight sigh of relief but not really*

[auntiem59]

no suggestions, but many of these.

[LuckyKitty]

Same here, lots of

How old is DGD?

[RedheadNJ]

Sounds like depression. My niece is 4 and has been diagnosed with pretty severe bipolar. She get's like this when she's drepressed.

to you!

[rsrmjs]

I can't give any medical advice, only

[CarolinaRocker]

Maybe its a psychological thing..... poor thing. I hope they find out something soon. 7 days is a long time.

[Screamer]

Looking into the phyc thing also. No stone left unturned.

Thank you for all your hugs and prayers.

Mi

[MissBoop]

Wouldn't the ketone problem be caused by her not eating or drinking? More of a symptom, rather than a cause.

[Sis]

I know it sounds strange, but maybe a sensory problem? Ds was diagnosed with sensory integration disorder, and while 95% of the time he acts like a very normal child, when he goes into his sensory preservation mode he is so unlike himself. Maybe she tasted something, burned her mouth or throat on something and now is in sensory preservation mode and won't try again.

[Screamer]

Originally Posted by MissBoop

Wouldn't the ketone problem be caused by her not eating or drinking? More of a symptom, rather than a cause.

Great thought, MB, Sending this to DS as we speak.



Sis: Great suggestion also. Thank you. I thought of something similar. Say if she get a bad tasting piece of bread for instance. I wouldn't want anything to eat either thinking it may taste like that icky bread.

Going on the list too.

Mi *feeling much better with massive suggestions.*
Thank you all for even coming in to read.

[MissBoop]

for her! Please keep us posted on how she's doing.

[MissBoop]

Originally Posted by MissBoop

Wouldn't the ketone problem be caused by her not eating or drinking? More of a symptom, rather than a cause.

Wanted to also add, we that low carb know being in ketosis makes us lose our appetite, so the longer she's in ketosis, she probably won't want to eat. The Dr's shouldn't only focus on her ketone level (although it does need to be treated)the real question should be what caused her to get that way in the first place.

[Screamer]

Originally Posted by MissBoop

Wanted to also add, we that low carb know being in ketosis makes us lose our appetite, so the longer she's in ketosis, she probably won't want to eat. The Dr's shouldn't only focus on her ketone level (although it does need to be treated)the real question should be what caused her to get that way in the first place.

Boop, I'm calling Bret right now with this. He will understand this.



Mi

[MissBoop]

Originally Posted by Screamer

Boop, I'm calling Bret right now with this. He will understand this.



Mi

I hope they find out what's going on pretty quick

[mis-informed]

Originally Posted by MissBoop

I hope they find out what's going on pretty quick

Me too. Mi, if you can keep us posted, please do. I'm praying for the little one.

[Screamer]

I just spoke to April for over 30 minutes. We discussed every one of the suggestions is great detail She now has the list so she can discuss it with the Dr's who are working on DGD.

Thank you so much for all the suggestions comments and words of encouragment. The mean so much to us at this time.

Mi

[Midnight Blue]

Me too. I don't have any other suggestions -- everyone has already covered the things I thought of, but plenty of and for all of you.

[Drew]

(((HUGS))) and


The only things I can think of:

- Drainage to the stomach is a major appetite suppressant!!! My nephew won’t eat when his allergies are up. (although you would think the throat would be red.)

- Possible a headache could cause this??

- Is everything coming out ok?? Constipation also makes you not hungry.

- A virus?

I hope they figure it out soon!!!

[Screamer]

Originally Posted by Drew

(((HUGS))) and


The only things I can think of:

- Drainage to the stomach is a major appetite suppressant!!! My nephew won’t eat when his allergies are up. (although you would think the throat would be red.)

- Possible a headache could cause this??

- Is everything coming out ok?? Constipation also makes you not hungry.

- A virus?

I hope they figure it out soon!!!

She dosen't complain of any pain - anywhere. We know that she knows what pain is cuz she said last night her IV was burning.. They fixed it and she was better.

They cheched for blockage via x-ray. Nadda

They are checking for allergies. But no red sore throat.

Virus? They checked for blood cultures on this. and no fever.

Thanks Drew. someone will hit the nail of the head.

Thanks Midnight Blue...

[Nady]

I've had smells/odors turn off my appetite~ like a new air freshener or some perfume I've come in contact with while shopping~ sometimes it's difficult to get the smell out of my nose long after I'm not around it anymore.
~~~N

[Caro]

i was thinking headache..but you said they did an mri and it was clear..

many hugs!!! i hope they find relief quick!

[Screamer]

yep MRI is fine. I believe another is scheduled at Children's.

Thanks, Caro.

Mi

[London]

[averyjenn]

Bless her little heart. The thing that struck me was her being one way and then snapping into another state. Mind you I know nothing but the first thing that popped into my head was autism. I really hesitate to say even that since I seriously doubt that's it but it's the first thing that popped into my head and thought I'd just mention it anyway since you asked us to!

Please let us know what's going on with her.

[Queen Mab]

[Jai]

Maybe migraines? My little sister started getting migraines at age 7 (though now she says she always had them but just thought it was normal/couldn't verbalize what was happening) and would lose her appetite and be listless and cover her eyes ect. When she didn't have a headache she was normal. She also has had MRIs ect and all have always been normal so that isn't really a diagnosis of migraines or not. When she was 15 they tried a new medication and she is almost migraine free now. She still gets headaches on occasion but nothing so diabling as she used to. She'll probably need the meds the rest of her life though. (ETA: They have never found a cause for this. Maybe hormonal, maybe a vascular issue, maybe a slight form of epilepsy... they just don't know)

Also have they checked/considered reflux? It could be a great number of foods are causing her to have reflux pain/symptoms. I don't know her age, but she may be too young to determine it is only certain foods and is just associating pain with eating.

Hope they find a cause and can fix it asap. Hugs and prayers for all!

[hollyoak]

New Teeth comming through? Extreme, I know but one of my sons had a similar experience everytime he cut new teeth. I hope the problem is discovered and treated ASAP

[Everal]

How old is the child?

[heidihoopi]

How old is she?