I need help...long. - Page 11

CaroleKI61 · 02-04-2007, 07:11 AM

Dear, I'm sad that you've been so distressed-
Watching your wee darlin' facing each test...
I'm glad you chose to come here and share-
Giving us the chance to show that we care.

There was a pivitol moment that triggered this ordeal
Something imaginary or something very-very REAL!
Wading through this has been a heart wrenching task.
"God, please make her all better!" humbly I ask!

Love Carole

Screamer · 02-05-2007, 07:08 AM

Quote:

Originally Posted by CaroleKI61

Dear, I'm sad that you've been so distressed-
Watching your wee darlin' facing each test...
I'm glad you chose to come here and share-
Giving us the chance to show that we care.

There was a pivitol moment that triggered this ordeal
Something imaginary or something very-very REAL!
Wading through this has been a heart wrenching task.
"God, please make her all better!" humbly I ask!

Love Carole

Screamer · 02-05-2007, 07:29 AM

Things are the same this weekend. I'm so sorry I have no other news to report now. Only other thing to pray for right now is time. Time is critical for Bret and April. The insurance runs out on Thursday. Bret's insurance only covers family hosp coverage for 30 days a year.

*sigh* Mi

Screamer · 02-05-2007, 11:14 AM

Sunday update: K had Dorito's dipped in BBQ sauce. It's not a cure yet but at least she is asking for the food, no matter how quirky, not having the food forced on her. A stayed at home Sat and Sunday because DGS was getting sick and rundown. DS went both days himself. K and Daddy sat down to a meal of McD's. She sat on the couch in the room instead of at the table. This is what the Dr's are working on now. Her re-intergration to the family table.

She needs another 30 days with the experts. Her time there is short. I truly wish we could have come up with an answer.

Mi *still praying

gina425 · 02-05-2007, 06:06 PM

couldnt you do a fundraiser to help with medical expences if ins, runs out?

Screamer · 02-06-2007, 06:44 AM

Quote:

Originally Posted by gina425

couldnt you do a fundraiser to help with medical expences if ins, runs out?

We are looking into that now. I will be looking into foundations that help in these kind of situations.

Oh... she got a bite of chicken McNuggett this weekend. It was her favorite besides pancakes with syrup.

Thanks Gina.

Mi

CarbyCurse · 02-06-2007, 06:56 AM

I'm really, REALLY, reaching, but have they considered the possibility of a mild form of autism? I only ask because I know some children affected by autism who have very rigid food notions and often go on "strike" for no reason the parents can fathom. By most outward appearance, they seem like "normal" (whatever NORMAL may be

) kids, highly intelligent even, but they can have some sensory integration problems that defy logic at times. One girl was refusing to get dressed. She had one outfit she would wear, period. this went on for over a month, until they figured out the dress they had put on her had a scratchy tag in the neck opening. To her, I guess it seemed that she'd rather just stay in the clothes she KNEW were comfy rather than take the chance on getting irritated. I've been told that the scratchy tag probably felt like someone dragging their nails across your neck to you and me.

In any case, I'm glad she's making progress!

Screamer · 02-06-2007, 07:19 AM

While she is at Children's Memorial Hosp in chicago, she has had every test known to the physc staff and I wouldn't doubt they made up some new stuff to test her for/with. 30 staff doctors on her case have proclaimed her healthy, both physically and mentally. She is only three and they are amazed she can read. They are the typical preschool words, cat, dog, mommy, daddy, red, green, etc, but she can read them on demand. this is a game to her.

A added my name to the list of words she instantly recognized - Mimi - and DGD read it as Mommy. So we believe she can figure words out not just memorizing them because seeing the word Mimi, she attempted to figure out the m's but the i's confused her.

She writes these letters very well also, for a 3 yo. Her favoirte is the letter H because she can make a ladder out of it.

Mi

Yellobrix · 02-06-2007, 10:12 AM

Like so many people, I regularly check to see how this little sweetie is doing -- if prayers count, she's getting quite a few, I'm certain!

I'm glad she's eating (no matter what) and will continue to hope and pray for answers and for her to return home healthy, and with the support she needs to keep getting better!

rootbeer · 02-06-2007, 12:49 PM

Quote:

Originally Posted by gina425

couldnt you do a fundraiser to help with medical expences if ins, runs out?

Not a bad idea.

gina425 · 02-06-2007, 01:22 PM

I run all the fundraisers in dd school. Dont do Yankee Candle! They are so hared to work with. They blow off orders and run out of stuff.

Good LUck!

1Life2Live · 02-07-2007, 02:04 AM

I just found this thread and I am SO HAPPY that your little angle is doing better. I will keep you all in my thoughts. Sending tons of hugs your way Mimi

kristinaInWa2003 · 02-07-2007, 09:29 AM

I looked for days for this thread, I knew I had seen it somewhere..I just found it and read the updates.

I'm crying tears of joy for you all! What a relief to have her eating again!

Screamer · 02-08-2007, 10:42 AM

Just wanted to let everyone know that Kaelin got her feeding tube out before she went to bed last night. Bret and I have a meeting with her doctors tomorrow to find out exactly how well things are going for her.

Bret & April

So this is hopefully the beginning of the end. At this meeting DS hopes to hear what, if any, reasons there were for this unusual behavior. What still needs to be done and finally when she can come back home.

Makes me realise how percious life is. Makes me so thankful for all the people who never gave up. Makes me pray for the people who did.

Mostly makes me very thankful for the almost 10,000 hits on this thread from wonderful people who don't even know us.

Mi

1Life2Live · 02-08-2007, 10:44 AM

That is wonderful news!!!!!!

Bless this little Angel and her family!!!!!

TheresaD8 · 02-08-2007, 11:30 AM

YEAH!!! So, glad to hear the feeding tube is out!

Thank you for keeping us updated. I'm so glad she is getting better!

Screamer · 02-09-2007, 01:43 PM

Quick but very happy update. B and A are having the meeting with the Dr's today as we speak. I'm sitting on pins and needles and on the edge of my seat.

Mi *very way happy at this moment.

heidihoopi · 02-09-2007, 08:04 PM

Can't wait to hear how the meeting went, hoping she will get to come home soon.

Is she eating more variety now? And drinking well?

Hugs for a greaaaat and caring Grammie.

Screamer · 02-11-2007, 05:02 AM

Hi Heidi, I'm going to see her today. I hope we get to bring her home sooon. It will be a wonderful day if she sits and eats her lunch with me.

I hope I have something positive to update when I come home tonight.

Mi

rootbeer · 02-11-2007, 06:19 AM

Hi Mi...hope she gets to go home.

CarbyCurse · 02-11-2007, 01:21 PM

*fingers crossed*

Heab · 02-11-2007, 01:28 PM

I hope she is coming home soon!!

Miz Grits · 02-11-2007, 03:54 PM

Mi, if anybody's got the magic, then I'm sure it's you.

Check in and let us know how today's visit went!

OldSchoolGirl · 02-11-2007, 04:12 PM

Eagerly awaiting the news.....

(and craving Goldfish crackers.)

Screamer · 02-11-2007, 07:39 PM

Saturday I planned to go to visit K in the Hosp. I got this instead:

From April's Sunday E-mail Update:

We wanted to let everyone know that after 31 nights in the hospital -- Kaelin came home Friday!! After much time and patience, Kaelin finally started eating enough to come home. She’s only taking in a limited variety of foods (some Fruit Loops, an occasional nugget & fries, suckers, apple juice and milk, some "prior" foods, and of course some candy). Her doctors say it can take as long as 3 months for her to get “back on track” with her eating habits and the number of foods she’s willing to eat. She will also have to go back to her doctor at least once a week for awhile just to make sure we stay on track and that things are moving along. We still have a long way to go, but we are just so elated to have her back home again.

We also want to thank those who sent cards, gifts, words of support, prayers and kindness during this very difficult time. It is very comforting to know that there are many friends and strangers alike willing to pray for the well being of another. And for that, we are very grateful. Thanks to all who made this time easier for us.

Bret and April

So...

The nightmare is over. There are many days of adjusting to come for Kaelin, DS, DDIL and me. No one is sure why this happened, what caused it and what is to come...

Continued therapy is in order. April has her hands full but this we can deal with.

To all my friends here, thank you from the bottom of our hearts, for all you have done for me.

In 52 years of walking through life nothing was as wonderful and heart rending as watching my sweet grandaughter, Kaelin, eating a handful of M&M's.

Thank you .

Very sincerely,
Mimi

CarbyCurse · 02-11-2007, 07:45 PM

*Hoists a toast of Pediasure*

WOOOOOOOT!

kristinaInWa2003 · 02-11-2007, 07:48 PM

Quote:

Originally Posted by Screamer

Saturday I planned to go to visit K in the Hosp. I got this instead:
The nightmare is over. There are many days of adjusting to come for Kaelin, DS, DDIL and me. No one is sure why this happened, what caused it and what is to come...

OldSchoolGirl · 02-11-2007, 08:02 PM

Mimi, I'm so happy for you!!!! I hope and pray that this never happens again and your grandbaby regains her appetite with gusto! Love ya!!!

Island of Bluebells · 02-11-2007, 09:27 PM

It's great to hear this wonderful news!

Thank the Lord.

Sharon1 · 02-11-2007, 09:45 PM

Wonderful news. I hope she continues to do well.

02-05-2007, 11:14 AM	#304
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	Sunday update: K had Dorito's dipped in BBQ sauce. It's not a cure yet but at least she is asking for the food, no matter how quirky, not having the food forced on her. A stayed at home Sat and Sunday because DGS was getting sick and rundown. DS went both days himself. K and Daddy sat down to a meal of McD's. She sat on the couch in the room instead of at the table. This is what the Dr's are working on now. Her re-intergration to the family table. She needs another 30 days with the experts. Her time there is short. I truly wish we could have come up with an answer. Mi still praying __________________ . Last edited by Screamer : 02-05-2007 at 11:21 AM.*

02-08-2007, 10:42 AM	#314
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	From DS and DDIL Just wanted to let everyone know that Kaelin got her feeding tube out before she went to bed last night. Bret and I have a meeting with her doctors tomorrow to find out exactly how well things are going for her. Bret & April So this is hopefully the beginning of the end. At this meeting DS hopes to hear what, if any, reasons there were for this unusual behavior. What still needs to be done and finally when she can come back home. Makes me realise how percious life is. Makes me so thankful for all the people who never gave up. Makes me pray for the people who did. Mostly makes me very thankful for the almost 10,000 hits on this thread from wonderful people who don't even know us. Mi

02-11-2007, 07:39 PM	#325
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	The best news ever... Saturday I planned to go to visit K in the Hosp. I got this instead: From April's Sunday E-mail Update: We wanted to let everyone know that after 31 nights in the hospital -- Kaelin came home Friday!! After much time and patience, Kaelin finally started eating enough to come home. She’s only taking in a limited variety of foods (some Fruit Loops, an occasional nugget & fries, suckers, apple juice and milk, some "prior" foods, and of course some candy). Her doctors say it can take as long as 3 months for her to get “back on track” with her eating habits and the number of foods she’s willing to eat. She will also have to go back to her doctor at least once a week for awhile just to make sure we stay on track and that things are moving along. We still have a long way to go, but we are just so elated to have her back home again. We also want to thank those who sent cards, gifts, words of support, prayers and kindness during this very difficult time. It is very comforting to know that there are many friends and strangers alike willing to pray for the well being of another. And for that, we are very grateful. Thanks to all who made this time easier for us. Bret and April So... The nightmare is over. There are many days of adjusting to come for Kaelin, DS, DDIL and me. No one is sure why this happened, what caused it and what is to come... Continued therapy is in order. April has her hands full but this we can deal with. To all my friends here, thank you from the bottom of our hearts, for all you have done for me. In 52 years of walking through life nothing was as wonderful and heart rending as watching my sweet grandaughter, Kaelin, eating a handful of M&M's. Thank you . Very sincerely, Mimi

02-04-2007, 07:11 AM	#301
CaroleKI61 Way too much time on my hands! Join Date: Feb 2003 Location: Toronto, Ontario, Canada Posts: 14,719 Blog Entries: 1 Gallery: CaroleKI61 Stats: 414/now 280 /goal weight 199 WOE: Dr. Atkins- I love you! Start Date: February 14 2003	Dear, I'm sad that you've been so distressed- Watching your wee darlin' facing each test... I'm glad you chose to come here and share- Giving us the chance to show that we care. There was a pivitol moment that triggered this ordeal Something imaginary or something very-very REAL! Wading through this has been a heart wrenching task. "God, please make her all better!" humbly I ask! Love Carole

02-05-2007, 07:29 AM	#303
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	Things are the same this weekend. I'm so sorry I have no other news to report now. Only other thing to pray for right now is time. Time is critical for Bret and April. The insurance runs out on Thursday. Bret's insurance only covers family hosp coverage for 30 days a year. sigh Mi

02-05-2007, 06:06 PM	#305
gina425 Senior LCF Member Join Date: Mar 2004 Location: Rhode Island usa Posts: 730 Gallery: gina425 Stats: 203/203/155 WOE: scarsdale now Start Date: 2/12/07	couldnt you do a fundraiser to help with medical expences if ins, runs out?

02-06-2007, 06:56 AM	#307
CarbyCurse Way too much time on my hands! Join Date: Apr 2005 Location: Midwest Posts: 22,731 Gallery: CarbyCurse Stats: Big/smaller/bigger again WOE: Atkins	I'm really, REALLY, reaching, but have they considered the possibility of a mild form of autism? I only ask because I know some children affected by autism who have very rigid food notions and often go on "strike" for no reason the parents can fathom. By most outward appearance, they seem like "normal" (whatever NORMAL may be ) kids, highly intelligent even, but they can have some sensory integration problems that defy logic at times. One girl was refusing to get dressed. She had one outfit she would wear, period. this went on for over a month, until they figured out the dress they had put on her had a scratchy tag in the neck opening. To her, I guess it seemed that she'd rather just stay in the clothes she KNEW were comfy rather than take the chance on getting irritated. I've been told that the scratchy tag probably felt like someone dragging their nails across your neck to you and me. In any case, I'm glad she's making progress!

02-06-2007, 07:19 AM	#308
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	While she is at Children's Memorial Hosp in chicago, she has had every test known to the physc staff and I wouldn't doubt they made up some new stuff to test her for/with. 30 staff doctors on her case have proclaimed her healthy, both physically and mentally. She is only three and they are amazed she can read. They are the typical preschool words, cat, dog, mommy, daddy, red, green, etc, but she can read them on demand. this is a game to her. A added my name to the list of words she instantly recognized - Mimi - and DGD read it as Mommy. So we believe she can figure words out not just memorizing them because seeing the word Mimi, she attempted to figure out the m's but the i's confused her. She writes these letters very well also, for a 3 yo. Her favoirte is the letter H because she can make a ladder out of it. Mi

02-06-2007, 10:12 AM	#309
Yellobrix Senior LCF Member Join Date: Feb 2006 Location: Kentucky Posts: 864 Gallery: Yellobrix Stats: 199/174/135 WOE: Atkins + CO Start Date: Over & Over... 'Til I Get It Right!	Like so many people, I regularly check to see how this little sweetie is doing -- if prayers count, she's getting quite a few, I'm certain! I'm glad she's eating (no matter what) and will continue to hope and pray for answers and for her to return home healthy, and with the support she needs to keep getting better!

02-06-2007, 01:22 PM	#311
gina425 Senior LCF Member Join Date: Mar 2004 Location: Rhode Island usa Posts: 730 Gallery: gina425 Stats: 203/203/155 WOE: scarsdale now Start Date: 2/12/07	I run all the fundraisers in dd school. Dont do Yankee Candle! They are so hared to work with. They blow off orders and run out of stuff. Good LUck!

02-07-2007, 02:04 AM	#312
1Life2Live Very Gabby LCF Member!!! Join Date: Apr 2004 Location: Puyallup, Washington Posts: 3,957 Gallery: 1Life2Live Stats: :( 306~275.8~200 WOE: WW ~ Flex ~ 35Pts Start Date: February 21, 2008	I just found this thread and I am SO HAPPY that your little angle is doing better. I will keep you all in my thoughts. Sending tons of hugs your way Mimi

02-07-2007, 09:29 AM	#313
kristinaInWa2003 Blabbermouth!!! Join Date: Nov 2003 Posts: 7,061 Gallery: kristinaInWa2003 Stats: Restarting 7-17-08 220/218/135 WOE: The Lord's Table Start Date: Originally November 2003 Restarted 7-17-08	I looked for days for this thread, I knew I had seen it somewhere..I just found it and read the updates. I'm crying tears of joy for you all! What a relief to have her eating again!

02-08-2007, 10:44 AM	#315
1Life2Live Very Gabby LCF Member!!! Join Date: Apr 2004 Location: Puyallup, Washington Posts: 3,957 Gallery: 1Life2Live Stats: :( 306~275.8~200 WOE: WW ~ Flex ~ 35Pts Start Date: February 21, 2008	That is wonderful news!!!!!! Bless this little Angel and her family!!!!!

02-08-2007, 11:30 AM	#316
TheresaD8 Senior LCF Member Join Date: Feb 2003 Location: Ohio Posts: 203 Gallery: TheresaD8	YEAH!!! So, glad to hear the feeding tube is out! Thank you for keeping us updated. I'm so glad she is getting better!

02-09-2007, 01:43 PM	#317
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	Quick but very happy update. B and A are having the meeting with the Dr's today as we speak. I'm sitting on pins and needles and on the edge of my seat. Mi *very way happy at this moment.

02-09-2007, 08:04 PM	#318
heidihoopi Big Yapper!!!! Join Date: Jun 2002 Location: Colorado Posts: 8,078 Gallery: heidihoopi	Can't wait to hear how the meeting went, hoping she will get to come home soon. Is she eating more variety now? And drinking well? Hugs for a greaaaat and caring Grammie.

02-11-2007, 05:02 AM	#319
Screamer Very Gabby LCF Member!!! Join Date: Jul 2002 Location: wishing for pink Posts: 4,068 Gallery: Screamer Stats: 168.5/158.5/135 WOE: Holding the Universe in the Palm of My Hand Start Date: 8/7/00	Hi Heidi, I'm going to see her today. I hope we get to bring her home sooon. It will be a wonderful day if she sits and eats her lunch with me. I hope I have something positive to update when I come home tonight. Mi

02-11-2007, 06:19 AM	#320
rootbeer Chimpy Nuts Join Date: Mar 2003 Location: Sitting on the Green Monster Posts: 43,330 Blog Entries: 2 Gallery: rootbeer Stats: 160/149/135 WOE: Hawt Dawgs & Cold Beah Start Date: Which time?	Hi Mi...hope she gets to go home.

02-11-2007, 01:21 PM	#321
CarbyCurse Way too much time on my hands! Join Date: Apr 2005 Location: Midwest Posts: 22,731 Gallery: CarbyCurse Stats: Big/smaller/bigger again WOE: Atkins	fingers crossed

02-11-2007, 01:28 PM	#322
Heab Way too much time on my hands! Join Date: May 2003 Location: Colorado Springs, CO Posts: 11,630 Gallery: Heab Stats: 230/212/150 WOE: IE / Atkins Start Date: January 7, 2008 restart 4/29/08 after ankle better	I hope she is coming home soon!!

02-11-2007, 03:54 PM	#323
Miz Grits Way too much time on my hands! Join Date: Feb 2004 Posts: 29,642 Gallery: Miz Grits Stats: Current goal: To make it through today WOE: Thanksgiving Diet Start Date: Tomorrow	Mi, if anybody's got the magic, then I'm sure it's you. Check in and let us know how today's visit went!

02-11-2007, 04:12 PM	#324
OldSchoolGirl Way too much time on my hands! Join Date: Jun 2002 Posts: 10,101 Gallery: OldSchoolGirl	Eagerly awaiting the news..... (and craving Goldfish crackers.)

02-11-2007, 07:45 PM	#326
CarbyCurse Way too much time on my hands! Join Date: Apr 2005 Location: Midwest Posts: 22,731 Gallery: CarbyCurse Stats: Big/smaller/bigger again WOE: Atkins	Hoists a toast of Pediasure WOOOOOOOT!

02-11-2007, 08:02 PM	#328
OldSchoolGirl Way too much time on my hands! Join Date: Jun 2002 Posts: 10,101 Gallery: OldSchoolGirl	Mimi, I'm so happy for you!!!! I hope and pray that this never happens again and your grandbaby regains her appetite with gusto! Love ya!!!

02-11-2007, 09:27 PM	#329
Island of Bluebells Very Gabby LCF Member!!! Join Date: Jan 2004 Posts: 4,897 Gallery: Island of Bluebells Stats: 150~Maintaining since 2004 WOE: Atkins Start Date: January 2003	It's great to hear this wonderful news! Thank the Lord.

02-11-2007, 09:45 PM	#330
Sharon1 MAJOR LCF POSTER! Join Date: Jan 2001 Location: Finding Myself :) Posts: 1,318 Gallery: Sharon1 Stats: 194/???/135 WOE: Low Carb Start Date: 10/25/07 (again...)	Wonderful news. I hope she continues to do well.