Nani/SheriRUth/Gentylwind Update - Page 15

Lori · 06-28-2005, 06:22 PM

I read in your log today that neither brother is a match for a bone marrow transplant. I pray that Joseph never needs one.

Please let us know whent the blood drive and bone marrow registry are set up.

Continued prayers for Joseph's continued progress.

tennhoneybee · 06-28-2005, 09:03 PM

lynnjp · 06-29-2005, 07:35 AM

Sheri

more cards were just given to me that were made by the kids from my school for Joseph should I still mail them to the hospital or would it be better to mail them to your home address? Thinking of you folks daily and often

gentylwind · 06-29-2005, 07:39 AM

Lynn, the last box was so precious! You should see his room....he just loves it! So colorful and cheerful. He stops all the time and just looks at them all.

Please send them to my home address as Joseph is going to be out hopefully Friday for about a week, and then comes back but may be in a different room or ward. Thanks so much...please tell the kids how much Joseph has loved their cards!

Majerus · 06-29-2005, 11:10 PM

Sheri, I'm so glad Joseph is coming home. That is such wonderful news.

I hope everything continues to go well.

chipmunkis · 07-04-2005, 09:23 PM

My heart goes out to them...what a shock to come back and read this....

Purple Sage · 07-04-2005, 11:25 PM

How was the visit home? Hope things continue to look up with Joseph's health. My boys are 8 and 5 and they pray for Joseph every night before going to sleep. Hope to hear another good news update soon.

gentylwind · 07-06-2005, 07:05 PM

Just a little update.

Please remember us in thought and prayers tonight and tomorrow. Joseph's bone marrow aspiration is 8:30 tomorrow morning and will tell us whether he is in remission. This in turn will tell us whether we need to make the dangerous journey toward a bone marrow transplant. I am a wreck tonight. He will be admitted tomorrow for his next round of chemo, which I guess I have been avoiding thinking about while he has been home. It feels a bit like having to consciously walk back into hell. I am suffering more than Joseph is. He is doing fine, is cheerful, optimistic and matter of fact. I will be glad when this round is behind us.

thanks everyone for your continued prayers, support, text messages, cards, emails and all the things you are all doing to hold me up. I am so grateful. I miss being here with y'all and being "normal". I miss my SNARK buddies. Thinking of you often

Majerus · 07-06-2005, 07:36 PM

for Joseph and for you.

Lori · 07-06-2005, 07:37 PM

I'll definitely be thinking of you and Joseph tomorrow morning.

We are there in spirit.

mybigbutt · 07-06-2005, 07:57 PM

Best of luck to your family.

Nanner · 07-06-2005, 11:02 PM

Lori · 07-07-2005, 04:11 AM

MissBoop · 07-07-2005, 06:18 AM

Quote:

Originally Posted by gentylwind

Please remember us in thought and prayers tonight and tomorrow. Joseph's bone marrow aspiration is 8:30 tomorrow morning and will tell us whether he is in remission.

lynnjp · 07-07-2005, 12:35 PM

and

continuing to come your way during this difficult time

DiamondDeb · 07-07-2005, 03:28 PM

I'm praying that Joseph's bone marrow aspiration went well, that he & you are feeling well, and that you get the good news that he is in remission. God bless you.

Lori · 07-11-2005, 10:07 AM

Was Joseph able to go in for the chemo yesterday?

Continued prayers and good wishes.

dimepiece1 · 07-11-2005, 01:49 PM

You and Joseph are in my thoughts and prayers. I pray everything went well.

gentylwind · 07-11-2005, 05:09 PM

He's back in chemo starting today. Bone marrow biopsy results show definite remission.

Now its decision time about whether to go with four more rounds of chemo or a transplant. A few studies showed a slightly better outcome with transplantation, some showed no better outcome. And the transplant itself is very risky. Its going to be a nail biter. He is in remission, but his type of cancer is extremely recurrent. Even with all this chemo he has a less than 50/50 chance of staying in remission for more than a year. The "favorable" odds portrayed by the Inversion 16 type of AML apparently isn't as "favorable" as my mother's heart imagined. It just gives him a 50/50 shot of staying in remission for a year. Negative factors pulling it to less than 50/50 are his WBC count at diagnosis (180,000...anything over 100,000 is a poor prognosis) and the fact he'd had spread to the central nervous system.

He's being a bit of a PITA today, very demanding, looking for presents and special treatment. And of course, he is entitled to a lot of understanding for the most part, but its gone a bit overboard. We are going to have a little chat about it tonight. But he is up and around, feeling well enough to be demanding and such, so I guess in a sense that is a good thing

Thanks so much for thinking of us!

EmilyBlanche · 07-11-2005, 05:35 PM

miss you.

gentylwind · 07-11-2005, 05:40 PM

Miss you too. My travelocity fare alert came up with a $203 ticket from DFW to Minneapolis...hmmm......

EmilyBlanche · 07-11-2005, 05:45 PM

COME COME COME! Although, you should be able to get it MUCh cheaper. Mine was only $120 right??

gentylwind · 07-11-2005, 05:46 PM

nope, if we can get $129 then I will hold out....can't come for a bit yet anyway....

Nanner · 07-11-2005, 09:57 PM

Great news that he's in remission - I pray that he stays there!

5foot2eyesofblue · 07-28-2005, 08:57 AM

Was just thinking about you & Joseph this morning...still praying

lynnjp · 07-29-2005, 02:30 PM

Still think of you folks daily and keeping your family in my prayers

Abbey32 · 07-30-2005, 04:06 AM

Was also sitting here thinking about ya'll.

LadyBehir · 07-31-2005, 05:03 PM

I have Joseph's Caring Bridge site on my Links bar so I am reminded to pray "without ceasing" for him everytime I am online. I check out the journal often also. Hope all is going well for you.

sunset · 08-12-2005, 04:44 PM

I am no longer able to get into Joseph's site. I was in the process of filling out the form to register and got called away from my computer and it will not let me enter. I miss reading the updates, I hope he is doing well. Does anyone have any updates at all?

stews · 08-12-2005, 06:53 PM

Quote:

Originally Posted by sunset

I am no longer able to get into Joseph's site. I was in the process of filling out the form to register and got called away from my computer and it will not let me enter. I miss reading the updates, I hope he is doing well. Does anyone have any updates at all?

I tried the other day and it wouldn't let me.

07-06-2005, 07:05 PM	#428
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	Just a little update. Please remember us in thought and prayers tonight and tomorrow. Joseph's bone marrow aspiration is 8:30 tomorrow morning and will tell us whether he is in remission. This in turn will tell us whether we need to make the dangerous journey toward a bone marrow transplant. I am a wreck tonight. He will be admitted tomorrow for his next round of chemo, which I guess I have been avoiding thinking about while he has been home. It feels a bit like having to consciously walk back into hell. I am suffering more than Joseph is. He is doing fine, is cheerful, optimistic and matter of fact. I will be glad when this round is behind us. thanks everyone for your continued prayers, support, text messages, cards, emails and all the things you are all doing to hold me up. I am so grateful. I miss being here with y'all and being "normal". I miss my SNARK buddies. Thinking of you often __________________ ~~ ~~ ~~ ~~ ~*~ http://inversion16.blogspot.com/

07-11-2005, 05:09 PM	#439
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	He's back in chemo starting today. Bone marrow biopsy results show definite remission. Now its decision time about whether to go with four more rounds of chemo or a transplant. A few studies showed a slightly better outcome with transplantation, some showed no better outcome. And the transplant itself is very risky. Its going to be a nail biter. He is in remission, but his type of cancer is extremely recurrent. Even with all this chemo he has a less than 50/50 chance of staying in remission for more than a year. The "favorable" odds portrayed by the Inversion 16 type of AML apparently isn't as "favorable" as my mother's heart imagined. It just gives him a 50/50 shot of staying in remission for a year. Negative factors pulling it to less than 50/50 are his WBC count at diagnosis (180,000...anything over 100,000 is a poor prognosis) and the fact he'd had spread to the central nervous system. He's being a bit of a PITA today, very demanding, looking for presents and special treatment. And of course, he is entitled to a lot of understanding for the most part, but its gone a bit overboard. We are going to have a little chat about it tonight. But he is up and around, feeling well enough to be demanding and such, so I guess in a sense that is a good thing Thanks so much for thinking of us! Last edited by gentylwind : 07-11-2005 at 05:13 PM.

06-28-2005, 06:22 PM	#421
Lori Eachday Join Date: May 2003 Location: New York Posts: 14,518 Gallery: Lori Stats: 20lbs goal/16lbs down/ 4 to go WOE: High Stress Diet	I read in your log today that neither brother is a match for a bone marrow transplant. I pray that Joseph never needs one. Please let us know whent the blood drive and bone marrow registry are set up. Continued prayers for Joseph's continued progress.

06-28-2005, 09:03 PM	#422
tennhoneybee Blabbermouth!!! Join Date: Jan 2004 Location: Tennessee Posts: 7,016 Gallery: tennhoneybee Stats: 216/130/130 WOE: Dr. Atkins Start Date: Feb. 2004

06-29-2005, 07:35 AM	#423
lynnjp Way too much time on my hands! Join Date: Jun 2002 Location: Rhode Island Posts: 11,363 Gallery: lynnjp Stats: 273/155/140 WOE: low carb Start Date: 4/28/2001	Sheri more cards were just given to me that were made by the kids from my school for Joseph should I still mail them to the hospital or would it be better to mail them to your home address? Thinking of you folks daily and often

06-29-2005, 07:39 AM	#424
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	Lynn, the last box was so precious! You should see his room....he just loves it! So colorful and cheerful. He stops all the time and just looks at them all. Please send them to my home address as Joseph is going to be out hopefully Friday for about a week, and then comes back but may be in a different room or ward. Thanks so much...please tell the kids how much Joseph has loved their cards!

06-29-2005, 11:10 PM	#425
Majerus Way too much time on my hands! Join Date: Oct 2003 Location: La La Land... Posts: 12,767 Gallery: Majerus Start Date: 1/03	Sheri, I'm so glad Joseph is coming home. That is such wonderful news. I hope everything continues to go well.

07-04-2005, 09:23 PM	#426
chipmunkis Way too much time on my hands! Join Date: Nov 2003 Location: I AM CANADIAN! Posts: 22,317 Gallery: chipmunkis Stats: splooging flub/flub reducing/ no more splooging Start Date: Sept.11, 2003	My heart goes out to them...what a shock to come back and read this....

07-04-2005, 11:25 PM	#427
Purple Sage Blabbermouth!!! Join Date: Jan 2005 Location: Colorado Springs, CO Posts: 6,452 Gallery: Purple Sage Stats: 256/148/150 exercising now: 6-08, 159 WOE: Random, watcing calories and exercise Start Date: January 1, 2005	How was the visit home? Hope things continue to look up with Joseph's health. My boys are 8 and 5 and they pray for Joseph every night before going to sleep. Hope to hear another good news update soon.

07-06-2005, 07:36 PM	#429
Majerus Way too much time on my hands! Join Date: Oct 2003 Location: La La Land... Posts: 12,767 Gallery: Majerus Start Date: 1/03	for Joseph and for you.

07-06-2005, 07:37 PM	#430
Lori Eachday Join Date: May 2003 Location: New York Posts: 14,518 Gallery: Lori Stats: 20lbs goal/16lbs down/ 4 to go WOE: High Stress Diet	I'll definitely be thinking of you and Joseph tomorrow morning. We are there in spirit.

07-06-2005, 07:57 PM	#431
mybigbutt MAJOR LCF POSTER! Join Date: Jan 2004 Posts: 1,905 Gallery: mybigbutt Stats: 188/184/120 WOE: Atkins Start Date: 5/29/08 again...	Best of luck to your family.

07-06-2005, 11:02 PM	#432
Nanner Way too much time on my hands! Join Date: Jun 2003 Location: Someplace you've probably never been Posts: 10,854 Gallery: Nanner Stats: 219/215.5/160 WOE: my own plan Start Date: 01/03/05

07-07-2005, 04:11 AM	#433
Lori Eachday Join Date: May 2003 Location: New York Posts: 14,518 Gallery: Lori Stats: 20lbs goal/16lbs down/ 4 to go WOE: High Stress Diet

07-07-2005, 12:35 PM	#435
lynnjp Way too much time on my hands! Join Date: Jun 2002 Location: Rhode Island Posts: 11,363 Gallery: lynnjp Stats: 273/155/140 WOE: low carb Start Date: 4/28/2001	and continuing to come your way during this difficult time

07-07-2005, 03:28 PM	#436
DiamondDeb Fat Burning Machine Extraordinaire! Join Date: Jun 2002 Posts: 40,592 Gallery: DiamondDeb WOE: Custom	I'm praying that Joseph's bone marrow aspiration went well, that he & you are feeling well, and that you get the good news that he is in remission. God bless you.

07-11-2005, 10:07 AM	#437
Lori Eachday Join Date: May 2003 Location: New York Posts: 14,518 Gallery: Lori Stats: 20lbs goal/16lbs down/ 4 to go WOE: High Stress Diet	Was Joseph able to go in for the chemo yesterday? Continued prayers and good wishes.

07-11-2005, 01:49 PM	#438
dimepiece1 MAJOR LCF POSTER! Join Date: Apr 2004 Location: houston, texas Posts: 2,561 Gallery: dimepiece1 Stats: 270/263/170 WOE: atkins Start Date: Sigh.. I begin again	You and Joseph are in my thoughts and prayers. I pray everything went well.

07-11-2005, 05:35 PM	#440
EmilyBlanche Blabbermouth!!! Join Date: Feb 2004 Location: Minneapolis, MN Posts: 6,469 Gallery: EmilyBlanche Start Date: February 2004	miss you.

07-11-2005, 05:40 PM	#441
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	Miss you too. My travelocity fare alert came up with a $203 ticket from DFW to Minneapolis...hmmm......

07-11-2005, 05:45 PM	#442
EmilyBlanche Blabbermouth!!! Join Date: Feb 2004 Location: Minneapolis, MN Posts: 6,469 Gallery: EmilyBlanche Start Date: February 2004	COME COME COME! Although, you should be able to get it MUCh cheaper. Mine was only $120 right??

07-11-2005, 05:46 PM	#443
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	nope, if we can get $129 then I will hold out....can't come for a bit yet anyway....

07-11-2005, 09:57 PM	#444
Nanner Way too much time on my hands! Join Date: Jun 2003 Location: Someplace you've probably never been Posts: 10,854 Gallery: Nanner Stats: 219/215.5/160 WOE: my own plan Start Date: 01/03/05	Great news that he's in remission - I pray that he stays there!

07-28-2005, 08:57 AM	#445
5foot2eyesofblue Big Yapper!!!! Join Date: Nov 2004 Location: Orlando burbs Posts: 9,328 Gallery: 5foot2eyesofblue Start Date: 11/8/2004	Was just thinking about you & Joseph this morning...still praying

07-29-2005, 02:30 PM	#446
lynnjp Way too much time on my hands! Join Date: Jun 2002 Location: Rhode Island Posts: 11,363 Gallery: lynnjp Stats: 273/155/140 WOE: low carb Start Date: 4/28/2001	Still think of you folks daily and keeping your family in my prayers

07-30-2005, 04:06 AM	#447
Abbey32 The Basket Case Join Date: Aug 2004 Location: Stuck in the 80s Posts: 16,691 Gallery: Abbey32 Stats: 141 5'7" WOE: Bloated mess	Was also sitting here thinking about ya'll.

07-31-2005, 05:03 PM	#448
LadyBehir Senior LCF Member Join Date: Oct 2003 Location: NorthCentral PA Posts: 8,088 Gallery: LadyBehir Stats: 149/139!!!!/125 WOE: Atkins-ish + walking Start Date: 09/01/03	I have Joseph's Caring Bridge site on my Links bar so I am reminded to pray "without ceasing" for him everytime I am online. I check out the journal often also. Hope all is going well for you.

08-12-2005, 04:44 PM	#449
sunset Blabbermouth!!! Join Date: Apr 2003 Posts: 6,014 Gallery: sunset	I am no longer able to get into Joseph's site. I was in the process of filling out the form to register and got called away from my computer and it will not let me enter. I miss reading the updates, I hope he is doing well. Does anyone have any updates at all?