Nani/SheriRUth/Gentylwind Update - Page 10

mzmawissa · 06-10-2005, 11:22 AM

Quote:

Originally Posted by gentylwind

Friday update

I'm on my way to pick Emily up from the airport...should be a really fun weekend

Sour apple martinis are chillin' in the freezer as we speak.

Joseph's blood counts were good this morning...best news of all though is that there was not one cancer cell in this morning's sample.

Thank you so much for your prayers. We are far far far from being out of the woods, but at least we all have something positive to hold on to as the next few weeks go by.

Love you all.

great news!

Gunner · 06-10-2005, 11:45 AM

Quote:

Originally Posted by gentylwind

Friday update

I'm on my way to pick Emily up from the airport...should be a really fun weekend

Sour apple martinis are chillin' in the freezer as we speak.

Joseph's blood counts were good this morning...best news of all though is that there was not one cancer cell in this morning's sample.

Thank you so much for your prayers. We are far far far from being out of the woods, but at least we all have something positive to hold on to as the next few weeks go by.

Love you all.

You ladies have fun! Celebretory appletinis all around!

H2O_geek · 06-10-2005, 12:32 PM

Quote:

Originally Posted by gentylwind

Friday update

I'm on my way to pick Emily up from the airport...should be a really fun weekend

Sour apple martinis are chillin' in the freezer as we speak.

Joseph's blood counts were good this morning...best news of all though is that there was not one cancer cell in this morning's sample.

Thank you so much for your prayers. We are far far far from being out of the woods, but at least we all have something positive to hold on to as the next few weeks go by.

Love you all.

Very good indeed. I'll continue to keep you all in my thoughts and prayers.

H-

Abbey32 · 06-10-2005, 02:17 PM

Oh no...don't party too hard.

Great news on Joseph. Hope he has a great weekend.

scigirl3 · 06-10-2005, 02:31 PM

Can AML with inversion 16 be treated with Gleevec long term? My boyfriend has CML which chromosomal inversion [although I'm not sure which one off hand] and does great with gleevec. Keeping you in my thoughts and prayers.

Kelly

lovemykids · 06-10-2005, 07:52 PM

great news all around

Maureen in Italy · 06-11-2005, 04:45 AM

I'm so happy to see some good news for you and your son Sheri. Cancer for everyone involved is such a rollercoaster ride and the days with the highs are such a relief and mean so so much. (And having Emily there makes it that much more special)

Continued good wishes as well as hugs to all of you.

And can I just say that those martinis sound sooo good!

gentylwind · 06-11-2005, 08:53 AM

Saturday update

Joseph has fallen into fever and is not feeling at all well....this is the big danger now. No immune system means lots of opportunistic infections and the doc is bringing out the big guns, ordering massive doses of antibiotics. The chemo has torn up the lining of his stomach...frequent pains and nausea...two more days of it, then a two to three week break, then another round of even higher doses. My heart breaks for him having to suffer through this. The doctor this morning said he will still get a bone marrow transplant if one of his brothers is an exact match because that has the best rates of cure. If not an exact match, then just the heavy duty chemo, no transplant, as the cure rate is good with chemo for this type and the transplant comes with a whole host of other potentially fatal health problems.

Emily got here yesterday and I had a very good "day off" with her. We napped in the sun and got ourselves brown, went and had pedicures done, went to dinner, considered a movie, decided we were too tired, so we watched one at home and fell asleep together on the living room floor. She's been a godsend. We get along like we've known one another all our lives. I love that.

She is going out with AliMay today. I was going to go too, but since Joe-Joe is not feeling well I just can't bring myself to go. Yesterday was enough for recharging. I'll have dinner with Emily tonight when she gets back.

Thank you for your continued prayers.

My toes are pretty and I feel recharged.

surfergirl · 06-11-2005, 09:07 AM

So glad you and Emily had a good time! Its great to have good friend like that!
Stay positive Sheri. I really truly believe postive enrgy brings about positive change.
Heres to hoping Joseph has a better day today!

AliMay · 06-11-2005, 09:09 AM

I'm sorry you aren't going to be able to go with us, but glad that having Emily there has been good for your spirit. You take care of Joe-Joe, and I'll take care of the Amazon.

Majerus · 06-11-2005, 10:15 AM

(((((((((((((((((((((((((((Healing vibes for Joseph))))))))))))))))))))))))))))))

stews · 06-11-2005, 10:42 AM

I'm glad you were able to have a day to refresh. it is hard to be around a family member ALL the time when they are so sick. I know it was good for my dad when my mom was so ill to have a break now and then. we had to MAKE him leave sometimes, but it was good for him to do that too.

I'm so sorry your little guy is so sick right now. I am tearing up for you (and him) as I type. it is hard to watch our kids hurt and know there is nothing we can do to make them feel better.

gentylwind · 06-11-2005, 10:58 AM

Quote:

Originally Posted by scigirl3

Can AML with inversion 16 be treated with Gleevec long term? My boyfriend has CML which chromosomal inversion [although I'm not sure which one off hand] and does great with gleevec. Keeping you in my thoughts and prayers.

Kelly

AML and CML are very different diseases and Gleevac does not work on AML leukemia unfortunately.

Amy · 06-11-2005, 11:18 AM

More prayers and hugs for you and your family.

Gunner · 06-11-2005, 11:28 AM

Give your brave little man

from me. Glad you got to have a day off.

lovemykids · 06-11-2005, 01:06 PM

((((Joseph)))))

I am so glad you are re-charged to support him again.

aki · 06-11-2005, 01:22 PM

and prayers for you both!!!

We love you!

Abbey32 · 06-11-2005, 01:54 PM

Bless Emily's heart and Alimay for taking care of you

Good peeps. Glad you could have some you time. Stay strong.

momof3boys · 06-11-2005, 07:53 PM

to you and Joseph. I'm glad you and Emily and Alimay are able to go out together. Getting away from the hospital for just a little while can help a lot.

Stormyskies · 06-11-2005, 09:36 PM

Sorry to hear that Joseph isn't feeling well, but I'm glad you got to have some relaxing time, Sheri.

Lori · 06-12-2005, 04:37 AM

Continued good thoughts.

septembergirl · 06-12-2005, 01:16 PM

Still sending lots of

and

your way.

Layla · 06-12-2005, 01:24 PM

Sheri

I went to church today for the first time since I moved to Columbus and said a prayer for Joseph. I hope the fever passes quickly and he regains some strength.

Weedydidi · 06-12-2005, 03:30 PM

Just checking in to see if the fever is any better. Thinking of you everyday and will donate blood this week.

chassiepooh · 06-12-2005, 05:45 PM

Just checking in. I'm happy to see the good news...the power of prayer is amazing!

I'm also sad to see Joseph in pain, so I will continue to pray for him.

I'm glad you have friend around to keep you lifted.

EmilyBlanche · 06-12-2005, 06:25 PM

Where you at girl.. I wanna know how your day went.. COME ON.. I have no phone! YOU KNOW THIS! POST DARNIT!

gentylwind · 06-12-2005, 06:38 PM

ROFL! Hey there hottie.

Today was a good day. I slept until about 9 after taking Emily to the airport at an ungodly hour. The apartment was too quiet with her gone.

I had a good day. I went to the gym, did LBWO, then went to lunch with some girlfriends at La Madeleine, and now I am at the hospital taking care of Joe Joe. He is very sick. Fevers up to 102.9 today, unable to get out of bed, severe severe stomach pains that the pain medications are having a hard time breaking through. He's miserable. BUT he got his last dose of chemo through his central line this morning and gets one more tomorrow morning with the lumbar puncture (into his cerebral spinal fluid). Then no more chemo for a while. Two weeks and we'll see what his blood work does. What we need now is prayers for remission. If he is in remission we will soon know it.

Emily, you are mahvelous. I loved having you here.

Layla, that touched me more than you know. You should be my next visitor...please?

Hugs everyone!

Weedydidi · 06-12-2005, 06:44 PM

As a mother, I know that the helpless feeling one gets while watching one's child suffer is almost unbearable. I know that you will have the strength to endure this for him.

I'm glad the first round of chemo is almost over, but I really hope they can make the poor child more comfortable.

Glad to hear that you are sleeping. Are you eating? Remember that Joseph needs him Mommy to take care of herself so she can take care of him.

Please post any whim of a thing that could help you through this time. We're all ACHING for something to do to help.

lovemykids · 06-12-2005, 06:45 PM

I wish I could send cooling winds for Joseph's fever

EmilyBlanche · 06-12-2005, 06:45 PM

I'm glad you're adjusting to a new normal.

I loved being there!

But, who knew it wouldn't be as hot here?

06-11-2005, 08:53 AM	#278
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	Saturday update Joseph has fallen into fever and is not feeling at all well....this is the big danger now. No immune system means lots of opportunistic infections and the doc is bringing out the big guns, ordering massive doses of antibiotics. The chemo has torn up the lining of his stomach...frequent pains and nausea...two more days of it, then a two to three week break, then another round of even higher doses. My heart breaks for him having to suffer through this. The doctor this morning said he will still get a bone marrow transplant if one of his brothers is an exact match because that has the best rates of cure. If not an exact match, then just the heavy duty chemo, no transplant, as the cure rate is good with chemo for this type and the transplant comes with a whole host of other potentially fatal health problems. Emily got here yesterday and I had a very good "day off" with her. We napped in the sun and got ourselves brown, went and had pedicures done, went to dinner, considered a movie, decided we were too tired, so we watched one at home and fell asleep together on the living room floor. She's been a godsend. We get along like we've known one another all our lives. I love that. She is going out with AliMay today. I was going to go too, but since Joe-Joe is not feeling well I just can't bring myself to go. Yesterday was enough for recharging. I'll have dinner with Emily tonight when she gets back. Thank you for your continued prayers. My toes are pretty and I feel recharged. __________________ ~~ ~~ ~~ ~~ ~~ http://inversion16.blogspot.com/ Last edited by gentylwind : 06-11-2005 at 08:55 AM.*

06-11-2005, 10:42 AM	#282
stews Random WIT Join Date: Feb 2000 Location: in the state of desperation Posts: 52,094 Blog Entries: 20 Gallery: stews Stats: 196/189.4/135 OR size 20-22/14-16/4-6 WOE: Learning2Lose with Jackie Brown Start Date: restarted 11/9/08	I'm glad you were able to have a day to refresh. it is hard to be around a family member ALL the time when they are so sick. I know it was good for my dad when my mom was so ill to have a break now and then. we had to MAKE him leave sometimes, but it was good for him to do that too. I'm so sorry your little guy is so sick right now. I am tearing up for you (and him) as I type. it is hard to watch our kids hurt and know there is nothing we can do to make them feel better. __________________ We are family...I have all my WIT sisters with ME! I love my SNARK sisters too! stews space

06-12-2005, 06:44 PM	#298
Weedydidi Big Yapper!!!! Join Date: May 2003 Location: Columbus Posts: 7,556 Gallery: Weedydidi WOE: Atkins OWL Start Date: April 22, 2003	As a mother, I know that the helpless feeling one gets while watching one's child suffer is almost unbearable. I know that you will have the strength to endure this for him. I'm glad the first round of chemo is almost over, but I really hope they can make the poor child more comfortable. Glad to hear that you are sleeping. Are you eating? Remember that Joseph needs him Mommy to take care of herself so she can take care of him. Please post any whim of a thing that could help you through this time. We're all ACHING for something to do to help. __________________ "If you can name your favorite all-you-can-eat place, you probably have a problem with overeating."

06-10-2005, 02:17 PM	#274
Abbey32 The Basket Case Join Date: Aug 2004 Location: Stuck in the 80s Posts: 16,691 Gallery: Abbey32 Stats: 141 5'7" WOE: Bloated mess	Oh no...don't party too hard. Great news on Joseph. Hope he has a great weekend.

06-10-2005, 02:31 PM	#275
scigirl3 MAJOR LCF POSTER! Join Date: Jun 2003 Location: IL Posts: 2,085 Gallery: scigirl3 Start Date: 05/25/03	Can AML with inversion 16 be treated with Gleevec long term? My boyfriend has CML which chromosomal inversion [although I'm not sure which one off hand] and does great with gleevec. Keeping you in my thoughts and prayers. Kelly

06-10-2005, 07:52 PM	#276
lovemykids Very Gabby LCF Member!!! Join Date: Jan 2003 Location: ohio Posts: 3,836 Gallery: lovemykids Stats: 182/137/135 (or a comfortable size 4/6) WOE: eating whole foods carefully	great news all around

06-11-2005, 04:45 AM	#277
Maureen in Italy MAJOR LCF POSTER! Join Date: Sep 2000 Location: In the North Posts: 2,725 Gallery: Maureen in Italy Stats: 154/139/135 WOE: High fiber and exercise Start Date: January 3rd, 2006	I'm so happy to see some good news for you and your son Sheri. Cancer for everyone involved is such a rollercoaster ride and the days with the highs are such a relief and mean so so much. (And having Emily there makes it that much more special) Continued good wishes as well as hugs to all of you. And can I just say that those martinis sound sooo good!

06-11-2005, 09:07 AM	#279
surfergirl Hanging 10 Till I hit 110! Join Date: May 2003 Location: Somewhere where its warm and the surf is good Posts: 5,342 Gallery: surfergirl Stats: 293/181/135 WOE: what works for me Start Date: when i did	So glad you and Emily had a good time! Its great to have good friend like that! Stay positive Sheri. I really truly believe postive enrgy brings about positive change. Heres to hoping Joseph has a better day today!

06-11-2005, 09:09 AM	#280
AliMay Highly Caffeinated Join Date: Mar 2003 Location: searching for my mind Posts: 23,078 Gallery: AliMay Stats: :( WOE: BFL	I'm sorry you aren't going to be able to go with us, but glad that having Emily there has been good for your spirit. You take care of Joe-Joe, and I'll take care of the Amazon.

06-11-2005, 10:15 AM	#281
Majerus Way too much time on my hands! Join Date: Oct 2003 Location: La La Land... Posts: 12,767 Gallery: Majerus Start Date: 1/03	(((((((((((((((((((((((((((Healing vibes for Joseph))))))))))))))))))))))))))))))

06-11-2005, 11:18 AM	#284
Amy Way too much time on my hands! Join Date: Dec 2003 Posts: 11,036 Gallery: Amy Stats: meh. Start Date: over and over again.	More prayers and hugs for you and your family.

06-11-2005, 11:28 AM	#285
Gunner crazy dog lady Join Date: Jun 2004 Location: On my livingroom floor doing core workout every day since 4/1/05 Posts: 4,602 Gallery: Gunner Stats: ugh/hmmm/schwing! WOE: Atkins ~ whole foods Start Date: over n' over..cheat free since 3/20/05	Give your brave little man from me. Glad you got to have a day off.

06-11-2005, 01:06 PM	#286
lovemykids Very Gabby LCF Member!!! Join Date: Jan 2003 Location: ohio Posts: 3,836 Gallery: lovemykids Stats: 182/137/135 (or a comfortable size 4/6) WOE: eating whole foods carefully	((((Joseph))))) I am so glad you are re-charged to support him again.

06-11-2005, 01:22 PM	#287
aki Blabbermouth!!! Join Date: Feb 2004 Location: State of Denial-But I'm moving Posts: 7,377 Gallery: aki Stats: 172.5/138/135 WOE: Counting calories Start Date: March 4, 2005	and prayers for you both!!! We love you!

06-11-2005, 01:54 PM	#288
Abbey32 The Basket Case Join Date: Aug 2004 Location: Stuck in the 80s Posts: 16,691 Gallery: Abbey32 Stats: 141 5'7" WOE: Bloated mess	Bless Emily's heart and Alimay for taking care of you Good peeps. Glad you could have some you time. Stay strong.

06-11-2005, 07:53 PM	#289
momof3boys MAJOR LCF POSTER! Join Date: May 2003 Location: Northern Wisconsin Posts: 2,214 Gallery: momof3boys Stats: 175.5/135 then ? 5'0 WOE: Low carb Start Date: 01/05/04	to you and Joseph. I'm glad you and Emily and Alimay are able to go out together. Getting away from the hospital for just a little while can help a lot.

06-11-2005, 09:36 PM	#290
Stormyskies Notorious Veteran who doesn't know when to stop! Join Date: Jun 2002 Location: Where I wish I could see my reflection in the snow covered hills... Posts: 20,087 Gallery: Stormyskies Stats: Too embarrassed to tell ya! WOE: Mostly Atkins, but not as strick as I should be!!! Start Date: Over and over and over and over...	Sorry to hear that Joseph isn't feeling well, but I'm glad you got to have some relaxing time, Sheri.

06-12-2005, 04:37 AM	#291
Lori Eachday Join Date: May 2003 Location: New York Posts: 14,518 Gallery: Lori Stats: 20lbs goal/16lbs down/ 4 to go WOE: High Stress Diet	Continued good thoughts.

06-12-2005, 01:16 PM	#292
septembergirl MAJOR LCF POSTER! Join Date: Jun 2002 Location: New Hampshire Posts: 1,533 Gallery: septembergirl WOE: LC Start Date: April 2001	Still sending lots of and your way.

06-12-2005, 01:24 PM	#293
Layla I'm snarkilicious! Join Date: Jul 2002 Location: Columbus, Ohio Posts: 4,595 Gallery: Layla Stats: 129/125/115 WOE: Body for Life Start Date: 07/03/2005	Sheri I went to church today for the first time since I moved to Columbus and said a prayer for Joseph. I hope the fever passes quickly and he regains some strength.

06-12-2005, 03:30 PM	#294
Weedydidi Big Yapper!!!! Join Date: May 2003 Location: Columbus Posts: 7,556 Gallery: Weedydidi WOE: Atkins OWL Start Date: April 22, 2003	Just checking in to see if the fever is any better. Thinking of you everyday and will donate blood this week.

06-12-2005, 05:45 PM	#295
chassiepooh Way too much time on my hands! Join Date: Mar 2001 Location: Louisiana Posts: 24,806 Gallery: chassiepooh Stats: 315/192/170 WOE: Low Calorie Start Date: 4/26/05	Just checking in. I'm happy to see the good news...the power of prayer is amazing! I'm also sad to see Joseph in pain, so I will continue to pray for him. I'm glad you have friend around to keep you lifted.

06-12-2005, 06:25 PM	#296
EmilyBlanche Blabbermouth!!! Join Date: Feb 2004 Location: Minneapolis, MN Posts: 6,469 Gallery: EmilyBlanche Start Date: February 2004	Where you at girl.. I wanna know how your day went.. COME ON.. I have no phone! YOU KNOW THIS! POST DARNIT!

06-12-2005, 06:38 PM	#297
gentylwind Blabbermouth!!! Join Date: Jan 2004 Location: south Posts: 7,238 Gallery: gentylwind Stats: 274/228.5/135 WOE: Atkins Start Date: Jan 2004	ROFL! Hey there hottie. Today was a good day. I slept until about 9 after taking Emily to the airport at an ungodly hour. The apartment was too quiet with her gone. I had a good day. I went to the gym, did LBWO, then went to lunch with some girlfriends at La Madeleine, and now I am at the hospital taking care of Joe Joe. He is very sick. Fevers up to 102.9 today, unable to get out of bed, severe severe stomach pains that the pain medications are having a hard time breaking through. He's miserable. BUT he got his last dose of chemo through his central line this morning and gets one more tomorrow morning with the lumbar puncture (into his cerebral spinal fluid). Then no more chemo for a while. Two weeks and we'll see what his blood work does. What we need now is prayers for remission. If he is in remission we will soon know it. Emily, you are mahvelous. I loved having you here. Layla, that touched me more than you know. You should be my next visitor...please? Hugs everyone!

06-12-2005, 06:45 PM	#299
lovemykids Very Gabby LCF Member!!! Join Date: Jan 2003 Location: ohio Posts: 3,836 Gallery: lovemykids Stats: 182/137/135 (or a comfortable size 4/6) WOE: eating whole foods carefully	I wish I could send cooling winds for Joseph's fever

06-12-2005, 06:45 PM	#300
EmilyBlanche Blabbermouth!!! Join Date: Feb 2004 Location: Minneapolis, MN Posts: 6,469 Gallery: EmilyBlanche Start Date: February 2004	I'm glad you're adjusting to a new normal. I loved being there! But, who knew it wouldn't be as hot here?