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Old 02-11-2014, 02:11 PM   #31
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It's heartbreaking when you know you're doing what's best for your child, but they can't really understand why you have to hurt them to make them better.
Holy cow, isn't that the truth. He was fine for the plain films but the blood draw - poor dude! The gal that did it was amazing, perfect stick but he was NOT HAPPY!!! Its pretty funny when he's old enough to articulate what is wrong but without the understanding that comes with age. He still asks, a week later, "Why did the doctor poke my arm?"

LOL, Frosty, "got glutened" - that made me chuckle.
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Old 02-11-2014, 02:26 PM   #32
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LOL, Frosty, "got glutened" - that made me chuckle.
What? You didn't know that gluten was also a verb? It's also an adjective.
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Old 02-11-2014, 03:11 PM   #33
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Originally Posted by FrostyBeav View Post
What? You didn't know that gluten was also a verb? It's also an adjective.
Remember when we were in elementary school and had to diagram sentences? Yeah, I was pretty much an epic fail at the diagramming...
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Old 02-11-2014, 03:41 PM   #34
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Almost right away for me and it got progressively better as time went on.

We took our boys off of gluten seven years ago, when they were 9 and 12 and it made a giant difference with them. After about three months, we could easily tell when they cheated or accidentally got glutened. After about a year, they wouldn't cheat anymore, because it made them feel so bad.
Did you or the boys ever get tested for celiac disease Frosty or did you just try gluten free and it got rid of the issues? After reading here I am thinking it might be helpful to try eliminating gluten for my son as his health is not good. He is on the wait lists to see several specialists but I am thinking this might also be worth trying.
Yennie, I hope you figure out what is causing your son's issues. Thanks for starting this thread! I assumed no one had issues here like we have. I am beginning to think that everything I need to know can be found out from this group.
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Old 02-11-2014, 04:16 PM   #35
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Very interesting thread. I most certainly have the increased heart rate/pounding after over-indulging in carbs. Especially sugar.......

Agreed!
If I indulge popcorn with my Loving Spouse, or any other high carb or sugar stuff......
within 20min, my heart is pounding over 100...just sitting still.
If I do a quick glucose check....it will also be UP!
...but if I look at the positive side... ...it gives me another thing to "think" about before I eat off my food plan.
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Old 02-11-2014, 04:26 PM   #36
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Did you or the boys ever get tested for celiac disease Frosty or did you just try gluten free and it got rid of the issues?
We never got tested. The test isn't very accurate and is invasive (they snip out a chunk of your small intestine and examine it). None of have any question that we are celiac though. We each been accidentally exposed to enough to know how we react and that it's real.

Getting the boys and I off gluten probably saved our family.
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Old 02-11-2014, 04:59 PM   #37
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Originally Posted by FrostyBeav View Post
We never got tested. The test isn't very accurate and is invasive (they snip out a chunk of your small intestine and examine it). None of have any question that we are celiac though. We each been accidentally exposed to enough to know how we react and that it's real.

Getting the boys and I off gluten probably saved our family.
Thanks Frosty, I went down to see my son's Dr to get a form for the blood test but reading a bit about it it does seen inconclusive as far as diagnosis so will also just give it a try. Do you have any issues with high histamine foods? Wondered about it when you mentioned aged cheese.
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Old 02-11-2014, 05:05 PM   #38
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Thanks Frosty, I went down to see my son's Dr to get a form for the blood test but reading a bit about it it does seen inconclusive as far as diagnosis so will also just give it a try. Do you have any issues with high histamine foods? Wondered about it when you mentioned aged cheese.
Mine seems to be related to sulfites. I get really stuffed up and sneezy when I have aged cheese.
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Old 02-11-2014, 05:23 PM   #39
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I feel very strongly that my son's problems are related to structural problems, due to the timing of the episodes and the variety of things he's eating in the moment it happens. Having said that, the gal I talked to today that has the confirmed structural problem that I suspect my guy might have said, without a doubt, certain foods make it worse. So I'm game to keep the food diary but I may push back at an elimination diet without some imaging first. While I'm super unexcited about the prospect of an upper GI or an endoscopy, the MD will have to convince me why an elimination diet is more worthwhile than imaging at this point.

Food allergy/sensitivity testing in animals is also largely unreliable. The blood tests supposedly differentiate between all these different allergens. However, the derm folks say that if 3-5 of the allergens test positive, the pet is very likely allergic to SOMETHING but not necessarily the stuff that it tested positive for. So a diet trial (which is HARD in a dog/cat) is still necessary. But it can be useful for identifying dogs that are straight allergic (atopy) versus food allergies (which often manifest in the skin as opposed to GI signs like in humans) versus a combo of atopy and food allergies. The populations seem to be split 1/3 - 1/3 - 1/3 atopy/food/combo.

A little comparative medicine for you afternoon/evening...
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Old 02-11-2014, 05:35 PM   #40
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The last specialist we saw is thinking genetic mitochondrial issues which makes food intolerances look like the better option if I get to pick. Seems like a good idea to see if there are structural issues if you think that is the underlying cause for your little guy. Great that your educational background helps. I am wishing I took more science in University and less fine arts courses these days.
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Old 02-12-2014, 03:15 AM   #41
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Vanilla, it is going to be VERY interesting if it turns out your slow/no weight loss is related to obscure food intolerances/allergies!

I am off to learn about this pulse test.

A few years ago I stopped gluten because it seemed to be associated with acid reflux. I did not lose any weight, but I lost many inches and a shoe size, and the reflux reduced (did not go away).
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Old 02-12-2014, 04:33 AM   #42
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I have the oddest reaction to salmon. It makes my nose just the least bit stuffy the next day.
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Old 02-12-2014, 06:20 AM   #43
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Originally Posted by Yennie View Post
For those of you who eliminated gluten, how long until you saw results?
Me too, it was immediate. I can tell you though, from the Celiac circles, that is not always the case. Sometimes it can take months depending on how much silia damage there is
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Old 02-12-2014, 06:25 AM   #44
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Yennie, I completely agree with you regarding the testing! My MD Doctor told me, no question you have Celiac. I was seeing a gastro DR and he largely felt Celiac wasn't even an issue for people. REALLY??? He was an idiot and wanted to do further testing and I refused. He even told me he thought I was stupid for eliminating gluten, I informed him, it was my LIFE and that I noticed a HUGE difference whether he believed it or NOT!
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Old 02-12-2014, 06:57 AM   #45
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How long have you been eating gluten free Monica? Glad that your Doctor had better advice.
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Old 02-12-2014, 07:16 AM   #46
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Originally Posted by gotsomeold View Post
Vanilla, it is going to be VERY interesting if it turns out your slow/no weight loss is related to obscure food intolerances/allergies!

I am off to learn about this pulse test.

A few years ago I stopped gluten because it seemed to be associated with acid reflux. I did not lose any weight, but I lost many inches and a shoe size, and the reflux reduced (did not go away).
Interesting about the gluten and how you lost inches.

I need to set me a reminder in my app to do these tests at home! I'm particularly looking forward to see if my pulse speeds up with carbs. I'll be really surprised if I show any intolerances or allergies since I've never noticed any issues.
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Old 02-12-2014, 07:40 AM   #47
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Giving up gluten didn't affect my weight or size at all. But, I felt a lot better, so it didn't matter.
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