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-   -   Anyone have Crohn's? (http://www.lowcarbfriends.com/bbs/juddd/791024-anyone-have-crohns.html)

tandc90 12-09-2012 01:29 PM

Anyone have Crohn's?
 
I was diagnosed several years ago and was wondering how JUDDDing has affected your disease since it apparently has anti-inflammatory benefits. My disease is controlled pretty well on Imuran but I'd love to feel even better even if I never get off the drugs.

Christy

Carly 12-09-2012 02:36 PM

I have an auto-immune syndrome like RA. I haven't felt a huge amount of relief with regard to that, but every other aspect of my health has been hugely improved!

tandc90 12-09-2012 04:15 PM

Well, Carly, I'm sorry to hear that for both our sakes. But I know having the rest of your health improved has probably made it a bit easier to deal with the other issue. I know from personal experience my disease does better the less I eat so my DDs will do me good with respect to that.

Carly 12-09-2012 04:20 PM

Yes- I would imagine that your GI system will thank you for that alone. I find my energy is low for someone my age, but the extra energy that my body no longer needs to waste on digestion during DDs has lead to great levels of energy on those days! I think I am even more energetic on UDs too, but the energy is really noticable and enjoyable on DDs.

tobelowcarber 12-09-2012 04:22 PM

Christy- I have ulcerative colitis and have been helped immensely by following specific carbohydrate diet and blood type diet: Breaking the Vicious Cycle (Dr Elaine Gottshall) and Eat Right For Your Type (Dr Peter D'Adamo).

tandc90 12-09-2012 04:30 PM

That's good to know, Carly, as I too have low energy and always have.

Tobelowcarber, I was on SCD for 10 months last year (plan on making yogurt again once we're moved) and it worked miracles for my Crohn's but was far too restrictive and time consuming. Eat Right would also be too restrictive as my type is low carb and I have been there and I have done that. :) But I appreciate your suggestions and wonderful that it's helped you. I still check for di- and polysaccharides, lol.

sungoddess 12-10-2012 08:52 AM

Christy,

I have Crohn's. A pretty serious case that I have had for over 20 years. I thought that JUDDD was working to improve my condition because I went almost a year without a huge flare up. But this October, I had one of the worst attacks ever. I am not sure exactly why, but I was disappointed because I thought JUDDD was healing my inflammation.

I think internally it is helping me, because I feel better and see other changes and maybe it will just take time to do all the healing I need.

For me, it is what I eat that makes a big difference. I can't be like some of the other JB's and eat what I want on UD's. The foods that work against my healing include wheat and sugar. I still try to make my treats low carb, sugar and gluten free. The things that help heal me include fermented foods such as kefir, raw sauerkraut, kim chi, and yogurt. Getting those little bugs in my system is one of the best things I have found to help my intestines.

Green juices help, along with artichoke, cabbage, and brussel sprouts is helpful. The BEST thing I found is consistent use of L-glutamine powder mixed in water and taken in large amounts.

I also take Imuran. I hope JUDDD helps you. I think it will. I am not trying to be a Debbie Downer about JUDDD and Crohn's. I think it helps a great deal, but it may take more time to work its magic on me as I have lots of healing that needs to be done! I try very hard to just drink fluids on my DD's and not eat. I think that is SO helpful for bowel problems. It gives the system a chance to heal without digesting foods. The less I eat on a DD, the better I feel.

Best wishes!

tandc90 12-11-2012 01:17 PM

Beverly, thanks for your feedback. No, I know you aren't being Debbie Downer. I understand perfectly. I'm doing JUDDD to lose weight so if I maintain where I'm at with Crohn's that's okay. I know from past experience eating less/nothing is good for my digestion anyway so it can't hurt. I'll look into the l-glutamine powder. I'm also going to start making homemade yogurt (lactose free but full of probiotics) once we settle into our new house. Bubbies pickles are also good if you've never tried them. They're fermented rather than whatever the other way is to make pickles and taste yummy and are full of good bacteria.

sungoddess 12-11-2012 01:46 PM

Quote:

Originally Posted by tandc90 (Post 16130660)
Beverly, thanks for your feedback. No, I know you aren't being Debbie Downer. I understand perfectly. I'm doing JUDDD to lose weight so if I maintain where I'm at with Crohn's that's okay. I know from past experience eating less/nothing is good for my digestion anyway so it can't hurt. I'll look into the l-glutamine powder. I'm also going to start making homemade yogurt (lactose free but full of probiotics) once we settle into our new house. Bubbies pickles are also good if you've never tried them. They're fermented rather than whatever the other way is to make pickles and taste yummy and are full of good bacteria.

Someone said to me once (a nurse!), I never met a fat person with Crohn's before. I can't believe I was the first she ever saw. Ugh!
I adore the Bubbies products. It is that sauerkraut and the pickles I eat. That sauerkraut is wonderful. And homemade yogurt is great! Congrats on getting a new home. That is exciting.

Erin57 12-11-2012 02:08 PM

I have Colitis and I've been puzzled about what exactly put it into remission. I didn't sleep through the night for 16 months, it was so bad. I was down to eating very little, mostly meat. Absolutely no fructose, chemicals, grains and very little veggies. I did many tests for food intolerances, including the $1,200 ALCAT test. Most were inconclusive.

I was on an expensive probiotic that my doctor recommended. It had to be kept refridgerated. I didn't think that it was working too well.

I had my colitis down to a low roar in June 2012 with diet but it would still flair if I ate the wrong things. I was ordering my probiotic online. When I received a new bottle I did notice that it was not packed in a cold pack. I didn't think that much about it until I got VERY sick a few days later. I couldn't even leave the house.

That was my light bulb moment that there was SOMETHING working in the probiotic. On a whim I bought some cheapo Digestive Pearls from the grocery store. I started on 2 a day on an empty stomach.

This was also the week that I started eating only from 11-7 daily. I have not had ONE bout of diarrhea since. I eat all foods now. Nothing seems to upset me.

I have no idea if it was the probiotic or the IF that caused this. I have considered going off the probiotic to test this but am too scared.

sungoddess 12-11-2012 02:26 PM

Quote:

Originally Posted by Erin57 (Post 16130763)
I have Colitis and I've been puzzled about what exactly put it into remission. I didn't sleep through the night for 16 months, it was so bad. I was down to eating very little, mostly meat. Absolutely no fructose, chemicals, grains and very little veggies. I did many tests for food intolerances, including the $1,200 ALCAT test. Most were inconclusive.

I was on an expensive probiotic that my doctor recommended. It had to be kept refridgerated. I didn't think that it was working too well.

I had my colitis down to a low roar in June 2012 with diet but it would still flair if I ate the wrong things. I was ordering my probiotic online. When I received a new bottle I did notice that it was not packed in a cold pack. I didn't think that much about it until I got VERY sick a few days later. I couldn't even leave the house.

That was my light bulb moment that there was SOMETHING working in the probiotic. On a whim I bought some cheapo Digestive Pearls from the grocery store. I started on 2 a day on an empty stomach.

This was also the week that I started eating only from 11-7 daily. I have not had ONE bout of diarrhea since. I eat all foods now. Nothing seems to upset me.

I have no idea if it was the probiotic or the IF that caused this. I have considered going off the probiotic to test this but am too scared.

That is really interesting Erin. I would be too scared to do the experiment. I despise being chained to a toilet. :sad:
I think probiotics are a key for peeps like us. How cool you can eat all foods now! I would love to have that freedom again. Congrats!

Erin57 12-11-2012 02:29 PM

Quote:

Originally Posted by sungoddess (Post 16130801)
That is really interesting Erin. I would be too scared to do the experiment. I despise being chained to a toilet. :sad:
I think probiotics are a key for peeps like us. How cool you can eat all foods now! I would love to have that freedom again. Congrats!

I agree! The best part is these probiotics are about $17 for a box of 90 on Amazon. The others I had tried were about $1 a pill.

jem51 12-11-2012 03:02 PM

My daughter did SCD for two year, by the book.

She was housebound, couldn't work and on the way to appts, knew where every public restroom was.
Meds made no difference, at all.

SCD was like a miracle. After 2 yrs went to basic LC. Then added on some gluten free stuff...........

Five yrs ago she quit smoking (forced by her PKD diagnosis), and has gradually gained too much weight, still LC but too much GF.

Started JUDDD a little more than 1 1/2 months ago and has done great and has had no bowel flare ups at all....of course, she still has some learning curves like not being able to eat the whole bag of shiritake noodles.

Still, doing really well.

Eieio 12-11-2012 03:03 PM

Tandc90
I'm been wanting to talk with u.
My cousin had crown. She was troubled with it horribly.
She was thin, tiny thin, apatite- short.
She kept a full time jog.
Finally 5 Years ago she had surgery. Dr removed one Foot of her intestine.
Most people stay in the hospital for several days if not weeks from that type of ordeal. She had the surgery and back home in 3 days!
She started feeling better. She gained wt. which she really needed too.
Problems did creep bAck with the disease. But the surgery changed her life.
She's beautiful.
Wish u well.
Ei

Eieio 12-11-2012 03:05 PM

Crohn my typos are ready bad one times.
So sorry
Ei

Erin57 12-11-2012 04:04 PM

:hugs: To all who suffer from this. And healing prayers. Unless you have been there it is hard to explain. It's sort of like comparing labor pain to menstrual cramps. Except that you have it 24/7 and you get VERY worn down by it.

I wish that the gut doctors that I have seen (3) could experience it for a week. One of them actually asked me if I had tried Imodium. Do ya think?:mad:

He was the 3rd gut specialist I had seen in a year. He asked me to get into a gown so that he could do a physical exam. After he left the room I was thinking "So what is he going to see in my butt/body that has not been viewed already?" I mean, I had already had a colonoscopy.

My big girl voice won that day. I got dressed and left. Did not even check out on the way out. I was so pissed and creeped out.

gotsomeold 12-12-2012 05:06 AM

Quote:

Originally Posted by Erin57 (Post 16130974)
... I wish that the gut doctors that I have seen (3) could experience it for a week. One of them actually asked me if I had tried Imodium. ...

Talk about hearing the clang! clang! clang! of the I'm only in it for the money alarm!!

I hope you found (or find) a good doctor. The kind who actually keeps up with new research in his/her specialization.

jem51 12-15-2012 04:11 PM

For those who doubt the healing power of JUDDD;

Spoke to my daughter today. She finished moving out of her house last night and btw the closings is sort of camping in a friends house for a week (hopefully).

She has kept strict rotation (still) and last night after all the hard work picked up chinese food.
She ate an eggroll, fried rice and some meat dish AND no tummy issues!!

This was not so before JUDDD.
Even LC did not have this healing power (and I'm sure some of us know that LC can cause increased sensitivity).

The next week will surely test this even further since it'll be mostly eating out or take out.
But she still has no plan to break rotation and loves that she is feeling so good.

LoCarbGal 12-17-2012 12:17 PM

So great, Jem! This is really life changing!


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