![]() |
|
|
|
#2131 | |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
Quote:
And you're very welcome...I could use some Daffin's candy right about now, lol. Pam |
|
|
|
|
Sponsored Links
|
|
|
#2132 |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
[quote=olsufka2;10558325]OK MY ANTIBODY TEST RESULTS ARE IN CAN SOMEONE HELP ME INTERPRET THEM?
I'd have the TPO/TSI done again in a year to see any change, but as of right now, they aren't bad. (My TPO came back at 3,000 with that range, and most see around 150 given that lab range if Hashimoto's). Pam |
|
|
|
|
#2133 |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
[quote=pamlightft;10558593]And, if someone can take a few minutes and chime in on my #s, I'd appreciate it!
Um, it doesn't matter if there is 'ebb and flow'...hence the drop. How much Armour or natural thyroid is the doc gonna give you for your hypothyroidism? Hashimoto's doesn't 'get better' on it's own. The antibodies 'flare' over and over while attacking the thyroid over time and then they receed to attack again. So, antibodies tests are like pregnancy tests...you can't be a 'little bit pregnant' and you can't have just a 'little bit of Hashimoto's'. BTW..why did the doc think a Free T4 was important, but you only have a Total T3? That's kinda apples and oranges there. JMHO Pam
__________________
So many fireworks. So little time. "The thyroid is nothing to mess with" ... Sunset |
|
|
|
|
#2134 |
|
Way too much time on my hands!
Join Date: Sep 2003
Location: Southeastern Coastal SC
Posts: 11,424
Gallery: AllieCat0817
Stats: 213.5/135.5/140
WOE: Atkins Maintenance
Start Date: 5/23/03
|
I AM NOW OFFICIALLY A WESTHROID PATIENT!!! whooohooooooooooo
My ENT agreed to switch me from synthetic combo to natural!!!! I am major siked. |
|
|
|
|
#2137 |
|
MAJOR LCF POSTER!
Join Date: Jan 2007
Location: MD
Posts: 1,846
Gallery: PalmTreeGal
Stats: 181/169.6/120
WOE: Atkins without counting
Start Date: 9/1/08
|
So now I've been on thyroid replacement 2.5 weeks - 1 on levothyroxine, 1.5 on Armour. I've noticed no effects whatsoever (yeah I know I'm impatient!) except that as of today my period is late. I am like clockwork after 14 years on the Pill - always get it late Tuesday or sometime Wednesday. Here it is late Thursday and no cramps, no sign of TOM whatsoever. And don't even say the P word, I'm pretty sure it would have to be an immaculate conception even if I wasn't a faithful Pill taker! I don't normally have any menstrual problems, no heavy bleeding or anything which I know thyroid problems can sometimes cause. But this little change is SO unlike me that it's kind of freaking me out!
Pam, that sucks that it took more than a year for you to feel better! Your situation sounds very serious and complex. Something I don't understand - how does untreated Hashimoto's leave you open to other autoimmune disease? Does treating Hashi's somehow decrease the antibodies attacking other systems? As far as the rate of increasing the Armour - my doc's office said to increase from 1/2 grain to 1 grain over 2-3 weeks. Yeah, I did it after one week . . . I'm so impatient to feel better after so many years of fatigue and general blah-ness! STTM also recommends moving up fairly quickly. What would be your recommendation on where to go from here? I should be due for labs around the second week of August. I will make sure to get ferritin run then as well.
__________________
Mandy ![]() <------- Me at 130ish My Journal: http://www.lowcarbfriends.com/bbs/we...8-journey.html |
|
|
|
|
#2138 |
|
Junior LCF Member
|
I don't think the doctor intends on putting me on any meds.
NonstickPam - Thanks for your comments; however, I'm getting from the GP that I don't have a thyroid problem. Maybe he ran the tests because he doesn't really know what to test or look for. After the first TSI reading was high, I read that I should be tested for thyroid antibodies. Even after I obtained a copy of the first lab, the nurse said the doctor said the readings were normal and maybe I needed another test in 6 months. I said no, I wanted the antibody test. So, in addition to the antibody test, the doctor ordered a retest for the TSI. Obviously, the people in this forum highly value your opinion. Do you think I should see an endocrinologist to conduct a proper set of tests? Thanks again! Pam L.
![]() |
|
|
|
|
#2139 |
|
Junior LCF Member
|
Pleasant surprise
I first posted about my thyroid concerns on July 2. I got some very useful feedback from this ongoing discussion.
I went to see my primary care doctor on July 9. I wrote a letter to the doctor before the visit and expressed my desire to have more done than a test for TSH levels. We talked about my blood test for TSH which was--no surprise--low normal the way it ALWAYS is. She said she would be willing to test for T3 and T4. No other doctor has ever done more than give me a lot of well-meaning crap about how low normal TSH is not a problem. I have my fingers crossed that SOMETHING will turn up. Edith |
|
|
|
|
#2140 | |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
Quote:
If you have ANY autoimmune disease it leaves the patient with a propensity to have another autoimmune disease, but two of my autoimmune diseases are also considered somewhat familial and genetic. Pam |
|
|
|
|
|
#2141 | |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
Quote:
thyroid stimulating immunoglob at 141 (reference interval 0-129) - flagged "high" Thyroxine (T4), Free, Direct .04 (interval .61-1.76) TSH 1.605 (interval .350-5.500) Triiodothyronine (T3) 133 (interval 85-205) It 'smacks' of Hashimoto's. Ok? But Hashi's isn't called the "Rollercoaster disease" for nuttin'. It goes back and forth, up and down. Your doc sees the extremely low FT4, assumes a total T3 is 'good enough' and sees the TT3 at a 'highish' level, THINKS a TSH of 1.6 is 'hyper low' cuz he prolly won't treat one even at a freakin' 3 and now running a TSI to 'prove' Graves HYPER autoimmune. And if you've read this thread you know full well how I feel about running anything by most endo's. Pam |
|
|
|
|
|
#2142 | |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
Quote:
If you're on any birth control or other hormones, you need Free T's, not Total T's, and your doc might want to do a TPO antibodies too (you can get that above at the link too). Pam |
|
|
|
|
|
#2143 |
|
aka fuelmanswife
Join Date: Oct 2004
Location: The Peach State
Posts: 2,214
Gallery: Beth1121
WOE: Basic LC
Start Date: Which time?
|
Mandy - When I first started getting treatment, I was incredibly late with my period the first month. I asked my doc about it, and he said it was normal because the meds were messing with my hormones.
|
|
|
|
|
#2144 |
|
Way too much time on my hands!
Join Date: Jul 2002
Location: Alpharetta,Ga.
Posts: 12,511
Gallery: inatic
Stats: 182/126.2 5'4 46!yo 16/4 5 kidlets later!
WOE: Coach Supervised
Start Date: LC since 2/02 B'building since 10/15/02
|
when i started thyroid treatment i didnt realize i was feeling better till i realized i wasnt feeling bad! that was in a month.. it continued to get better after that.
|
|
|
|
|
#2145 |
|
aka fuelmanswife
Join Date: Oct 2004
Location: The Peach State
Posts: 2,214
Gallery: Beth1121
WOE: Basic LC
Start Date: Which time?
|
New Lab Results
My latest labs:
Free T4: 1.54 (range 0.61-1.76) TSH: 0.004 (range 0.350-5.500) Cortisol: 2.6 (range 3.1-22.4) TPO: 87 (range 0-34) Antithyroglobulin Ab: 25 (range 0-40) Free T3: 3.5 (range 2.3-4.2) Doc's comments: Adrenals low & stressed. Will address treatment at next appointment. Free T3 should improve with additional Armour. I am now taking 112 mcg of Levoxyl and 90 mg Armour daily. I feel okay....not awesone or great but okay and a million times better than this time last year. I still seem to get tired too easily and seem to need extra time to recover from strenuous activities. Very happy and pleased with treatment from this doc. He's a keeper. The cortisol test was a blood test done at approx. 11:30 or 12:00. I have heard that the 24 hr. saliva test is better, but mine still came in low, so I'm not gonna stress about which test he used. My question: Should I call and ask to be treated now for the low cortisol or wait until next appointment? I understand very little about adrenals/cortisol levels. Time to start researching.
__________________
Beth |
|
|
|
|
#2147 |
|
Blabbermouth!!!
|
Beth, that cortisol is pretty low, even for midday. I'm on bio-identical hydrocortisone for hypoadrenal. My cortisol is pretty high in the morning, but plummets by midmorning and I'm not functional the rest of the day (without the HC). I think all docs (even the good ones) have different views on testing adrenals. My doc doesn't think the 24 hr saliva is accurate and prefers to use a.m. cortisol, along with how you feel throughout the day, sleeping patterns, lifestyle, etc. to diagnose. I had to give him alot of detail about how I felt, what time I would feel the ups and downs, what kind of activity I was doing when I felt them, what time I would wake up during the night, how long I was awake, my stress levels at home and at work, etc. After 2 yrs on HC, I finally slept through an entire night for the first time in 15-20 years! An added plus, the HC is helping decrease my antibody count (from around 3000 to the 900's).
Is there a particular reason he has you on synthetic t4 and armour? Your ft4 is at about 81% of the range, and the ft3 at 63%. I would probably feel better with those numbers reversed, which probably would happen on armour only. Just a random thought, and I may be way off track. Mandy, I think everyone will feel improvement on a different schedule, depending on where they are when they start treatment. My doc told me, with my level of damage, I could expect to start feeling not so bad in about 2 years (he was right) and human in 4 yrs...great a few years after that. Like Ileen, I don't really notice feeling better, but I suddenly realize I don't feel so bad. I ran the vacuum long enough to do a full room last weekend...I know that sounds silly, but 2 yrs ago, I was too weak to do more than a 3 foot area, and if I pushed through and finished a room, I was in bed and worthless for 2 days. Those are the things that let you know you're getting better...you will start to do things that were hard to manage before without thinking about it, and have this "wow" moment when you finish.
__________________
Niki |
|
|
|
|
#2148 |
|
Senior LCF Member
Join Date: Aug 2007
Location: Fayetteville, PA
Posts: 82
Gallery: RavenG
Stats: 265/174.5/160
WOE: Atkins
Start Date: June 2006
|
Got Bloodwork Back - Can someone help me interpret?
Okay....got my results back from my bloodwork on Monday.
TSH : 6.35 FT3 - 374 (Range 230 - 420) FT4 - .9 (Range .58 - 1.64) Thyroid Antibodies - 160 (Range <35) Anti Thyroid Globulin - 41 (Range <20) She also did a Rheumatoid Arthritis test (every female on my mother's side has this and it usually starts in their late 20's to early 30's...I just turned 42 yesterday) Rheumatoid - 30 (Range is <20) My Cholesterol was as follows Total - 238 Trigylcerides - 94 HDL - 69 LDL - 150 (This was MUCH better than the last one done a year ago) |
|
|
|
|
#2149 | |
|
aka fuelmanswife
Join Date: Oct 2004
Location: The Peach State
Posts: 2,214
Gallery: Beth1121
WOE: Basic LC
Start Date: Which time?
|
Quote:
About the Levoxyl and Armour combo: I asked my doc about it, and he said that in his and his patients' experience that was usually what worked best. He said that in order to get most patients feeling better that Armour alone didn't usually work because in order to get the T4 levels where they need to be that many times patients were getting too much T3 with Armour alone. He does have some patients who do take Armour only, and he is not against it if I want to try it since he wants what is best for me. I know that I am feeling so, so, so much better than before that I feel no need to tinker with it since it is apparently working for me. I've read in a couple other places that this combo therapy works well for many patients. I'll ask him to change it if I ever feel that it is no longer the best plan for me. Oh, yeah. I need to add that I am not optimized yet. I have only been getting treatment since the end of November. We are still slowly amping up my meds. I just know that I feel worlds better than I did this time last year. I was sooooo miserable before. I still am not sure what normal feels like. I can't even remember what that's like, but I'm much closer to it than I was before going to this doc. Thanks again for your input. There is so much to learn. |
|
|
|
|
|
#2150 | |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
Quote:
Pam |
|
|
|
|
|
#2151 | |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
Quote:
Pam |
|
|
|
|
|
#2153 | |
|
aka fuelmanswife
Join Date: Oct 2004
Location: The Peach State
Posts: 2,214
Gallery: Beth1121
WOE: Basic LC
Start Date: Which time?
|
Quote:
Now I'm really confused. Reason being that I feel so much better than before treatment. I know I'm not there yet and have suspected adrenal fatigue all along as an additional issue. Oh, my, I'm not quite sure how to proceed from here. I'll ask about the testing that you suggested. Do you think the T4 is too high due to my combo dosing with Levoxyl and Armour? I don't think my doc will be upset at all about me questioning him as long as I can explain how I am coming up with my concerns. He is very serious about thyroid research and very open to what works best for his patients. Also, if I end up feeling really good, do the labs even mean anything? |
|
|
|
|
|
#2154 |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|
|
|
|
|
|
#2155 |
|
Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,989
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
|