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Old 07-10-2008, 05:36 AM   #2131
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Originally Posted by Gracie514 View Post
Our bf couple lives in Sharon, PA (and if any of you love chocolate, visit the Daffin's chocolate website Tourism Information for Daffin's Chocolate Candies - The World's Largest Candy Store ) and DH's family near Hubbard, Vienna and out towards Warren, OH.

We come back there a couple of times a year.


Hi Pam! I continually read through your thread for all the great information and tips. I am from Pittsburgh but have been to Sharon numerous times. I believe it's the home of the first "Quaker Steak & Lube" restaurant. They have the best wings in the USA, my favorite being "Louisiana Lickers"! Next time you visit your bf make sure you check it out, the restaurant actually has Nascar cars hanging from the ceiling. Also, when I was little my dad always took us there because there was a speedway. I believe it's called "Sharon Speedway". It's only about a 30 minute drive for me.

On thyroid news, I've been feeling better, don't know why. My endo did say she doesn't think I'm ovulating, can thyroid cause this? In my last test in April I had ample FT4 and low range FT3. So I've stopped eating very LC and started eating alot of spinach,etc. for iron. I've actually lost 8 pounds. The date of my last test was 4/22/08, when should I retest to see if my FT3 has increased?

Once again, thank you for all you do to help.
If you aren't on any thyroid hormone, I'd have the FT's done once a year.

And you're very welcome...I could use some Daffin's candy right about now, lol.

Pam
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Old 07-10-2008, 05:40 AM   #2132
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[quote=olsufka2;10558325]OK MY ANTIBODY TEST RESULTS ARE IN CAN SOMEONE HELP ME INTERPRET THEM?

I'd have the TPO/TSI done again in a year to see any change, but as of right now, they aren't bad. (My TPO came back at 3,000 with that range, and most see around 150 given that lab range if Hashimoto's).

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Old 07-10-2008, 05:45 AM   #2133
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[quote=pamlightft;10558593]And, if someone can take a few minutes and chime in on my #s, I'd appreciate it!

Um, it doesn't matter if there is 'ebb and flow'...hence the drop. How much Armour or natural thyroid is the doc gonna give you for your hypothyroidism? Hashimoto's doesn't 'get better' on it's own. The antibodies 'flare' over and over while attacking the thyroid over time and then they receed to attack again. So, antibodies tests are like pregnancy tests...you can't be a 'little bit pregnant' and you can't have just a 'little bit of Hashimoto's'. BTW..why did the doc think a Free T4 was important, but you only have a Total T3? That's kinda apples and oranges there. JMHO

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Old 07-10-2008, 12:09 PM   #2134
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I AM NOW OFFICIALLY A WESTHROID PATIENT!!! whooohooooooooooo

My ENT agreed to switch me from synthetic combo to natural!!!! I am major siked.
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Old 07-10-2008, 12:29 PM   #2135
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I AM NOW OFFICIALLY A WESTHROID PATIENT!!! whooohooooooooooo

My ENT agreed to switch me from synthetic combo to natural!!!! I am major siked.

great news allie, I'm hoping my family dr will be easy to persuade!
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Old 07-10-2008, 12:38 PM   #2136
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Pam....

I just sent you a PM.

Thanks!
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Old 07-10-2008, 03:25 PM   #2137
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So now I've been on thyroid replacement 2.5 weeks - 1 on levothyroxine, 1.5 on Armour. I've noticed no effects whatsoever (yeah I know I'm impatient!) except that as of today my period is late. I am like clockwork after 14 years on the Pill - always get it late Tuesday or sometime Wednesday. Here it is late Thursday and no cramps, no sign of TOM whatsoever. And don't even say the P word, I'm pretty sure it would have to be an immaculate conception even if I wasn't a faithful Pill taker! I don't normally have any menstrual problems, no heavy bleeding or anything which I know thyroid problems can sometimes cause. But this little change is SO unlike me that it's kind of freaking me out!

Pam, that sucks that it took more than a year for you to feel better! Your situation sounds very serious and complex. Something I don't understand - how does untreated Hashimoto's leave you open to other autoimmune disease? Does treating Hashi's somehow decrease the antibodies attacking other systems?

As far as the rate of increasing the Armour - my doc's office said to increase from 1/2 grain to 1 grain over 2-3 weeks. Yeah, I did it after one week . . . I'm so impatient to feel better after so many years of fatigue and general blah-ness! STTM also recommends moving up fairly quickly. What would be your recommendation on where to go from here? I should be due for labs around the second week of August. I will make sure to get ferritin run then as well.
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Old 07-10-2008, 07:09 PM   #2138
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I don't think the doctor intends on putting me on any meds.

NonstickPam - Thanks for your comments; however, I'm getting from the GP that I don't have a thyroid problem. Maybe he ran the tests because he doesn't really know what to test or look for. After the first TSI reading was high, I read that I should be tested for thyroid antibodies. Even after I obtained a copy of the first lab, the nurse said the doctor said the readings were normal and maybe I needed another test in 6 months. I said no, I wanted the antibody test. So, in addition to the antibody test, the doctor ordered a retest for the TSI. Obviously, the people in this forum highly value your opinion. Do you think I should see an endocrinologist to conduct a proper set of tests? Thanks again! Pam L.
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Old 07-10-2008, 08:29 PM   #2139
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Pleasant surprise

I first posted about my thyroid concerns on July 2. I got some very useful feedback from this ongoing discussion.

I went to see my primary care doctor on July 9. I wrote a letter to the doctor before the visit and expressed my desire to have more done than a test for TSH levels. We talked about my blood test for TSH which was--no surprise--low normal the way it ALWAYS is. She said she would be willing to test for T3 and T4.

No other doctor has ever done more than give me a lot of well-meaning crap about how low normal TSH is not a problem.

I have my fingers crossed that SOMETHING will turn up.

Edith
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Old 07-11-2008, 05:44 AM   #2140
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Originally Posted by PalmTreeGal View Post
So now I've been on thyroid replacement 2.5 weeks - 1 on levothyroxine, 1.5 on Armour. I've noticed no effects whatsoever (yeah I know I'm impatient!) except that as of today my period is late. I am like clockwork after 14 years on the Pill - always get it late Tuesday or sometime Wednesday. Here it is late Thursday and no cramps, no sign of TOM whatsoever. And don't even say the P word, I'm pretty sure it would have to be an immaculate conception even if I wasn't a faithful Pill taker! I don't normally have any menstrual problems, no heavy bleeding or anything which I know thyroid problems can sometimes cause. But this little change is SO unlike me that it's kind of freaking me out!

Pam, that sucks that it took more than a year for you to feel better! Your situation sounds very serious and complex. Something I don't understand - how does untreated Hashimoto's leave you open to other autoimmune disease? Does treating Hashi's somehow decrease the antibodies attacking other systems?

As far as the rate of increasing the Armour - my doc's office said to increase from 1/2 grain to 1 grain over 2-3 weeks. Yeah, I did it after one week . . . I'm so impatient to feel better after so many years of fatigue and general blah-ness! STTM also recommends moving up fairly quickly. What would be your recommendation on where to go from here? I should be due for labs around the second week of August. I will make sure to get ferritin run then as well.
My suggestion would be to wait about three months and see how ya feel on that one grain. Antibiotics make you feel better (noticeable difference) from one week to another, hormones take about three months (and btw, what about having your estradiol, progesterone done too? That may be a consideration if this doesn't help you feel better, it could be a total imbalance of those hormones too).

If you have ANY autoimmune disease it leaves the patient with a propensity to have another autoimmune disease, but two of my autoimmune diseases are also considered somewhat familial and genetic.

Pam
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Old 07-11-2008, 05:50 AM   #2141
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Originally Posted by pamlightft View Post
NonstickPam - Thanks for your comments; however, I'm getting from the GP that I don't have a thyroid problem. Maybe he ran the tests because he doesn't really know what to test or look for. After the first TSI reading was high, I read that I should be tested for thyroid antibodies. Even after I obtained a copy of the first lab, the nurse said the doctor said the readings were normal and maybe I needed another test in 6 months. I said no, I wanted the antibody test. So, in addition to the antibody test, the doctor ordered a retest for the TSI. Obviously, the people in this forum highly value your opinion. Do you think I should see an endocrinologist to conduct a proper set of tests? Thanks again! Pam L.
Here's what you wrote:

thyroid stimulating immunoglob at 141 (reference interval 0-129) - flagged "high"

Thyroxine (T4), Free, Direct .04 (interval .61-1.76)
TSH 1.605 (interval .350-5.500)
Triiodothyronine (T3) 133 (interval 85-205)

It 'smacks' of Hashimoto's. Ok? But Hashi's isn't called the "Rollercoaster disease" for nuttin'. It goes back and forth, up and down. Your doc sees the extremely low FT4, assumes a total T3 is 'good enough' and sees the TT3 at a 'highish' level, THINKS a TSH of 1.6 is 'hyper low' cuz he prolly won't treat one even at a freakin' 3 and now running a TSI to 'prove' Graves HYPER autoimmune.

And if you've read this thread you know full well how I feel about running anything by most endo's.

Pam
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Old 07-11-2008, 05:52 AM   #2142
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Originally Posted by entwyf View Post
I first posted about my thyroid concerns on July 2. I got some very useful feedback from this ongoing discussion.

I went to see my primary care doctor on July 9. I wrote a letter to the doctor before the visit and expressed my desire to have more done than a test for TSH levels. We talked about my blood test for TSH which was--no surprise--low normal the way it ALWAYS is. She said she would be willing to test for T3 and T4.

No other doctor has ever done more than give me a lot of well-meaning crap about how low normal TSH is not a problem.

I have my fingers crossed that SOMETHING will turn up.

Edith
Well, Edith, that's great. But you could of gone to Online Lab Tests: blood work, blood testing and laboratory tests and gotten Thyroid profile II yourself (TSH, FT3, FT4) and had it in hand by now. Oh, and give coupon code: 12345 when checking out for a discount. They send you to a lab near YOU and report back to you.

If you're on any birth control or other hormones, you need Free T's, not Total T's, and your doc might want to do a TPO antibodies too (you can get that above at the link too).

Pam
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Old 07-11-2008, 06:32 AM   #2143
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Mandy - When I first started getting treatment, I was incredibly late with my period the first month. I asked my doc about it, and he said it was normal because the meds were messing with my hormones.
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Old 07-11-2008, 06:39 AM   #2144
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when i started thyroid treatment i didnt realize i was feeling better till i realized i wasnt feeling bad! that was in a month.. it continued to get better after that.
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Old 07-11-2008, 06:46 AM   #2145
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New Lab Results

My latest labs:

Free T4: 1.54 (range 0.61-1.76)
TSH: 0.004 (range 0.350-5.500)
Cortisol: 2.6 (range 3.1-22.4)
TPO: 87 (range 0-34)
Antithyroglobulin Ab: 25 (range 0-40)
Free T3: 3.5 (range 2.3-4.2)

Doc's comments: Adrenals low & stressed. Will address treatment at next appointment. Free T3 should improve with additional Armour.

I am now taking 112 mcg of Levoxyl and 90 mg Armour daily. I feel okay....not awesone or great but okay and a million times better than this time last year. I still seem to get tired too easily and seem to need extra time to recover from strenuous activities. Very happy and pleased with treatment from this doc. He's a keeper.

The cortisol test was a blood test done at approx. 11:30 or 12:00. I have heard that the 24 hr. saliva test is better, but mine still came in low, so I'm not gonna stress about which test he used.

My question: Should I call and ask to be treated now for the low cortisol or wait until next appointment? I understand very little about adrenals/cortisol levels. Time to start researching.
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Old 07-11-2008, 06:47 AM   #2146
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when i started thyroid treatment i didnt realize i was feeling better till i realized i wasnt feeling bad! that was in a month.. it continued to get better after that.
I was the same except it was longer than a month before I started feeling better.
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Old 07-11-2008, 07:46 AM   #2147
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Beth, that cortisol is pretty low, even for midday. I'm on bio-identical hydrocortisone for hypoadrenal. My cortisol is pretty high in the morning, but plummets by midmorning and I'm not functional the rest of the day (without the HC). I think all docs (even the good ones) have different views on testing adrenals. My doc doesn't think the 24 hr saliva is accurate and prefers to use a.m. cortisol, along with how you feel throughout the day, sleeping patterns, lifestyle, etc. to diagnose. I had to give him alot of detail about how I felt, what time I would feel the ups and downs, what kind of activity I was doing when I felt them, what time I would wake up during the night, how long I was awake, my stress levels at home and at work, etc. After 2 yrs on HC, I finally slept through an entire night for the first time in 15-20 years! An added plus, the HC is helping decrease my antibody count (from around 3000 to the 900's).

Is there a particular reason he has you on synthetic t4 and armour? Your ft4 is at about 81% of the range, and the ft3 at 63%. I would probably feel better with those numbers reversed, which probably would happen on armour only. Just a random thought, and I may be way off track.

Mandy, I think everyone will feel improvement on a different schedule, depending on where they are when they start treatment. My doc told me, with my level of damage, I could expect to start feeling not so bad in about 2 years (he was right) and human in 4 yrs...great a few years after that. Like Ileen, I don't really notice feeling better, but I suddenly realize I don't feel so bad. I ran the vacuum long enough to do a full room last weekend...I know that sounds silly, but 2 yrs ago, I was too weak to do more than a 3 foot area, and if I pushed through and finished a room, I was in bed and worthless for 2 days. Those are the things that let you know you're getting better...you will start to do things that were hard to manage before without thinking about it, and have this "wow" moment when you finish.
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Old 07-11-2008, 09:28 AM   #2148
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Got Bloodwork Back - Can someone help me interpret?

Okay....got my results back from my bloodwork on Monday.

TSH : 6.35
FT3 - 374 (Range 230 - 420)
FT4 - .9 (Range .58 - 1.64)
Thyroid Antibodies - 160 (Range <35)
Anti Thyroid Globulin - 41 (Range <20)

She also did a Rheumatoid Arthritis test (every female on my mother's side has this and it usually starts in their late 20's to early 30's...I just turned 42 yesterday)

Rheumatoid - 30 (Range is <20)

My Cholesterol was as follows

Total - 238
Trigylcerides - 94
HDL - 69
LDL - 150

(This was MUCH better than the last one done a year ago)
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Old 07-11-2008, 09:55 AM   #2149
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Originally Posted by Lilgrnize View Post
Is there a particular reason he has you on synthetic t4 and armour? Your ft4 is at about 81% of the range, and the ft3 at 63%. I would probably feel better with those numbers reversed, which probably would happen on armour only. Just a random thought, and I may be way off track.
Thanks for the input about the adrenal stuff. I've read so much contradictary stuff about it from what I would call reputable sources that I'm kinda at a loss as to know what is the right path to take.

About the Levoxyl and Armour combo: I asked my doc about it, and he said that in his and his patients' experience that was usually what worked best. He said that in order to get most patients feeling better that Armour alone didn't usually work because in order to get the T4 levels where they need to be that many times patients were getting too much T3 with Armour alone. He does have some patients who do take Armour only, and he is not against it if I want to try it since he wants what is best for me. I know that I am feeling so, so, so much better than before that I feel no need to tinker with it since it is apparently working for me. I've read in a couple other places that this combo therapy works well for many patients. I'll ask him to change it if I ever feel that it is no longer the best plan for me.

Oh, yeah. I need to add that I am not optimized yet. I have only been getting treatment since the end of November. We are still slowly amping up my meds. I just know that I feel worlds better than I did this time last year. I was sooooo miserable before. I still am not sure what normal feels like. I can't even remember what that's like, but I'm much closer to it than I was before going to this doc.

Thanks again for your input. There is so much to learn.
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Old 07-11-2008, 05:15 PM   #2150
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Quote:
Originally Posted by Beth1121 View Post
My latest labs:

Free T4: 1.54 (range 0.61-1.76)
TSH: 0.004 (range 0.350-5.500)
Cortisol: 2.6 (range 3.1-22.4)
TPO: 87 (range 0-34)
Antithyroglobulin Ab: 25 (range 0-40)
Free T3: 3.5 (range 2.3-4.2)

Doc's comments: Adrenals low & stressed. Will address treatment at next appointment. Free T3 should improve with additional Armour.

I am now taking 112 mcg of Levoxyl and 90 mg Armour daily. I feel okay....not awesone or great but okay and a million times better than this time last year. I still seem to get tired too easily and seem to need extra time to recover from strenuous activities. Very happy and pleased with treatment from this doc. He's a keeper.

The cortisol test was a blood test done at approx. 11:30 or 12:00. I have heard that the 24 hr. saliva test is better, but mine still came in low, so I'm not gonna stress about which test he used.

My question: Should I call and ask to be treated now for the low cortisol or wait until next appointment? I understand very little about adrenals/cortisol levels. Time to start researching.
I would want the 4x in one day salivary testing. And also tested with it: estradiol and progesterone. I think having that huge amount and lab with T4 isn't helping your adrenals. Much too high and unbalanced to the T3. Normal human thyroid would have the FT4 at about midway of it's lab range and your FT3 slightly HIGHER...having labs in the range yours are would stress MY adrenals too.

Pam
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Old 07-11-2008, 05:16 PM   #2151
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Okay....got my results back from my bloodwork on Monday.

TSH : 6.35
FT3 - 374 (Range 230 - 420)
FT4 - .9 (Range .58 - 1.64)
Thyroid Antibodies - 160 (Range <35)
Anti Thyroid Globulin - 41 (Range <20)

She also did a Rheumatoid Arthritis test (every female on my mother's side has this and it usually starts in their late 20's to early 30's...I just turned 42 yesterday)

Rheumatoid - 30 (Range is <20)

My Cholesterol was as follows

Total - 238
Trigylcerides - 94
HDL - 69
LDL - 150

(This was MUCH better than the last one done a year ago)
Include your hormones and dosage please?

Pam
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Old 07-11-2008, 06:12 PM   #2152
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Include your hormones and dosage please?

Pam
I'm taking Armour at 60 mg.
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Old 07-11-2008, 07:19 PM   #2153
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I would want the 4x in one day salivary testing. And also tested with it: estradiol and progesterone. I think having that huge amount and lab with T4 isn't helping your adrenals. Much too high and unbalanced to the T3. Normal human thyroid would have the FT4 at about midway of it's lab range and your FT3 slightly HIGHER...having labs in the range yours are would stress MY adrenals too.

Pam

Now I'm really confused. Reason being that I feel so much better than before treatment. I know I'm not there yet and have suspected adrenal fatigue all along as an additional issue. Oh, my, I'm not quite sure how to proceed from here.

I'll ask about the testing that you suggested. Do you think the T4 is too high due to my combo dosing with Levoxyl and Armour? I don't think my doc will be upset at all about me questioning him as long as I can explain how I am coming up with my concerns. He is very serious about thyroid research and very open to what works best for his patients.

Also, if I end up feeling really good, do the labs even mean anything?
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Old 07-12-2008, 05:42 AM   #2154
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I'm taking Armour at 60 mg.
If you aren't splitting that, I'd start, and you've got a long way to go....I'd say time for an increase.

Pam
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Old 07-12-2008, 05:47 AM   #2155
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Now I'm really confused. Reason being that I feel so much bett