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#2101 | |
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Junior LCF Member
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Hi, Pam,
I am in Rochester, NY. If there's a doctor in my area who "gets it," great! But first, I would like to know, if possible, any available links to medical articles, information on studies, or anything else in the scientific literature that I can take to my doctor. I want to show her out of her own field what's going on. Since I myself am just beginning to learn about thyroid issues, I am not willing to diss my doctor just yet. I have found her willing to consider things if I can distill them down, which I can, since I have professional experience in editing and proofreading. I would like to send her a letter in advance of my appointment. After that, if she is unwilling to do more than what convention dictates, then I will ask for a referral to another doctor. Thanks for advocating. I am learning how important that is; I was diagnosed a year and a half ago with sleep apnea, and after a few different masks and a trip to the sleep clinic where they told me that a particular concern was unfounded, I am still nodding off in the daytime. I apparently am getting enough sleep so that I now have energy enough to feel ticked about various health issues, including my thyroid, so I am looking to you to help me join the revolution. Thanks, Edith Quote:
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#2102 | |
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Junior LCF Member
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THANK YOU, IT WENT WELL!!!!
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Dr. Adonis Maiquez of Miami, Florida, spent 1+1/2 hours with me going through three years of test results. He actually talked to me about every one of them, he asked questions and he LISTENED, he seemed to REALLY care. He told me I should never have suffered that long. He believes I'm sub-clinical hypothyroid, progesterone and estradiol deficient, however, wants new hormone tests taken on DAY 21 of the luteal phase to get a better determination of whats going on. He's testing progesterone, estradiol, testosterone(free + total), DHEA, FSH and LH all via blood and Cortisol via saliva. I already had the FT3, FT4 and TPO tests done, so we're using those results, which, according to him, are the only tests that matter for the thyroid. I left there with an RX for Armour .25 grain for 15 days and .50 grain for 30 days. He was happy I had done my homework and I was able to talk with him about what I had learned. The office visit was $150 and the tests were $350. I cried tears of joy during the visit and when I left again. I can't find ALL the words needed to describe how I feel at this very moment Pam, so I'll just list one; GRATITUDE!!!! |
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#2103 | |
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MAJOR LCF POSTER!
Join Date: Jan 2007
Location: MD
Posts: 1,642
Gallery: PalmTreeGal
Stats: 181/175.6/120
WOE: Atkins Induction
Start Date: 9/1/08
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#2104 |
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Junior LCF Member
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Pam,
Below is a letter I just sent to my doctor. It's long, but the point of it is to show that a) I am reasonable and thoughtful, and b) I want something done. The more I think about it, the more I am convinced that thyroid levels are an issue that definitely needs to be addressed. ![]() In advance of my appointment with you on July 9, 2008 at 4:30 p.m., I want to let you know my perspective on the issues I assume we will be discussing: a) whether or not I want to take anti-depressants for clinical depression, and b) what the results of my recent blood test are. Because we are both busy, I hope this will eliminate the need for a lot of preparatory or explanatory conversation in the office. First, regarding anti-depressants: I have no problem with taking an anti-depressant for a short amount of time if it is seen as a holding action while the cause or causes of my clinical depression are investigated. I believe there are several contributing factors: stress from major changes at work, stress from the death of my father, effects of sleep apnea that have yet (I feel) to be properly treated, and possible effects from inadequate thyroid hormone levels. The first two contributing factors, stress from job changes and stress from processing the recent event of my father's death, are not so strong as they were. I don't see them as big problems now. Work has recently become much less stressful, probably due to the fact that it is now vacation season and the pace at City Hall has slowed down. Dealing with my father's death still produces moment of grief, and I expect it will for some time to come. However, I have derived an immense amount of comfort and encouragement from my particular spiritual community, and as time goes by, grief is more and more replaced by hope. My perception at this point is that a lot of the way I feel is due to problems with the way my sleep apnea is being treated. I hope to get some things seriously sorted out in an appointment at the Unity Sleep Center on August 4. Second, that leaves the thyroid test you ordered. You said a while ago that the test looks at the levels of TSH, thyroid stimulating hormone. As I understand this, TSH is what stimulates the thyroid gland to produce other types of thyroid hormones. It seems to me that, for the past twenty years, this particular test has always, in my case, come back showing me in the "low-normal" range. I am convinced that such a reading does not mean I have the proper levels of the thyroid hormones that are supposedly stimulated by TSH. If things like feelings of depression, fatigue, and dry hair and skin (all of which I have) can be the result of inadequate amounts of thyroid hormones that are not (and cannot be) detected by a TSH test, then I would like to be referred to a thyroid specialist who can test for levels of those hormones. To sum up, until sleep apnea and thyroid issues get sorted out, it makes sense for me to take an anti-depressant. I hope that the information here is useful for both of us. I also hope you have an enjoyable Fourth of July weekend. |
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#2105 |
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Junior LCF Member
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Hey Mandy.............thanks for the kind words, it's been rough. The new doc specializes in anti-aging and bio-identical hormones and doesn't take my insurance. At first I was hesitant to go that route because the ones I called were VERY expensive, I was quoted up to $650 for the consultation fee and another $500-1500 for blood work. Pam didn't give up and ultimately referred me to him, he's located in Miami, about 1hour away. Stay the path and don't let them make you think you're crazy!!! Helen
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#2106 | |
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Way too much time on my hands!
Join Date: Sep 2003
Location: Southeastern Coastal SC
Posts: 11,190
Gallery: AllieCat0817
Stats: 213.5/130-135/140
WOE: Atkins Maintenance
Start Date: 5/23/03
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Go to Natural Health Information Articles and Health Newsletter by Dr. Joseph Mercola and search 'hypothyroid'.... |
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#2107 | |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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Our bf couple lives in Sharon, PA (and if any of you love chocolate, visit the Daffin's chocolate website Tourism Information for Daffin's Chocolate Candies - The World's Largest Candy Store ) and DH's family near Hubbard, Vienna and out towards Warren, OH. We come back there a couple of times a year. Pam
__________________
So many fireworks. So little time. "The thyroid is nothing to mess with" ... Sunset |
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#2108 | |
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Senior LCF Member
Join Date: Nov 2007
Location: Bardstown KY
Posts: 974
Blog Entries: 4
Gallery: CrzyCatLady
Stats: 244/183/134
WOE: Atkins
Start Date: 10/29/07
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And Antones had the best chicken parm. I'm thinking about going up for the Canfield Fair this year. That fair makes the KY State fair look so small. |
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#2109 |
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Senior LCF Member
Join Date: Nov 2007
Location: Bardstown KY
Posts: 974
Blog Entries: 4
Gallery: CrzyCatLady
Stats: 244/183/134
WOE: Atkins
Start Date: 10/29/07
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I have an appointment with my GP on Monday and they did make me an appointment with an endo for August. We'll see what happens Monday. I was looking online last night and have thought that possibly some of my PCOS symptoms mask others. Like dry skin, my PCOS makes me oily.
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#2110 |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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What days are the Canfield Fair?
Do you remember Idora Park? ![]() Pam |
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#2111 |
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Junior LCF Member
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Pam. Can you please help me out???? Or anybody? I have posted before about my low FT4 ( 0.71) normal range 0.82 is the low end. My TSH was also on the low end of the lab 0.98 So anyways I seen an endo. who is convinced my thyroid is perfectly fine and wanted to run an FT4 equilibrium dialysis test because he said it is more accurate than the FT4, only after I have went off my levo. for two months so he can get an accurate reading.
He will run an FT4 eq. dialysis, FT3, and TSH. I have gotten the results from all of my antibody tests back and they are all normal. I DO NOT WANT TO GO OFF MY MEDICATION!!!! I feel much better on it. What would cause someone to have a low FT4 without having Hashimotos? Is this common? Is it just regular hypothyroidism? I have mentioned several times how I have read several articles on secondary hypo. caused by a pituitary dysfunction. A TSH below 1.0 and a low FT4 are indicative of Secondary Hypo. but my Endo. says NO, my TSH is still within normal range at 0.98. BUT ITS LOW!! AND MY FT4 is low also. Shouldnt my TSH be higher??? Any suggestions here, should I follow his advice and go off the levo. for 2 mos and go in and get my TSH, FT4 equilibrium dialysis, FT3 retested? or should i go back to my regular doctor who perscribed me the levo. based on a low FT4 and speak to him? THANKS YOU SO MUCH I APPRECIATE ANY ADVICE YOU CAN GIVE ME. |
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#2112 | |
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Senior LCF Member
Join Date: Nov 2007
Location: Bardstown KY
Posts: 974
Blog Entries: 4
Gallery: CrzyCatLady
Stats: 244/183/134
WOE: Atkins
Start Date: 10/29/07
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The fair is Aug 27 - labor day. My parents never took us to Idora Park. By the time we were old enough to go ourselves it was closed. But everyone always talked about how great it was. We would drive out there to check out the old roller coaster. I went to my GP today. Strike one! I asked for Armour. They told me there was a problem with the FDA and Armour. She kept pushing the Synthroid and I kept saying no. I ended up with a script for Cytomel. Is it even worth filling? I have an appointment with an endo in the beginning of August. I know they have given Armour since that's where Julia goes and that's what they gave her. Then they gave me another script for follow up blood work. TSH and FT4 and T4. I asked about the FT3 but no luck there. Oh well I needed to switch docs anyway. She was 45 min away from me and it was getting a little silly to drive that far. I'm going to make an appointment with my parents doc here in town. He's the one that put my Mom on Armour when she asked for it. I hope the docs listen better than today. This could get quite frustrating. ![]()
__________________
Jenn ![]() "Explain to me an organizational system where a tray of silverware on a couch is valid." Sheldon - Big Bang Theory 61lbs gone forever!! 48lbs to go! ![]() ![]() Bringing Sexy Back - Mid Year Challenge! Team #5
50/6/44 |
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#2113 |
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Way too much time on my hands!
Join Date: Sep 2003
Location: Southeastern Coastal SC
Posts: 11,190
Gallery: AllieCat0817
Stats: 213.5/130-135/140
WOE: Atkins Maintenance
Start Date: 5/23/03
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Certain dosages of Armour are on backorder because the manufacturer is working through some issues (details are somewhere in this thread).
But you can ask for Westhroid or Naturethroid-- same thing as Armour. |
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#2115 |
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MAJOR LCF POSTER!
Join Date: Jan 2007
Location: MD
Posts: 1,642
Gallery: PalmTreeGal
Stats: 181/175.6/120
WOE: Atkins Induction
Start Date: 9/1/08
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So now I've been on Armour a week, just went up from 30 to 60 mg. I'm taking it sublingually, half in the AM and half around lunchtime. Those of you who have been taking thyroid meds for a while, how long did it take to see a change? I'm not noticing anything yet. In fact I feel pretty crummy, from stress and weaning off Cymbalta.
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#2116 |
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Junior LCF Member
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Nonstickpam- Please answer
Hello,
I am Berniece I wanted to ask a few questions concerning my thyroid. I am currently taking 15mg of armour thyroid (2 months now) I am not seeing too much results. I am still cold and have brittle nails /zero libido/ and very thin hair. I am posting my test results, can you please help me understand them? TSH is 1.5 uIU/ml Units, T3 free serum 2.5pg/mL, T4 free direct 1.06 The range for TSH is 0.350-5.500, range for T3 is 2.3-4.2, range for T4 is 0.61-1.76. My doctor prescribed the 15mg of armour thyroid because my T3 was on the low range. Please help me understand my results. It seems that my TSH is very low. Thank you NonstickPam for your help. Berniece |
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#2117 | |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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Quote:
Up to you. And she shouldn't offer T3 if you aren't tested for it..that's just silly, like giving a diabetic insulin without testing BG. I'd switch to the other doc too!! Thanks for the info about the fair. Pam |
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#2118 | |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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Quote:
Up to you...you can seek out a doctor who works WITH you ... after all, most endo's don't treat a patient until the TSH is a certain number (see?? TSH worshipping). I'd stay on the low dose T4 synthetic, and re test in six months myself. Pam |
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#2119 | |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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Quote:
I certainly wouldn't move up from 1/2 to one grain in a WEEK. The HALF LIFE of T4 is six WEEKS...so if you move up too quickly, in about another three weeks, you'll have some very UNwanted hyPER symptoms. Go slow. Pam |
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#2120 | |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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Quote:
Pam Pam |
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#2121 | |
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Thyroid Patient Advocate
Join Date: Nov 2002
Location: NE Indiana
Posts: 11,660
Gallery: nonstickpam107
Stats: 230/116/120 (BF<26%)
WOE: Started w/Atkins/Now BFFM
Start Date: Nov. 23 2000
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Quote:
If you haven't had a TPO antibodies done, request one soon.,.you need to know if you have Hashimoto's...and if you do...then you need to be replaced with enough thyroid hormone to balance you. Pam Pam |
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#2122 |
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Junior LCF Member
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Thank you Pam
Hi Pam,
Thank you for your reply. I am going to get tested soon and i am hoping my doctor will up my med to 30mg. I am being patient with him because he is the first doctor who is willing to let me take med. I have know for a while that I needed meds because of my symptoms but all of my previous doctors said I did not need meds. I have had a hell of a time losing weight too. My ideal weight is 110, no matter what i do it is very hard for me. I carry all of my weight in my tummy. I am at 135. I was ssing and lost 18lbs but gained 5 back. Is it possible for me to lose the weight once i am on the right dose of armour? Thank you. Berniece |
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#2123 |
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Junior LCF Member
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Thank you so much for replying to my post Pam. I do have one question, if I would happen to have a pituitary problem, would it be bad that I have never had my FT3 checked? Is it true that if you have a low FT4 and a low FT3 it is probably pit. involvement? Is it bad then to keep taking the Levo. without having that checked out, and is it possible to get it tested now that I have been on the Levo. for 6 weeks? Would that skew or alter the real reading I would have gotten off medication. I have read FT4 medication supresses not only TSH but FT3 also. So, what if my FT3 was low and I started levo. wouldnt it lower it even more? I have also read that if your FT4 and FT3 are both low there may be hypoadrenal issues. And if that is the case shouldnt one be completely off meds. to get an accurate lab reading as to make sure that is not the case, I have read it is not good to take T4 medication if you have adrenal issues that have not been addressed. Is that true? HUM, I'm a little confused.
Thanks for all you help. I am learning so much!!!!!!!!!!!!!!!!!!!!!!! |
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