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Old 04-04-2014, 02:10 PM   #1
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Low-body temperature, fatigue & more...

I'm one of those that have been feeling tired and sick for years now but always get the "healthy as a horse" blood test results and never been diagnosed with anything (other than "unexplained fatigue").

I was so certain I had a thyroid problem because I had almost all of the symptoms, including the main signature of low-body temperature.

I've been tested for both thyroid disorders and diabetes and the results were normal.

Anyway since we have a lot of smart people here who think a lot about health I thought it wouldn't hurt to share my symptoms if anyone might recognize a pattern. I'm fully aware that you can't get a diagnose on a message board, I'm just looking for ideas on what to ask a doctor for or what type of specialist I might want to see.

- Fatigue. It's a cycle of few weeks bad and few weeks moderate. Always somewhat there.

- Dry eyes, dry mouth and dry skin. It's worst in the morning and sometimes when I wake up I'm really irritated in the eyes and they feel almost like a piece of paper. In just couple of years my skin went from being on the oily side to being very dry and flaky.

- Low body-temperature. On average it's 36.3 Celsius / 97.3 Fahrenheit.

- Short-term memory problems and difficulty focusing. Although I was diagnosed with ADD years ago this is something that got much worse really fast in couple of years. I had a brain scan which came out fine.

- Constipation and irregular bowel movements.

- Increased sensitivity to cold, especially in the feet.

- Frequent urination


- Before going low-carb I had been on a road of increased appetite and weight gain. I felt this change around the same time my other symptoms started. I also had blood sugar crashes more frequently.

- Hair getting thinner. Although I'm a man, I have no relatives on both sides with male-pattern baldness. Also the thinning started about the same time the other symptoms showed up. It really stands out that this is happening to me.

So yeah just throwing it out there. Please share your thoughts if you have any

Last edited by Mr_Geiri; 04-04-2014 at 02:12 PM..
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Old 04-04-2014, 05:22 PM   #2
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I have hypothyroidism (with Graves antibodies) and your symptoms sure sound like thyroid to me. Did your doctor do a full thyroid panel or just TSH? Some doctors see it's in the normal range and then give you the side eye like you're trying to use it as an excuse. I think if you asked most people that have hypothyroidism, they would tell you that normal range is hog wash.

I would go see an Endocrinologist if I were you.
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Old 04-04-2014, 06:46 PM   #3
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He did test for T3 and T4. I was really disappointed I was so sure I had this.

I've heard before though that it's possible to have it despite those numbers being normal.
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Old 04-04-2014, 09:04 PM   #4
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Yes, considering all your symptoms, I would see an Endocrinologist. I hope it's easier finding good thyroid doctors there than here.
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Old 04-04-2014, 09:23 PM   #5
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Alright I'll do that. I found a discussion on this on a Icelandic forum and a lot of people are recommending the same one and he happens to operate in my neighborhood so I'll make an appointment

And thanx Google translate for helping me figure out what these specialists are called in Icelandic
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Old 04-04-2014, 10:38 PM   #6
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I have never heard of frequent urination being a thyroid symptom, but other than that they are CLASSIC.

Were the tests FREE t3 and t4? Did they test reverse t3? The exact tests can make quite a difference.
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Old 04-05-2014, 06:20 AM   #7
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I agree GME about the frequent urination, that sounds more like prostrate issues, but a good Endo doc should be able to sort it out.
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Old 04-05-2014, 11:11 AM   #8
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My regular doctor has treated me for hypothyroidism (started out as hyper) since I first starting having symptoms seven years ago. My resting heart rate shot up to 120 bpm, I was shaky, losing weight like crazy (I thought I had cancer), and I developed an intolerance to exercise. My TSH was normal, but my doctor noted my symptoms and said, "if it has stripes it must be a zebra". He tested my antibodies and they were through the roof. They were attacking my thyroid causing it to spill all my hormones into my bloodstream which caused me to go hyper. He monitored me weekly and, sure enough, after my thyroid spilled its guts, it stopped working altogether and I became hypothyroid (TSH was 26). So, he prescribed Synthroid 50mcg and I've been on it for the past seven years with no issues. I've never seen an endocrinologist since my family doctor was able to diagnose and treat me. Please have your antibodies checked.
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Old 04-05-2014, 11:01 PM   #9
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Geiri: how about low T? (Testosterone)? Men go thru a "change" sometimes like women do, but much more gradual.
Do you suffer from depression/anxiety/undue stress?
However, it is true insofar as what everyone has said; you can have thyroid issues without it being noted on some blood tests.
Bottom line is, only you can take care of you. Keep digging until you get a satisfactory answer that sounds correct to you.
I'd also recommend an endocrinologist.
I'd check out our thyroid support group here....they have a LOT of info, as well as numbers of labs you may find useful!
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Old 04-06-2014, 04:46 PM   #10
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My sex drive has not changed so I doubt very much it's the testosterone. But it has never been tested.

Plus I'm only 28 Relatively young.

Quote:
Originally Posted by GME View Post
Were the tests FREE t3 and t4? Did they test reverse t3? The exact tests can make quite a difference.
Yes free T3 and T4. I don't remember there being anything about reverse T3 though.

I started checking my body temperature again and have done it two days in a row and plan to do it for a week. Both days it was only 35.8 / 96.4 Looks like the 5 day average home testing might be even lower this time. Let's see.

Last edited by Mr_Geiri; 04-06-2014 at 04:48 PM..
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Old 04-10-2014, 10:26 AM   #11
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When I was finally diagnosed with thyroid disease, my body temperature was 95.7 F. My symptoms were similar to yours and quite severe, though they were so gradual in manifesting that I didn't realize just how bad they were. I waited too long, and now have some (seemingly) permanent cognition/memory/aphasia issues which I attribute to the long-term low body temperature. I used to be smart; now I'm just average.

My TSH was 6.66, which is nowhere near as bad as some, but my symptoms were awful, so the labs definitely don't always paint the whole picture.

I've been treated for the last 2 years now (currently on 75 mcg of Synthroid) and I'm doing fairly well, though my body temperature remains low (usually around 97-98 F), but I fear I'll never have full use of my brain again.

Please do see an Endo, and even if it's not thyroid, it could be some other endocrine issue. You may need to be aggressive to get good treatment. That seems to be the norm here anyway. Best of luck!
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Old 04-10-2014, 10:54 AM   #12
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My average of the last 5 days was 96.8 F so yeah time to see one. Thanx for sharing.

And yeah I know that in general you have to be a little pushy. I think specialists tend to be a little better though than the regular doctors who only want to send you home in 5 minutes with painkillers or sleeping pills.
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