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Old 01-04-2013, 04:54 PM   #1
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It feels like diabetes but it isn't; what's going on?

Hello everyone. I just registered on the site today and consider this to be phase 2 in finding out what is wrong with me. I spent some time on another forum and someone on that forum recommended this forum to me, so I’ll continue here. I’m on a mission to find out why I have symptoms which feel like diabetes. I have essentially made myself into a science experiment for this mission; therefore, my post will sound more like someone’s medical file than a typical forum post. I am determined to find out the why, how, and what that is behind my symptoms; perhaps some folks here can provide some clues.

Phase 1 of my mission consisted of finding out if I was diabetic or pre-diabetic. I went to the health clinic, had a lot of tests done, and found that I’m neither diabetic nor pre-diabetic. A short summary of my lab tests, as done in October 2012:

1. Urinalysis: Normal except that I had a urinary tract infection. I took medication and the infection went away.
2. Non-fasting random glucose test: 107 mg/dl.
3. A1C test: 5.2.
4. CBC w/DIFF PLATELET: Normal here.
5. CMP (Comprehensive Metabolic Panel): Normal.
6. TSH+FREE T4: TSH = 1.72; T4=1.44. Normal.
7. H.PYLORI IGG: <0.9. Normal.

I also purchased a blood glucose home monitor and tested my blood glucose for 2 days after eating high-carbohydrate meals and everything appeared normal.

Day 1 Data Set (after 121g carbs):
Time----|---BG (mg/dL)
11:50-------86 (fasting)
12:38-------131 (felt odd)
13:08-------95 (felt good)
13:38-------108 (felt good)
14:08-------109 (felt good)
14:38-------95 (felt good)
15:08-------74 (felt terrible)
16:21-------70 (felt terrible)

Day 2 Data Set (after 124g carbs):
9:26:00 AM --> 91mg/dL (fasting)
Ate breakfast (no carbs)
Time elapsed
3:11:00 PM --> ate lunch (the 124g carb meal)
3:41:00 PM --> 147 mg/dL (felt terrible)
4:11:00 PM --> 114 mg/dL (felt terrible)
4:41:00 PM --> 104 mg/dL (felt good)
5:11:00 PM --> 110 mg/dL (felt good)
5:41:00 PM --> 95 mg/dL (felt good)
6:11:00 PM --> 70 mg/dL (felt terrible)
6:41:00 PM --> 89 mg/dL (felt terrible)

The pure numbers look normal and healthy, it would seem. However, I have symptoms that sound a lot like diabetes. I told the doctor about my symptoms, which are as follows:
• Depression
• Weight Gain
• In the past two years, gained more fat in my abdomen
• Brain Fog
• Memory loss
• Short-term and long-term memory dysfunction
• Reduced cognitive function
• Chronic fatigue
• Hypoglycemia symptoms
• Slow healing of bruises/wounds/cuts/nicks/scrapes/etc
• Crashing after physical activity (10+ minutes cardio)
• Irritability, poor mood and crashing after eating high amounts of sugary foods
• Itching all over my body and especially nose, vaginal and anal areas
• Bloating, water retention, and increased flatulence
• Acid reflux (comes and goes)
• Rash under breasts for years
• Blurred vision/decreased vision in past 3-4 years
• Yellowish/darkened color on my skin in armpit area and inner thigh area (Acanthosis nigricans?)
• New hair growth in inappropriate areas such as chin and areas near but outside of pubic region (within a 5 inch radius of the pubic region).
• Lack of motivation since age 22. I used to be a very motivated, ambitious, and driven person. I graduated from college prior to age 22.

As I have found out during the past two months via experimentation with diet, these symptoms greatly reduce when I am low-carbing and greatly increase when I eat a diet high in carbs. Most of my life I’ve been on a high-carb diet because I couldn’t imagine eating any differently. I’ve come a long way in a short time.

The doctor told me that I was neither diabetic nor pre-diabetic, and therefore had a clean bill of health and nothing to worry about. Ok, so I should just live with my symptoms then? I should just accept them? No, I don’t think so.

Medications:
• Depo Provera (from age 21 to 24, then again during age 27 for about 6 months)
• IUD (age 24-26)
• Lo Loestrin Fe (birth control pills) currently
• Prozac (been on and off of this since age 22 due to depression; the need for it increases when on birth control and mostly subsides when off birth control)

Diseases Ruled Out Via Previous Tests:
• Diabetes
• Pre-diabetes
• Hypo/hyperthyroid

Obviously I need to have more tests done. One test I would like to have done, but am not sure if I can order or have done, is a 3-4 hour long insulin and blood glucose test which measures my insulin and glucose levels at the same time either continuously for 3-4 hours or in 30 minute intervals for 3-4 hours. Reviewing my insulin levels and calculating my ratios of insulin to BG would tell me whether or not I am hyperinsulinemic.

The goal of phase 2 is to rule out more possible diseases via testing and to find out whether I am hyperinsulinemic via actual lab tests done with insulin, C-peptide, and glucose measurements.

It is extremely frustrating to have such a long list of very real and uncomfortable symptoms which present so strongly, while all my lab numbers seem to indicate that I’m perfectly healthy. What is going on here? Perhaps someone out there who reads this will have a suggestion.

You might ask, “But if you find relief from those symptoms while doing low-carb, why do you care about anything else? Just do low carb and be done with it!” My answer to that would be that I want to know what is going on with my body, and why, and how I got here. Perhaps I have a condition that needs to be treated; perhaps I am “on the path” to diabetes—it does run in my family. I am determined to get to the bottom of this. Any input is appreciated.

Thanks.

Last edited by Seeking; 01-04-2013 at 04:58 PM..
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Old 01-04-2013, 05:04 PM   #2
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PCOS is fairly common and has a lot of the symptoms you are describing: Polycystic ovary syndrome - PubMed Health
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Old 01-04-2013, 05:08 PM   #3
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Your symptoms sound alot like mine in my mid to late 40's. My bloodwork at the doctor was always perfect. I went in for bio-identical hormone work and found that I did, indeed have a Thyroid issue. I also had very low vitamin B-12 and D3 levels. Just the low levels of B and D can lead to a host of problems.

You may have intolerances to gluten. The symtoms tend to go away when we low carb because we eliminate bread and starches.

Also, a few of the symptoms that you mentioned can be due to yeast overgrowth. Again, when you quit the sugar and yeasty foods you help kill the yeast.

Last edited by Erin57; 01-04-2013 at 05:10 PM..
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Old 01-04-2013, 09:46 PM   #4
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You haven't had the proper thyroid testing to rule out thyroid disease either. I never had a lab range out of the "normal" lab ranges and ended up having a thyroidectomy-it depends where you are in the range and your symptoms. You need a free T3, free T4, TPO Antibodies, Vitamin D and ferritin testing to determine thyroid disease. Check out a website called stopthethyroidmadness for great info.
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Old 01-05-2013, 04:54 AM   #5
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Agree with lisabinil...you have not ruled out hypothyroidism. The site she gives has given many the information they need to finally find a doctor who will treat.

Your list of symptoms are almost all the same as mine when I was diagnosed with Hashimoto's hypo...and with good diet (lowcarb of course), weightloss, exercise and treated correctly by a thyroid doctor...well, smooth sailing now!
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Old 01-05-2013, 08:57 AM   #6
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Quote:
Originally Posted by Dottie View Post
PCOS is fairly common and has a lot of the symptoms you are describing: Polycystic ovary syndrome - PubMed Health
Thank you for your reply. I am uninsured and do not have a lot of money; I have read that doing a proper PCOS test would involve a transvaginal ultrasound. An ultrasound costs a lot of money and I'm not sure how I can go about having one done as an uninsured person. What do you think?

Last edited by Seeking; 01-05-2013 at 08:59 AM..
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Old 01-05-2013, 09:09 AM   #7
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Quote:
Originally Posted by Erin57 View Post
Your symptoms sound alot like mine in my mid to late 40's. My bloodwork at the doctor was always perfect.
Did this perfect bloodwork include normal-range TSH and T4 numbers?

Quote:
Originally Posted by Erin57 View Post
I went in for bio-identical hormone work and found that I did, indeed have a Thyroid issue.
What tests were run that showed you had a thyroid issue?

Quote:
Originally Posted by Erin57 View Post
I also had very low vitamin B-12 and D3 levels. Just the low levels of B and D can lead to a host of problems.
I should probably do a nutrition panel then, too.

Quote:
Originally Posted by Erin57 View Post
You may have intolerances to gluten. The symtoms tend to go away when we low carb because we eliminate bread and starches.
Perhaps I do. However, there is currently no test out there that is accurate enough (that I am aware of) to rule out a gluten sensitivity. In spite of this, I am considering doing a test called "Gliadin Antibody Profile (IgG, IgA)." Is there any other test out there to test for gluten sensitivity that might be more accurate than this test?

Quote:
Originally Posted by Erin57 View Post
Also, a few of the symptoms that you mentioned can be due to yeast overgrowth. Again, when you quit the sugar and yeasty foods you help kill the yeast.
Yep. I have read about this as well.

Quote:
Originally Posted by lisabinil View Post
You haven't had the proper thyroid testing to rule out thyroid disease either. I never had a lab range out of the "normal" lab ranges and ended up having a thyroidectomy-it depends where you are in the range and your symptoms. You need a free T3, free T4, TPO Antibodies, Vitamin D and ferritin testing to determine thyroid disease. Check out a website called stopthethyroidmadness for great info.
I will; thank you!

Quote:
Originally Posted by Lokarbiebarbie View Post
Agree with lisabinil...you have not ruled out hypothyroidism. The site she gives has given many the information they need to finally find a doctor who will treat.
Excellent. I will most definitely check it out after I finish this post.

Quote:
Originally Posted by Lokarbiebarbie View Post
Your list of symptoms are almost all the same as mine when I was diagnosed with Hashimoto's hypo...and with good diet (lowcarb of course), weightloss, exercise and treated correctly by a thyroid doctor...well, smooth sailing now!
If you don't mind me asking, what was the "correct treatment" by the thyroid doctor that you received? Did you have to take medication?

Thank you very much everyone for your replies; this will help me a lot!
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Old 01-05-2013, 03:08 PM   #8
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Quote:
Originally Posted by Seeking View Post
Thank you for your reply. I am uninsured and do not have a lot of money; I have read that doing a proper PCOS test would involve a transvaginal ultrasound. An ultrasound costs a lot of money and I'm not sure how I can go about having one done as an uninsured person. What do you think?
If your doctor or gyno is familiar with PCOS, you may be able to get him/her to treat you to see if it helps the symptoms without going into extensive testing
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Old 01-05-2013, 03:23 PM   #9
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If your doctor or gyno is familiar with PCOS, you may be able to get him/her to treat you to see if it helps the symptoms without going into extensive testing
I don't actually have a doctor. The doctor I mentioned in my OP was just the doctor at the local "free" health clinic. I am not her patient; I cannot call her up or email her about my health concerns.

I am not one to be turned down so easily. But she really slammed the door on me. Here's what happened.

Visit #1: I tell her my symptoms. They run the tests on me (the tests they ran are in my OP). She tells me basically (and I'm paraphrasing of course), "You don't have diabetes, all is right in the world! Yay! Goodbye. Next patient."

Visit #2: A week or so has gone by and I've done more research into my numbers. I want further testing done; she hadn't run a lipid profile and I hadn't done a OGTT (oral glucose tolerance test) or a fasting glucose test. The glucose test they ran on me was after I had eaten a meal. I go in to see her and she says (I'm paraphrasing again, of course), "We can't do anything else for you here. You'll need to go to another facility to get further testing."

And I was then promptly ushered out the door.

So in summary, I have no doctor, I'm not insured, and I've exhausted all the resources at my local "free" health clinic.

I then called all the other free health clinics in the county; they said they can't do anything else either. They are just equipped for very basic care.

So at this point I'm stuck unless I buy health insurance which I cannot afford, or pay out of pocket for a $300+ ultrasound, which I also can't afford.

Unless someone knows something I don't know about...

Oh and one more thing. I am on a program that is part of Medicaid, but it only covers birth control, annual exams, and things that directly relate to pregnancy prevention. I do not think that this program covers PCOS testing. In this capacity, however, I do have access to a gyno but only for annual exams etc.

Last edited by Seeking; 01-05-2013 at 03:26 PM..
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Old 01-05-2013, 05:07 PM   #10
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Seeker- Great insurance is not a guarantee that you will find the answers that you seek. I have really good insurance. I could literally see 50 doctors a year with no referral and pay $20 per visit for each.

My health started failing me in 2010. I had a spinal fusion to put metal rods and screws in my lower back in 2000 and then in my neck in 2008. I never really bounced back from the cervical fusion.

I was experiencing extreme dizzy spells and started to fear for my job because my brain seemed as if it was “misfiring.” I was using a lot of the wrong words in sentences. Friends and family referred to them as “Erinisms.

I started a round of Dr visits. I saw MANY doctors and had many tests. I have unexplained pain on the outsides of my body and have been unable to stand or walk for long periods. I became unable to tolerate chemical smells such as perfume or laundry detergent. Lights and sounds would wake me up and night and disturb my concentration at work.

Carbs or sugar had made me “tired” for years.

Every single test that I had (except for MRI on back which shows extreme stenosis) shows that I was healthy as a horse. I’ve had doplar tests that show I have the arteries of a child. ZERO plac. Electronic needle tests show no nerve damage. Bone density is great! Rumitologist tests came back with not Lupus, Fibro, MS, etc.

I was diagnosed with Hypothyroid in 2010. I started on Naturthroid at that time. My vitamin D3 and B12 levels were also low. In 2011 I got uncontrollable diarrhea and was diagnosed with Colitis through a colonoscopy. Then my blood work showed that I had Hashimoto’s Thyroid. Both are autoimmune diseases.

I have spent the last year studying everything I can get my hands on about the autoimmune system and how we get “out of whack.” I spent a lot of time and money going to 3 different allergy specialists and did the ALCAT food testing at $1,300 out of pocket. My results will come back different every year. Example: One year I show an extreme reaction to mold, grass, all trees, cats, horses, roaches, dust. The next year it is dogs, maple, pecan. The food tests have shown odd things like orange, black pepper, etc.
I have never shown to be allergic to dairy or gluten. I can, however, see a huge difference in my pain levels when I consume too much gluten and sugar.

I see several neuropathic doctors and a chiropractor now. I pay out of pocket to see them. As with regular doctor’s I listen and disregard what does not work for me.

I have done a TON of research on my own to heal myself. I started with the fact that 80% of the immune system resides in the GUT. I’ve had many light bulb moments along the way. And read a TON of books and articles. I read Dr. Mercola.com daily and try to listen to his advice. Read the Magnesium Miracle. Get your D3 and B12 tested.
I am not rich but I have budgeted a specific amount of out of pocket each year for my health.

The research to get you there is free. Just develop a really strong Google muscle. You know that Low Carb makes you feel good. Do you really need a Doctor’s advice or a diagnosis in order to continue?
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Old 01-05-2013, 10:17 PM   #11
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In my state (Michigan) uninsured women of child bearing years qualify for free family planning insurance. This coverage covers annual gynecological visit and birth control. You should look into whether your state has similar options.

I would look into PCOS. Diagnosis does not require an ultrasound. Ultrasounds are used to detect the presence of cysts. You can have PCOS and not have cysts. PCOS can be confirmed through blood tests that look at your androgen levels. The treatment for PCOS is usually birth control pills. It looks like you are already on birth control but their are also diets that help with PCOS. These diets are usually low carb/high protein.

The skin itching/rash under breasts sound like a separate problem. Perhaps an overgrowth of yeast.
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Old 01-06-2013, 09:42 AM   #12
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It sounds like you have hyperinsulinemia. You need a fasting insulin and fasting glucose done. Those, plus your other symptoms, could determine if you have PCOS. The hair growth and darkened skin alone are major symptoms. You don't need an ultrasound, many women with PCOS, despite its name, do not have cysts. Low carb diet alone should help, metformin may also help. I'll defer to others regarding the thyroid tests, as I've never had an issue with mine.

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Old 01-07-2013, 04:21 AM   #13
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Prediabetes: Blood glucose levels of 100-125 mg/dl after an overnight or eight-hour fast may indicate prediabetes. People with these results are considered to have impaired fasting glucose (IFG).

Diabetes: Diabetes is diagnosed when the blood glucose is 126 mg/dl or above.
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Old 01-07-2013, 05:58 AM   #14
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Quote:
Originally Posted by Erin57 View Post
Seeker- Great insurance is not a guarantee that you will find the answers that you seek. I have really good insurance. I could literally see 50 doctors a year with no referral and pay $20 per visit for each.

Carbs or sugar had made me “tired” for years.

Every single test that I had (except for MRI on back which shows extreme stenosis) shows that I was healthy as a horse. I’ve had doplar tests that show I have the arteries of a child. ZERO plac. Electronic needle tests show no nerve damage. Bone density is great! Rumitologist tests came back with not Lupus, Fibro, MS, etc.

I was diagnosed with Hypothyroid in 2010. I started on Naturthroid at that time. My vitamin D3 and B12 levels were also low. In 2011 I got uncontrollable diarrhea and was diagnosed with Colitis through a colonoscopy. Then my blood work showed that I had Hashimoto’s Thyroid. Both are autoimmune diseases.

Read the Magnesium Miracle. Get your D3 and B12 tested.
I am not rich but I have budgeted a specific amount of out of pocket each year for my health.

The research to get you there is free. Just develop a really strong Google muscle. You know that Low Carb makes you feel good. Do you really need a Doctor’s advice or a diagnosis in order to continue?
Excellent advice. I have been doing a ton of research since October 2012, and will continue to do so. It would appear that I'm going to have to pay for a lot of things out of pocket after all, which means I will need to do 1 or 2 things at a time and do it all slowly since I don't have a lot of money to spare.

Quote:
Originally Posted by suzyqt1981 View Post
In my state (Michigan) uninsured women of child bearing years qualify for free family planning insurance. This coverage covers annual gynecological visit and birth control. You should look into whether your state has similar options.
Yes, I mentioned this already in my own post. Here's what it said:
Quote:
Oh and one more thing. I am on a program that is part of Medicaid, but it only covers birth control, annual exams, and things that directly relate to pregnancy prevention. I do not think that this program covers PCOS testing. In this capacity, however, I do have access to a gyno but only for annual exams etc.
Quote:
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I would look into PCOS. Diagnosis does not require an ultrasound. Ultrasounds are used to detect the presence of cysts. You can have PCOS and not have cysts.
I didn't know that. Obviously I've got more research to do.

Quote:
Originally Posted by suzyqt1981 View Post
PCOS can be confirmed through blood tests that look at your androgen levels. The treatment for PCOS is usually birth control pills. It looks like you are already on birth control but their are also diets that help with PCOS. These diets are usually low carb/high protein.
I will be getting the blood test done within the next few months. Will be paying out of pocket. But it looks like I've already begun addressing the dietary factors. I wonder why low carb helps with PCOS, and I wonder if high-carb can cause PCOS.

Quote:
Originally Posted by suzyqt1981 View Post
The skin itching/rash under breasts sound like a separate problem. Perhaps an overgrowth of yeast.
Perhaps so.

Quote:
Originally Posted by Mistizoom View Post
It sounds like you have hyperinsulinemia. You need a fasting insulin and fasting glucose done. Those, plus your other symptoms, could determine if you have PCOS. The hair growth and darkened skin alone are major symptoms. You don't need an ultrasound, many women with PCOS, despite its name, do not have cysts. Low carb diet alone should help, metformin may also help. I'll defer to others regarding the thyroid tests, as I've never had an issue with mine.
Over the next few days I will be composing a list of the tests I need to have done to confirm or rule out various things, such as PCOS, insulin resistance, thyroid issues, vitamin deficiencies, etc.

Which specific test(s) should I do to completely rule out or confirm a thyroid issue? I found this one online:

--------------------------------------------------
T-3 Uptake
Total T3
Free T3
Reverse T3
Total T4
Free T4
T7 (Free thyroxine index)
TSH

TAA - This test helps to detect possible thyroid problems. Thyroglobulin is a protein that is normally confined to the thyroid gland. It is the source of the thyroxine and triiodothyronine hormones in the body. The presence of autoantibodies to thyroglobulin can lead to the destruction of the thyroid gland. Such antibodies are more likely to appear after trauma to, or inflammation of, the thyroid gland.

TPO - The TPO gene provides instructions for making an enzyme called thyroid peroxidase. This enzyme plays a central role in the function of the thyroid gland. Thyroid peroxidase assists the chemical reaction that adds iodine to a protein called thyroglobulin, a critical step in generating thyroid hormones. Thyroid hormones play an important role in regulating growth, brain development, and the rate of chemical reactions in the body (metabolism).
--------------------------------------------------

Is this test missing anything I should add in, or is there anything in there I don't need to have done that I can take out? I know I also need to add a vitamin panel, or at least check for vitamin D and B levels.

Thanks everyone for your help! I'll keep this thread updated as I do more tests and/or have more questions.

Last edited by Seeking; 01-07-2013 at 06:20 AM..
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Old 01-08-2013, 06:23 AM   #15
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Since you mentioned feeling better when LC, why not just do it?
That way you won't need to spend $$ on doctors or testing.

Our lifestyles catch up with us and many peop had these symptoms befor LC' ing.
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Old 01-13-2013, 05:34 AM   #16
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Free T 3, free T 4, TPO Antibodies, Vitamin D and ferritin testing are the basic testing for thyroid disease. T7 IS rarely done and RT3 and the total Ts are not necessary at this point.
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Old 01-13-2013, 03:36 PM   #17
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Quote:
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Free T 3, free T 4, TPO Antibodies, Vitamin D and ferritin testing are the basic testing for thyroid disease. T7 IS rarely done and RT3 and the total Ts are not necessary at this point.
I've noticed that others have mentioned B-12 levels too.

Is ferritin really important? My labwork (complete blood count) back in October said I wasn't anemic.

I'm in communication with DirectLabs to see if they can do a custom package for me with exactly these test because they do not have a package with these tests on their website, and adding the individual elements into a package without discounts goes over $250; too high.

Question about D3, is that Vitamin D, (1, 25 Dihydroxy) or Vitamin D, (25 Hydroxy)?

Also seeing what a test with insulin, C-peptide, glucose, along with the thyroid stuff would cost when bundled.

---------------------------------------------

Recently tested myself again with the blood glucose home monitor when I was feeling really really fatigued and it was a healthy 86 mg/dL. Definitely no issues with blood sugar. Huge relief to rule that one out.

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Old 01-14-2013, 08:02 AM   #18
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This site can be very helpful - although most information/suggestion is on PERSONAL, anecdotal experiences...


Ferritin - Stop The Thyroid Madness
Iron and hypothyroidism | Stop The Thyroid Madness
Iron, in addition to iodine, selenium and zinc, are essential for normal thyroid hormone metabolism. Can my ferritin look great, but my iron levels are not?

Personally, since I live in the Northern part where winters are extreme and sun is rare I supplement my D3 in liquid form along with K2, just for good measure. Along with my Iodine (which actually SHRUNK a goiter - can you believe this???) that I take with Selenium and some magnesium OIL - I am certain to take extra ascorbic C or liposomal C or amla C two hours AFTER my iodine. I take my Vit B complex toward the afternoon along with B12. Mag oil at evening on feet for better absorption, I wear socks to bed .

I found out they were all LOW a year ago. Bloods lately ARE ON THE MARK!
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Old 01-16-2013, 12:22 PM   #19
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I don't think you mentioned how old you are. So how old are you?
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Old 01-17-2013, 08:13 AM   #20
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I don't think you mentioned how old you are. So how old are you?
28 yrs old
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Old 01-17-2013, 09:32 AM   #21
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You say you don't have insurance. Have you looked at the https://www.pcip.gov/Default.html website? You can buy insurance from the government if you have been turned down for insurance because of a preexisting condition. Sounds like you have a preexisting condition. It's actually a pretty good price for what you get.

If you were in Ga. where I am it would be $250 a month and that includes everything. GP's, specialists, hospital care and drugs. The precursor is you have to have a preexisting condition and been turned down for insurance.

My niece uses this insurance and it's been a godsend for her.
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Old 01-17-2013, 10:27 AM   #22
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You say you don't have insurance. Have you looked at the https://www.pcip.gov/Default.html website? You can buy insurance from the government if you have been turned down for insurance because of a preexisting condition. Sounds like you have a preexisting condition. It's actually a pretty good price for what you get.

If you were in Ga. where I am it would be $250 a month and that includes everything. GP's, specialists, hospital care and drugs. The precursor is you have to have a preexisting condition and been turned down for insurance.

My niece uses this insurance and it's been a godsend for her.
Woah, I cannot afford that much. And besides, I am in fact able to purchase private insurance for less than that per month. I have had individual health insurance before (back in 2009 when I was making more money) for about half that price. My only diagnosis up to this point is depression. I suppose that qualifies as a pre-existing condition, but as a young person, a non-smoker, and otherwise "healthy" person, I can definitely do better by purchasing private insurance--even a medium-deductible plan would be less for me. But I can't even afford that.

I am going to do 1 or 2 tests at a time through DirectLabs; this way, I don't think anything will show up on my health record. And I trust myself more than a doctor to accurately diagnose my own health conditions and to heal them; therefore, purchasing health insurance would be both more expensive and less useful to me at this point.

Last edited by Seeking; 01-17-2013 at 10:29 AM..
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Old 01-17-2013, 12:54 PM   #23
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Good luck Seeking. Report back and let us know what your tests reveal.
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Old 01-17-2013, 02:24 PM   #24
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Good luck Seeking. Report back and let us know what your tests reveal.
Will-do! It's either going to be a celiac panel or complete thyroid panel next! Will post with updates when I test.

Thanks again everybody!
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Old 01-17-2013, 03:19 PM   #25
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Hello everyone. I just registered on the site today and consider this to be phase 2 in finding out what is wrong with me. I spent some time on another forum and someone on that forum recommended this forum to me, so I’ll continue here. I’m on a mission to find out why I have symptoms which feel like diabetes. I have essentially made myself into a science experiment for this mission; therefore, my post will sound more like someone’s medical file than a typical forum post. I am determined to find out the why, how, and what that is behind my symptoms; perhaps some folks here can provide some clues.

Phase 1 of my mission consisted of finding out if I was diabetic or pre-diabetic. I went to the health clinic, had a lot of tests done, and found that I’m neither diabetic nor pre-diabetic. A short summary of my lab tests, as done in October 2012:

1. Urinalysis: Normal except that I had a urinary tract infection. I took medication and the infection went away.
2. Non-fasting random glucose test: 107 mg/dl.
3. A1C test: 5.2.
4. CBC w/DIFF PLATELET: Normal here.
5. CMP (Comprehensive Metabolic Panel): Normal.
6. TSH+FREE T4: TSH = 1.72; T4=1.44. Normal.
7. H.PYLORI IGG: <0.9. Normal.

I also purchased a blood glucose home monitor and tested my blood glucose for 2 days after eating high-carbohydrate meals and everything appeared normal.

Day 1 Data Set (after 121g carbs):
Time----|---BG (mg/dL)
11:50-------86 (fasting)
12:38-------131 (felt odd)
13:08-------95 (felt good)
13:38-------108 (felt good)
14:08-------109 (felt good)
14:38-------95 (felt good)
15:08-------74 (felt terrible)
16:21-------70 (felt terrible)

Day 2 Data Set (after 124g carbs):
9:26:00 AM --> 91mg/dL (fasting)
Ate breakfast (no carbs)
Time elapsed
3:11:00 PM --> ate lunch (the 124g carb meal)
3:41:00 PM --> 147 mg/dL (felt terrible)
4:11:00 PM --> 114 mg/dL (felt terrible)
4:41:00 PM --> 104 mg/dL (felt good)
5:11:00 PM --> 110 mg/dL (felt good)
5:41:00 PM --> 95 mg/dL (felt good)
6:11:00 PM --> 70 mg/dL (felt terrible)
6:41:00 PM --> 89 mg/dL (felt terrible)

The pure numbers look normal and healthy, it would seem. However, I have symptoms that sound a lot like diabetes. I told the doctor about my symptoms, which are as follows:
Depression
Weight Gain
• In the past two years, gained more fat in my abdomen
Brain Fog
Memory loss
Short-term and long-term memory dysfunction
Reduced cognitive function
Chronic fatigue
Hypoglycemia symptoms
• Slow healing of bruises/wounds/cuts/nicks/scrapes/etc
• Crashing after physical activity (10+ minutes cardio)
• Irritability, poor mood and crashing after eating high amounts of sugary foods
• Itching all over my body and especially nose, vaginal and anal areas
Bloating, water retention, and increased flatulence
• Acid reflux (comes and goes)
• Rash under breasts for years
Blurred vision/decreased vision in past 3-4 years
• Yellowish/darkened color on my skin in armpit area and inner thigh area (Acanthosis nigricans?)
• New hair growth in inappropriate areas such as chin and areas near but outside of pubic region (within a 5 inch radius of the pubic region).
• Lack of motivation since age 22. I used to be a very motivated, ambitious, and driven person. I graduated from college prior to age 22.

As I have found out during the past two months via experimentation with diet, these symptoms greatly reduce when I am low-carbing and greatly increase when I eat a diet high in carbs. Most of my life I’ve been on a high-carb diet because I couldn’t imagine eating any differently. I’ve come a long way in a short time.

The doctor told me that I was neither diabetic nor pre-diabetic, and therefore had a clean bill of health and nothing to worry about. Ok, so I should just live with my symptoms then? I should just accept them? No, I don’t think so.

Medications:
• Depo Provera (from age 21 to 24, then again during age 27 for about 6 months)
• IUD (age 24-26)
• Lo Loestrin Fe (birth control pills) currently
• Prozac (been on and off of this since age 22 due to depression; the need for it increases when on birth control and mostly subsides when off birth control)

Diseases Ruled Out Via Previous Tests:
• Diabetes
• Pre-diabetes
• Hypo/hyperthyroid

Obviously I need to have more tests done. One test I would like to have done, but am not sure if I can order or have done, is a 3-4 hour long insulin and blood glucose test which measures my insulin and glucose levels at the same time either continuously for 3-4 hours or in 30 minute intervals for 3-4 hours. Reviewing my insulin levels and calculating my ratios of insulin to BG would tell me whether or not I am hyperinsulinemic.

The goal of phase 2 is to rule out more possible diseases via testing and to find out whether I am hyperinsulinemic via actual lab tests done with insulin, C-peptide, and glucose measurements.

It is extremely frustrating to have such a long list of very real and uncomfortable symptoms which present so strongly, while all my lab numbers seem to indicate that I’m perfectly healthy. What is going on here? Perhaps someone out there who reads this will have a suggestion.

You might ask, “But if you find relief from those symptoms while doing low-carb, why do you care about anything else? Just do low carb and be done with it!” My answer to that would be that I want to know what is going on with my body, and why, and how I got here. Perhaps I have a condition that needs to be treated; perhaps I am “on the path” to diabetes—it does run in my family. I am determined to get to the bottom of this. Any input is appreciated.

Thanks.
I bolded the symptoms that I had before going gluten free. add these also


slurred speech
falling over to one side
numbness in my midsection
arthritis so bad I could not feed myself at times
excessive sweating
macular degeneration has stopped progressing
my surgical scars (keloids) use to hurt and itch terribly all the time.
acne cysts

I had MRI'S,full thyroid blood panels,glucose monitoring, insulin resistance testing, blood tests for endocrine tumors and cardiac tests and not one of those Doctors could figure out what was causing my ill health. I did some internet searching on things that can cause my symptoms and came across gluten intolerance and it was like I wrote that list of symptoms. I have been completely healthy since going gluten free.. Try it, the worst thing that can happen is you get no relief the best thing is you can take back your health.
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Old 01-17-2013, 05:05 PM   #26
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I bolded the symptoms that I had before going gluten free. add these also


slurred speech
falling over to one side
numbness in my midsection
arthritis so bad I could not feed myself at times
excessive sweating
macular degeneration has stopped progressing
my surgical scars (keloids) use to hurt and itch terribly all the time.
acne cysts

I had MRI'S,full thyroid blood panels,glucose monitoring, insulin resistance testing, blood tests for endocrine tumors and cardiac tests and not one of those Doctors could figure out what was causing my ill health. I did some internet searching on things that can cause my symptoms and came across gluten intolerance and it was like I wrote that list of symptoms. I have been completely healthy since going gluten free.. Try it, the worst thing that can happen is you get no relief the best thing is you can take back your health.
I am considering going gluten-free for a month; however, I know for certain that gluten (if it is playing a role at all in my health), is not the sole suspect. I can barely concentrate right now after eating a Chinese and Hibachi meal consisting of steak chunks in some type of sauce accompanied by what seemed like a reasonable quantity of rice. I suspect the rice.

I'm trying to get a list of ingredients now on that dish I ate. I felt horrible after eating it last night too, but this incident today verifies it. Here let me check my blood sugar to rule out that problem...

Well look at that, a healthy 88mg/dL. I bought a home glucose meter to start testing for blood sugars when I was suspecting diabetes or pre-diabetes, but it ain't apparently!
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Old 01-17-2013, 05:19 PM   #27
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Originally Posted by Seeking View Post
I am considering going gluten-free for a month; however, I know for certain that gluten (if it is playing a role at all in my health), is not the sole suspect. I can barely concentrate right now after eating a Chinese and Hibachi meal consisting of steak chunks in some type of sauce accompanied by what seemed like a reasonable quantity of rice. I suspect the rice.

I'm trying to get a list of ingredients now on that dish I ate. I felt horrible after eating it last night too, but this incident today verifies it. Here let me check my blood sugar to rule out that problem...

Well look at that, a healthy 88mg/dL. I bought a home glucose meter to start testing for blood sugars when I was suspecting diabetes or pre-diabetes, but it ain't apparently!
I hope you do give it a try and that you find improvements. It has blown my mind how something so simple could help what thousands of dollars in testing and specialists could not. I would bet money that the sauce in your dish had gluten also.
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Old 01-17-2013, 05:48 PM   #28
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Originally Posted by Seeking View Post
I am considering going gluten-free for a month; however, I know for certain that gluten (if it is playing a role at all in my health), is not the sole suspect. I can barely concentrate right now after eating a Chinese and Hibachi meal consisting of steak chunks in some type of sauce accompanied by what seemed like a reasonable quantity of rice. I suspect the rice.I'm trying to get a list of ingredients now on that dish I ate. I felt horrible after eating it last night too, but this incident today verifies it. Here let me check my blood sugar to rule out that problem...

Well look at that, a healthy 88mg/dL. I bought a home glucose meter to start testing for blood sugars when I was suspecting diabetes or pre-diabetes, but it ain't apparently!
Quote:
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I hope you do give it a try and that you find improvements. It has blown my mind how something so simple could help what thousands of dollars in testing and specialists could not. I would bet money that the sauce in your dish had gluten also.
It's my understanding that soy sauce has a fair amount of gluten in it.
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Old 01-17-2013, 07:34 PM   #29
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Why don't you just cut out all grains, not just gluten? That alone will put you well on the way to low carb. I wish someone had told me at age 28 to just do it. Instead that is when the very low fat craze was still active. Many of your symptoms will likely be alleviated by going grain-free (and therefore gluten-free) and low carb. Based on a number of your symptoms (including your just fine blood glucose levels) I strongly suspect you have PCOS (you may have other things as well). Ultimately PCOS is an insulin issue for almost all women with it. You may need medication to help control it, but for me medication alone (metformin) has not controlled my symptoms. Low carb has done that. You don't need more blood test to cut out grains and high carb foods right now.
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Old 01-20-2013, 05:03 PM   #30
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It's my understanding that soy sauce has a fair amount of gluten in it.
You are right. I just checked a bottle I had at home. I have Kikkoman reduced sodium and the second ingredient is wheat. There ya go! That could explain it.

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Originally Posted by Mistizoom View Post
Why don't you just cut out all grains, not just gluten? That alone will put you well on the way to low carb. I wish someone had told me at age 28 to just do it. Instead that is when the very low fat craze was still active. Many of your symptoms will likely be alleviated by going grain-free (and therefore gluten-free) and low carb. Based on a number of your symptoms (including your just fine blood glucose levels) I strongly suspect you have PCOS (you may have other things as well). Ultimately PCOS is an insulin issue for almost all women with it. You may need medication to help control it, but for me medication alone (metformin) has not controlled my symptoms. Low carb has done that. You don't need more blood test to cut out grains and high carb foods right now.
You may very well be right. You are not the only one on this forum and others who thinks that I may have PCOS. Do you know if there is an at-home test I can to to test my insulin level similar to the way I'm testing my blood glucose levels?

You are definitely right about carbs, but the jury is still out regarding wheat. I'm still in the testing phase with gluten.
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