Sjogren's Syndrome

ouizoid · 04-28-2012, 07:11 AM

Just formally Dx'd this week. Anyone know of it/have it? I'm Wanting to know some good resources and what to look for other than dealing with the obvious (dry tissues, joint pain, fatigue).

TIA

Ouis

Orphalie · 04-28-2012, 06:00 PM

my mother has had it for 20 or so years. The biggest issue for her was dealing with the eye torubles it causes. She now has 3 different medicated rops she has to use in her eyes daily. If she doesn't her eyes swell up untill she can't even see out of them. She has a morning regime of coating herself in nivea and taking all her meds and joint supliments. She also has Hashimotos and has tested + for lupus markers a few times but not regularly. And despite all this my doctor refuses to give me a rheumatology referal even though I have a wide vaqriety of symptoms he can't explain or help.

glasskat · 04-29-2012, 07:23 AM

Hi Ouizoid,

I was formally diagnosed with Sjogren's about a year ago. My biggest issue is joint pain and fatigue. For me, the symtoms are mutliplied when I consume wheat products. I have no symptoms when I go gluten free.

My doctor has me taking a lot of supplements and herbs and, when I find myself falling of the gluten-free wagon, I cycle low doses of prednisone.

What are your symptoms?

ouizoid · 04-29-2012, 07:47 AM

joint pain, joint hypermobility, terrible fatigue, bad brain fog, terrible and painful dry eye, dry mouth, dry vag, positive for the SS antibodies, positive for the ANA antibodies. Been LC for years, and doesn't seem to change one way or another when I add back in gluten--

04-28-2012, 07:11 AM	#1
ouizoid Major LCF Poster! Join Date: Nov 2007 Posts: 2,977 Gallery: ouizoid Stats: 225/165/145 WOE: JUDDD	Sjogren's Syndrome Just formally Dx'd this week. Anyone know of it/have it? I'm Wanting to know some good resources and what to look for other than dealing with the obvious (dry tissues, joint pain, fatigue). TIA Ouis

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04-28-2012, 06:00 PM	#2
Orphalie Major LCF Poster! Join Date: Feb 2004 Location: Dallas Texan misplaced to Mountain Home ID Posts: 1,104 Gallery: Orphalie Stats: 260/245/140 WOE: atkins Start Date: march 10th 2012	my mother has had it for 20 or so years. The biggest issue for her was dealing with the eye torubles it causes. She now has 3 different medicated rops she has to use in her eyes daily. If she doesn't her eyes swell up untill she can't even see out of them. She has a morning regime of coating herself in nivea and taking all her meds and joint supliments. She also has Hashimotos and has tested + for lupus markers a few times but not regularly. And despite all this my doctor refuses to give me a rheumatology referal even though I have a wide vaqriety of symptoms he can't explain or help.

04-29-2012, 07:23 AM	#3
glasskat Major LCF Poster! Join Date: Sep 2002 Location: SE Florida Posts: 1,396 Gallery: glasskat Stats: 178.6/160/140 WOE: Atkins Induction/VLC Start Date: July 2002/Restart May 2009	Hi Ouizoid, I was formally diagnosed with Sjogren's about a year ago. My biggest issue is joint pain and fatigue. For me, the symtoms are mutliplied when I consume wheat products. I have no symptoms when I go gluten free. My doctor has me taking a lot of supplements and herbs and, when I find myself falling of the gluten-free wagon, I cycle low doses of prednisone. What are your symptoms?

04-29-2012, 07:47 AM	#4
ouizoid Major LCF Poster! Join Date: Nov 2007 Posts: 2,977 Gallery: ouizoid Stats: 225/165/145 WOE: JUDDD	joint pain, joint hypermobility, terrible fatigue, bad brain fog, terrible and painful dry eye, dry mouth, dry vag, positive for the SS antibodies, positive for the ANA antibodies. Been LC for years, and doesn't seem to change one way or another when I add back in gluten--