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Old 07-10-2012, 07:34 AM   #61
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I had a friend with Barrett's Esophagus. From Mayo's website:

"Barrett's esophagus is a condition in which some of the cells in your esophagus change in response to long-term exposure to stomach acid. Barrett's esophagus doesn't cause symptoms itself, but the condition is most common in people who have had heartburn and acid-reflux symptoms for many years
Symptoms
By Mayo Clinic staff

Barrett's esophagus signs and symptoms are usually related to acid reflux and may include:

Frequent heartburn
Difficulty swallowing food
Chest pain
Upper abdominal pain
Dry cough

Many people with Barrett's esophagus have no signs or symptoms. "

I'm probably more likely to have this than you. But you did mention a thickening. The person who did the last endoscopy seemed a little dismissive of you when you said you had already had a diagnosis of NO reflux. I wonder how your esophagus could be thickening without reflux.

The internet is dangerous for me.

And in Mayo's description, they do not say "thickened", they say "changed."
That's my understanding from my friend, too. The esophagus changes in response to the reflux whether known or unknown. I have not heard "thickened."
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Old 07-10-2012, 01:23 PM   #62
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Judy, I am as puzzled as you and yes, I think you most likely could get Barrett's. I work with a woman whose husband has it and they are concerned as it can be a precursor to cancer.
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Old 08-01-2012, 11:20 AM   #63
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Hi,

After reading your post, I was reminded of my daughter and husband, both of whom have "EOE." from Wikipedia: Eosinophilic esophagitis is an allergic inflammatory condition of the esophagus. Symptoms are swallowing difficulty, food impaction, and heartburn. The disease was first described in children but occurs in adults as well. The condition is not well understood, but food allergy may play a significant role.[1]


The diagnosis is an emerging one. People with EOE used to get tossed into the Reflux category, but drs found that Prilosec did not help those people (or minimally, if EOE was also accompanied by acid reflux.). I suggest googling on EOE and see if what the syptoms are describe what you ahve.

My daughter has chronic hoarseness, has had penumonia, has blocked eustacian (sp?) tubes (not caused by other things), and her asthma is worsened by the condition. She, unlike you though, does feel her food always come up. BUT my husband does not. For 30 years he was told he had reflux (but he NEVER felt any acid or food come up), but he too was recently diagnosed with EOE.

My daughter's food gets stuck occasionally. Durign her endoscopy, her dr noticed a ringing of the esophagus, which is an indicatioof esophageal damage by eoe. He also took biopsies.

We're in the process of determining an elimination diet for her, to determine the culprits. Many websites on eoe list the top 8 or 10 foods that commonly trigger eoe.

Good luck

Last edited by DebLynn; 08-01-2012 at 11:20 AM.. Reason: misspelled whom
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Old 08-07-2012, 06:50 AM   #64
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DebLyn,

How horrible for your daughter! How old is she? I will google as I never heard of EOE.

Thanks for posting.
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Old 01-08-2013, 11:02 AM   #65
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Originally Posted by jumpstart24 View Post
I have LPRD (Silent Reflux). I suffered for many years before it was diagnosed.
Managing my diet strictly almost completely eliminates the problem...
But you're not going to like it...here goes:

No:
Caffeine
Chocolate
Fried Foods
Dairy
Spicy, acidic, and tomato based foods
Orange, grapefruit and cranberry juices
Fatty foods

If I follow this diet I have no issues. If I stay pretty strict, I can have something here or there without too many consequences.

To add to my problems, now that I am beginning menopause the issues are even more severe because the muscles that control the valve that keeps acid in the stomach have weakened due to a hormone imbalance. I'm more sensitive than ever to the list.

It's difficult to follow this diet, but the hoarseness, gagging, coughing, throat-closing sensation caused by the reflux was just awful.
At least now I can be in control.

Here were the other recommendations from my doctor:
-Do not gorge yourself at mealtime
-Eat sensible, moderate amounts of food
-Eat meals several hours before bedtime
-Avoid bedtime snacks
-Do not exercise immediately after eating
-Maintain a healthy body weight (being overweight dramatically increases refux)
-Avoid tight belts and restrictive clothing
-Do not smoke
-If it's really bad at nighttime - elevate the head of your bed 4-6 inches

Hope this helps....
Thank you for this info......been looking around and I have read all your posts on this reflux.....helps to know others are out there and ok. Anxiety and health issues bite!
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Old 01-08-2013, 11:03 AM   #66
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I know this was a super old posts tooo....but still thanks!
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Old 01-08-2013, 01:51 PM   #67
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I wanted to add that mine had cleared up. I went off the meds. Sadly I cleared it up by reducing the fat I so adored in my low carb diet. I didn't want to try it but sadly the Dr was correct. Wheat was also a trigger for me.
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Old 01-09-2013, 09:09 AM   #68
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I still have my laryngitis. I have gone through speech/voice therapy and found it didn't do anything. The therapist did give me instructions on the same old stuff: no spicy foods, no eating before bed, drinking water constantly, no caffeine or non caffeine tea as it dries out the cords.

She did say that the laryngitis is sort of a stress trigger. So, since March 26, 2012, I have had probably one month total of a normal voice.

I have no idea what triggers my voice to return to normal or go to laryngitis.

Just so sick of it.
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Old 01-29-2013, 10:22 AM   #69
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Melrose, I read your story in the posts like it was a book...I can't help it but I truly believe you have Silent Acid Reflux. I'll tell you my story quickly. And, most importantly, I want to tell you that Silent Acid Reflux and Acid Reflux are NOT the same.

In September, I had throat issues and thought I had strep. Went to a walk in clinic and they thought I had a rare and life threatening illness called epiglotitis because they thought my epiglotis was severly inflammed. Went by ambulance in to Boston where at the top hospital for throat issues, I saw an ENT who diagnosed me not with the severe illness, but, tonsilitis after putting a scope down my nose. Prednisone and an antibiotic were prescribed. On and off for the next three - four months throat and sinus issues, never felt well...raspy voice, colds, severe congestion. No indigestion whatsoever. Kept being put on prednisone every month or so. Felt like the sick kid and I'm used to sick once a year. Always felt like I didn't want to talk. Finally, last Tuesday I decided I wanted a battery of tests to be run. I knew I was sick and it needed to end. First round of blood work and various rays all fine. THEN the ENT on Friday...

This could not be made up because she used a scope with a camera that took pictures. Deviated septum, severe congestion, severe sinus infection, severe swelling around my larynx and esophagus which denote ACID REFLUX. I was shocked. The Dr. has asked me in the beginning if I had this and I said a big NO. No burping, no heartburn, no indigestion...the pictures were shocking. AND, remember, I saw that big time ENT specialist in Boston who got it WRONG. Could have saved me MONTHS of illness....but this is medicine today...it's the luck of the draw and you have to be your own advocate.

Please see the following link: Silent Reflux: A Hidden Epidemic | The Dr. Oz Show

Sleep apnea and snoring are also signs of silent acid reflux and it is totally normal to be asymptomatic of normal acid reflux...

I'm just reaching out to all because my diagnosis was very scary to me. I lost a very close friend a few years ago to esophageal cancer and it began with acid reflux...she was a smoker so that adds to it, but, trust me, it is a horrible and very quick way to die.

In just a few short days I've completely overhauled much in my life and diet to all the things they say to do when you have this diagnosis...not easy. Sad to be giving up my alcohol, garlic, cheese, anything tomatoes, etc. but, know I'm on path to live longer...would love support/recipes from anyone who lives this lifestyle...Also I am like you Melrose, have weight to lose but not HEAVY...No question I'll lose the weight now....
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Old 01-30-2013, 09:16 AM   #70
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LShea,

I just typed out this long post and lost it! Thank you for posting your own battle. I saw my ENT on January 21st and of course had laryingitis so he has now referred to me to a Laryngologist and the closest one is 2 hours away. He believes the reflux is under control -- he did not scope me at this visit -- but thinks I now have Muscle Tension Dysphonia. The laryngitis has continued for so long (since last March) that my throat has compensated in how it functions and I am now speaking incorrectly. My appointment is on the 13th.

I was diagnosed with Silent/LRP reflux and have been on nexium. I know I am not as diligent in following no alcohol (I have a couple on the weekends sometimes and will have cheese).

I bought a book called Dropping Acid, The Reflux Diet Cookbook and Cure by Jamie Koufman. She is very much involved with LPR/Silent Reflux and I believe she may have "coined the phrase" Silent Reflux.

Maybe what I think I am doing food choice wise is not good. I guess I can't believe I still have something that I can't really see, taste, etc (meaning reflux).

I will let you know what the new doctor says and now I will check out the link you posted. Thanks.
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Old 01-30-2013, 09:21 AM   #71
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I just checked out the link, LShea, and ironically enough, it leads to the article by Dr. Kouffman whom I mentioned above and wrote the book I bought.

Thank you.
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Old 02-17-2013, 06:08 AM   #72
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I just saw this silent reflux talk. I've had it for a long time. Took nexium every day and still got Barrett's. I sleep with my bed 6 inches raised. I was never given the directions to limit all the foods previously mentioned . And i'd been seeing different dr. over the years. I stopped taking the drug because it didn't do me any good. I go into the hospital every year for a looksee at my esophagus.(under anaesthesia) So far so good.
I've had lots of throat problems too. I've lost the ability to sing even in church and sometimes I think that my speech is getting weaker. I haven't been good aabout the diet though. My cough went away when a young dr. told me that lisanopril can have a side affect like that. So maybe one should take a look at their bp meds. It might help.
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Old 02-18-2013, 07:35 AM   #73
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Dreeza,

I am sorry you lost your ability to sing and that your voice is getting weaker.
I was on Lisinopril and taken off that but the cough is still there so it is not related.

I saw my 3rd ENT and Laryngologist specialist last week and he thinks I have Spasmodic Dsyphonia along with Muscle Tension Dysphonia. So, I have to go to another speech therapist for her to determine if I do have Spasmodic Dysponia which is a neurological disorder like stuttering etc. I can come on after an injury or an infection (I had bronchitis before this started).

The treatment if I have it will be botox injections in my vocal cords. Either way, doctor said that he will give me botox as that will help the muscle tension (this is from talking throughout having laryngitis for 11 months etc.).

I will keep everyone posted.
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Old 03-18-2013, 06:18 AM   #74
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Good morning ladies! Although I find it distressing you have these medical issues, you have brought me comfort with knowledge.

I have had so many medical issues in the past 2 years I feel like a walking medical text. Thank God nothing fatal, but it seems one right after the other.

I found out I had hiatal hernia when I was going in for a baseline colonoscopy and innocently mentioned morning nausea and coughing. He suggested an endo as I would already be under, and I of course agreed.

I was aMAZed they found the hernia and an erosion, as I had never experienced heartburn, other than normal stuff like after 'smack my ass' hot sauce.

I am coming out of anesthesia, dehydrated with a splitting headache and he tells me my colon is great (yeah!) but gives me the upper diagnosis, tells me he will call in a week, gives me a script for omeprozole, list of foods to avoid, and off he goes.

Calls me in a week or 2 nd tells me I have Hpylori, and a LOT of it! He confirms this si what has been making me so sick. He gives me a script for 4x4x4 antibiotics. Honest to goodness, horsepills. (BTW if you EVER take them, talk to the dr about PRObiotics at the same time, because this about ruined my life!!!)

So now the infection is gone, but I have severe IBS, reflux and it is ruining my life. It has been one hell after another.

It is 3 weeks to get in to see him (I am guessing the $25 he gets paid for office visit is nothing compared to the money he gets for the testing) or if I was feeling better I would say he is a good dr and is backed up :/. About the time my appt rolls around I am either home sick with a migraine (oh yes folks, add that in LOL) or feeling so much better I feel it is a waste of his and my time. (dumb, I know....)

I swear I am not a crybaby..........there is a positive reason I am writing.

Now I have a list of questions I will ask the gastro when I GO to the appt I will make today!! I am also making an appt with an ENT because I have all the symptoms y'all listed:
mucous
coughing
rough voice (sometimes I have to redo my voicemail at work 3 times!)
coughing in the mornign so hard I throw up!
inflammation of the nose, throat, voice

I just feel like I may have another answer to so many questons.

What really grabs my goat Melrose, is we go to SO many doctors. I wish there was one (Like House, but not so rude and no pill poppin ,)

Thank you all for sharing your issues.

You have also helped me to decide to continue to give up wheat!!

J
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Old 03-18-2013, 09:38 AM   #75
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Jeannie,

My goodness on what you are dealing with, but thank goodness have some answers for what is going on. And you are NOT a crybaby.

I think that is the hardest thing -- when we know when something isn't right with our bodies.

Please let us know what the doctor thinks when you mention your morning symptoms.

Of course, I have been seeing a new speech therapist and the first visit she confirmed Spasmodic Dysphonia. My next visit to her, my voice had come back and was perfect. My third visit last Thursday and my voice was still good although a little bit laryngitis-y and she said she isn't sure I have Spasmodic now.

I told her that my voice has dones this all year, it will be gone/laryngitis for months and then come back sounding pitch perfect and go out again.

I am due to have botox injections on 3/27.

Good luck to all of us.
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Old 03-19-2013, 07:43 AM   #76
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Originally Posted by Melrose View Post
Jeannie,

My goodness on what you are dealing with, but thank goodness have some answers for what is going on. And you are NOT a crybaby.

I think that is the hardest thing -- when we know when something isn't right with our bodies.

Please let us know what the doctor thinks when you mention your morning symptoms.

Of course, I have been seeing a new speech therapist and the first visit she confirmed Spasmodic Dysphonia. My next visit to her, my voice had come back and was perfect. My third visit last Thursday and my voice was still good although a little bit laryngitis-y and she said she isn't sure I have Spasmodic now.

I told her that my voice has dones this all year, it will be gone/laryngitis for months and then come back sounding pitch perfect and go out again.

I am due to have botox injections on 3/27.

Good luck to all of us.
Good morning. I guess I get smileys today too! Oh happy day

Barbara, I am so sorry for what you are going through. I hope the botox injections will help. How in the world will they give these too you Here's hoping they have found an answer. I cant imagine losing my voice for weeks on end, with no real answers

The worst frustration is to go thru these things for years, with no real answers. I am in the US, and have been raised to believe there is a cure for every ache and pain. To not take a pill and have it go away, or have a doctor have an answer is so frustrating.

when you act like this they shut down, but if you are complacent they move on to the squeaky wheel. Sometimes I feel like it is all in my head (no pun intended)

So again, here is hoping SOMEone has found a true answer to your issue.

As for me, this morning is day 5 gluten free (would be day 10 but I had to test the waters last Thurs and have been sick ever since as I ADDED tomatoes to the mixbrilliant)

This morning I was nauseas (sp) but didnt have a runny nose, my sinues are not full, and I didnt have the phlemy/I want to throw up feeling. I am surely pointing to the wheat!!

I am thinking my gastro issues will settle down more once the IBS is settled down as I fear I did damage with the wheat and tomatoes.

I am hoping by the time I get to the gastro or ent the symptoms will be gone!

Last edited by jeannie61; 03-19-2013 at 08:24 AM..
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Old 03-20-2013, 05:38 AM   #77
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Jeannie, I hope you start to feel better and aside from eating the tomatoes, it was great that you did 10 days gluten free.

Keep us posted on how you are doing.
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Old 04-01-2013, 01:58 PM   #78
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First of all...thanks! I have been suffering from acid reflux issues for about 12 years ...and LPR for about 8 months now. I think my LPR started after a very bad night of acid reflux (I was sleeping, so I don't really know what happened). After a few days of shortness of breath and throat coursenesss, I went into see the doc.....

and ended up being admitted to the hospital...they thought I had a heart attack....the LPR symtoms accompanied by a abnormal ekg. Two days, 6 tests, and $2000 later, it looked like my heart was fine (not perfect, but not the cause of my throat/chest issues, thank the good Lord). And I've been fighting the same issues as you gals for the past 8 months. After 8 months, I'de say that my symptoms are about 30% better. If I stay totally disciplined (no coffee....ahhhh, it is soooo hard!) about what I eat and drink, it is about 70% better. I don't drink alcohol or smoke, but I did do both heavily for 20 years. And I'm sure that greatly added to my GERD/LPR issues.

One thing that I came across that does seem to help is....not clearing my throat or coughing (just gentle swallowing when needed)....I read this somewhere. It is easier said than done, but it does seem to help.

Thanks again....and I will post any new news or treatments that I come across.

God Bless!
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Old 04-18-2013, 12:03 PM   #79
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Sean and Jeannie,

How are you doing?
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