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Old 03-04-2009, 05:35 AM   #1
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Vertigo during PMS

I'm 42 yrs old and 2 yrs ago I got my first ever bought of vertigo. It lasted 2 days.
The following months after this, I experienced a lot of dizziness.
Then a year following (almost to the date) I got another bad bout of vertigo.
Then again, many bouts of dizziness followed.

Then last Jan again (AGAIN almost to the date of the other two bad bouts), I got another bout, That bout being the worst.
I assumed it was lupus since I had been dx with lupus 3 months following my first bout.

Now today, I have horrible vertigo.
I traced back all the major dizzy spells and vertigo and realized I had every single bout the day before or the day of my period.
I also recall about 18 months ago a major dizzy spell that lead me close to blacking out while driving. I realized, I started my period that same day.

I believe I'm in perimenopause so not sure if that's related. I could also be estrogen dominant.

Was just wondering if anyone else experiences this same thing?
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Old 03-04-2009, 05:55 AM   #2
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Oh you poor thing. I've never had vertigo during PMS, but I had it for the first 3 months of each of my 3 pregnancies. It got progressively worse with each pregnancy with the last one all I could do for the first 10-12 weeks was lay on the couch and wish I could die. There is nothing worse.

Have you gone to a neurologist? My dad has vertigo as a symptom from his chemo and he goes to the neurologist when it acts up and they do some tests/adjustments and it helps termendously. They also taught him some exercises he can do to keep it from getting too bad. The neurologist can actually see the vertigo in his eyes (don't understand it but this is what my mom told me). Good Luck and I hope you find something to help - Vertigo to me was worse than natural child birth!
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Old 03-04-2009, 08:42 AM   #3
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Hi :-)
Oh yeah, I've been to two neuros and two different ENT's. I've had MRI's and balance tests etc. Of course, they can't find anything

But since this only happens the day before of the day of my period, it has to be related to hormones, without a doubt.

Thanks for the luck, you are SO RIGHT, vertigo is the WORST! I would rather have an arm cut off.
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Old 03-04-2009, 11:15 AM   #4
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you are SO RIGHT, vertigo is the WORST! I would rather have an arm cut off.
I feel your pain. I slept upright in a recliner for 1.5 years because bouts of Vertigo (the world-trying-to-spin-me-off-its axis + hurling kind) would be brought on by lying down or just tilting my head back. (Ask the shampoo person at my hair salon how she knows this, lol.)
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Old 03-04-2009, 01:45 PM   #5
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I feel your pain. I slept upright in a recliner for 1.5 years because bouts of Vertigo (the world-trying-to-spin-me-off-its axis + hurling kind) would be brought on by lying down or just tilting my head back. (Ask the shampoo person at my hair salon how she knows this, lol.)
Isn't it just terrible?!

You don't get vertigo anymore? Was yours related to PMS?
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Old 03-04-2009, 02:47 PM   #6
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Isn't it just terrible?!

You don't get vertigo anymore? Was yours related to PMS?
I never saw a PMS relation, but that doesn't mean that hormone issues in general were not involved -- never considered that actually.

Well, I don't get the hang on to the ground for dear life version of V anymore, but I am pretty tentative and careful with head positions as I can sometimes get that very mild swaying feeling that most people would describe as Vertigo if they hadn't experienced the other.

And you're right, more often than not they can test you from here till Sunday and they won't be able to come to any conclusions or "cures" if you don't have some sort of usual ear infection, etc.

Very debilitating and scary to loose control like this, I know. Puts your job at risk, leaves you wondering if it's safe for you to drive, where the next attack will occur, etc. I'm so scarred from the whole thing that I STILL sleep with bed wedges propping me up a bit so that my head isn't tilted all the way back.

Hope you are feeling better by now and that you are fortunate enough to get to the root cause -- sounds like you are on the right track!
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Old 03-05-2009, 07:48 AM   #7
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I wish I could say I was better, but I'm on day two of vertigo. I'm surprised because I thought it would be better today.
I'm in such serious PMS mode as well with no sign of my period. I know once my period starts, I'll feel better.

I found a lot of other sites talking about hormones and vertigo. So it does seem more common than I thought.

Now here's the funny thing, I've been off of work on sick leave for 9 months, and was suppose to return to work last Monday, but there was an issue with paper work so will start this monday, I'm so happy I didn't start this week now. I would have come back and would have had to already take 2-3 days off.

Man, this is going to be a ride!
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Old 03-05-2009, 09:30 AM   #8
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Man, this is going to be a ride!
What do you mean "going to be"?? You're already spinning like the world's most fierce carnival ride already, right?
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Old 03-05-2009, 01:32 PM   #9
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What do you mean "going to be"?? You're already spinning like the world's most fierce carnival ride already, right?
haha...yep!
I want off this ride ;-)
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Old 03-05-2009, 02:47 PM   #10
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I've experienced vertigo, also. I'm sorry to hear that you're experiencing this. To me, FWIW, it sounds like you may have migraine associated vertigo. In the "dizzy" world, it's referred to as MAV. Are you saying that you've been to 2 neuros and they have not come up with a good diagnosis? That's a shame.

Here is a link to a forum (not sure that it's allowed) in where I learned lots of information about my dizziness.

Mary

thedizzylounge.com/thedizzy_forum/index.php
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Old 03-05-2009, 06:09 PM   #11
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I get vertigo attacks when my allergies clog up my ears.

A decongestant generally does the trick. I get hyper but it works.
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Old 03-05-2009, 06:38 PM   #12
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I wish I could say I was better, but I'm on day two of vertigo. I'm surprised because I thought it would be better today.
I'm in such serious PMS mode as well with no sign of my period. I know once my period starts, I'll feel better.

I found a lot of other sites talking about hormones and vertigo. So it does seem more common than I thought.

Now here's the funny thing, I've been off of work on sick leave for 9 months, and was suppose to return to work last Monday, but there was an issue with paper work so will start this monday, I'm so happy I didn't start this week now. I would have come back and would have had to already take 2-3 days off.

Man, this is going to be a ride!
Have any of the doctors considered Meniere's disease? I used to get vertigo so terribly that I would vomit and the room would spin as if I was on a merry go around. When it got to the point that I was in bed for days at a time and was unable to keep even a sip of gingerale down I had gentamicin injections infused into the ear. This has helped greatly although I still get dizzy sometimes I no longer (knock on wood) have the debilitating vertigo attacks.
And yes I did seem to get more attacks right before TOM. Take care. Jeanie
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Old 03-06-2009, 10:35 AM   #13
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I've experienced vertigo, also. I'm sorry to hear that you're experiencing this. To me, FWIW, it sounds like you may have migraine associated vertigo. In the "dizzy" world, it's referred to as MAV. Are you saying that you've been to 2 neuros and they have not come up with a good diagnosis? That's a shame.

Here is a link to a forum (not sure that it's allowed) in where I learned lots of information about my dizziness.

Mary

thedizzylounge.com/thedizzy_forum/index.php
I just joined that forum yesterday :-) thanks for that

I don't get migraines though?!
I've been to many dr's and as we all know, dr's are clueless unless a test spells it out for them
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Old 03-06-2009, 10:36 AM   #14
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Have any of the doctors considered Meniere's disease? I used to get vertigo so terribly that I would vomit and the room would spin as if I was on a merry go around. When it got to the point that I was in bed for days at a time and was unable to keep even a sip of gingerale down I had gentamicin injections infused into the ear. This has helped greatly although I still get dizzy sometimes I no longer (knock on wood) have the debilitating vertigo attacks.
And yes I did seem to get more attacks right before TOM. Take care. Jeanie
My ENT said it was not Meniere's (I thought it was), but since the spinning does not come on just like that, he feels it's not.

What does this gentamicin do?
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Old 03-06-2009, 01:28 PM   #15
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My ENT said it was not Meniere's (I thought it was), but since the spinning does not come on just like that, he feels it's not.

What does this gentamicin do?
The gentamaicin chemically destroys the balance nerve that is sending the faulty signals to the brain that cause the vertigo. Do you have ringing in the ears or pressure in the ears? It took many years of testing and seeing many doctors before I got the meniere's diagnosis. Jeanie
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Old 03-07-2009, 02:16 PM   #16
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I just joined that forum yesterday :-) thanks for that

I don't get migraines though?!
I've been to many dr's and as we all know, dr's are clueless unless a test spells it out for them
The migraine doesn't always have to show itself as a painful headache. MAV is a vertigo version of a migraine.

I ended up doing my own research ...surprise, surprise, and found that Magnesium supplements helped my migraine/vertigo a lot. Just another suggestion to help you in your research.

Any information you can look into with hormone related dizziness or hormone fluctuation vertigo would be a good start.

Mary
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Old 03-08-2009, 04:13 PM   #17
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The gentamaicin chemically destroys the balance nerve that is sending the faulty signals to the brain that cause the vertigo. Do you have ringing in the ears or pressure in the ears? It took many years of testing and seeing many doctors before I got the meniere's diagnosis. Jeanie
Hi, yes I had horrible tinnitus 3 months after my first bout of vertigo. It was really bad for close to 2 yrs, but has been less the last 3 months, but still there. I also have hearing loss in one ear.

Isn't meniere's where you get vertigo all the time?
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Old 03-08-2009, 04:15 PM   #18
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The migraine doesn't always have to show itself as a painful headache. MAV is a vertigo version of a migraine.

I ended up doing my own research ...surprise, surprise, and found that Magnesium supplements helped my migraine/vertigo a lot. Just another suggestion to help you in your research.

Any information you can look into with hormone related dizziness or hormone fluctuation vertigo would be a good start.

Mary

really? Wow! So you can have this w/out feeling a migraine?
I got migraines for the first time back in 2003, They came on suddenly with the aura. They lasted 2 yrs and no joke, as soon as I got out of a really bad relationship, my TMJ and migraines went away. I've not had one since!

I'll research more about this MAV. Interesting, thanks so much to you both for your help.

So today I started my period (FINALLY) and I woke up, totally ok. No bertigo, no dizzies and just feeling great.

This is craziness!
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Old 03-08-2009, 04:33 PM   #19
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I have it from my IUD which has hormones in it so I dont doubt for a second that could be from pms.
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Old 03-08-2009, 05:35 PM   #20
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I'm going to second what Amber said. My IUD gave me vertigo and when I had it removed the vertigo went away.

Good luck.
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Old 03-08-2009, 05:52 PM   #21
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Isn't meniere's where you get vertigo all the time?
No. My attacks were sporadic at first and gradually peaked over a number of years to the severity of several times a week with the occasional bout where I couldn't get out of bed for a couple of days. The tinnitus varies for me in pitch and intensity even now. My hearing is reduced in the affected ear. Last time I was tested it was down about 40 percent. I would not think hormone related vertigo would cause tinnitus and hearing loss. But what I know?
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Old 03-09-2009, 02:25 PM   #22
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No. My attacks were sporadic at first and gradually peaked over a number of years to the severity of several times a week with the occasional bout where I couldn't get out of bed for a couple of days. The tinnitus varies for me in pitch and intensity even now. My hearing is reduced in the affected ear. Last time I was tested it was down about 40 percent. I would not think hormone related vertigo would cause tinnitus and hearing loss. But what I know?
I would not think hormones causes tinnitus and hearing loss, but what baffles me is I only get the vertigo when I'm pms'ing or the day of my period.
I also have lupus which could be the cause of the tinnitus and hearing loss, but man, who knows.
Dr's are SO darn clueless, they don't even know.

I'm going to see a hormone specialist in a month so will try some bio identical hormones to see if that helps.

Did you get tinnitus first or vertigo first?
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Old 03-09-2009, 02:26 PM   #23
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Amber and 3Legged, that is very interesting.

Did you both get vertigo just at your period or pms or throughout the month?

Tell me more
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Old 03-09-2009, 02:36 PM   #24
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I just read Wikipedias version of Menieres explains

"Women may experience increased symptoms during pregnancy or shortly before menstruation, probably due to increased fluid retention"

Interesting
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Old 03-11-2009, 05:19 PM   #25
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The vertigo was random, it would just strike at anytime.

I have not had a bout of vertigo since having the IUD removed. And I never had vertigo before it was installed.
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Old 03-23-2009, 03:13 AM   #26
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Peacesoul, I have something similar to what you are experiencing.

Anywhere from a week to the day before my period, I can get very weak and dizzy. Occasionally I've had just a bit of Vertigo where the room is spinning and I nearly fall down.

The first time it happened, it just freaked me out so. I just got off a 5 hour flight and was starting to take a shower and I just felt horribly nauseous and dizzy.

I was travelling alone and was across the world and struggled to get out of the shower. I thought I was just dehydrated and hungry and got in a fast food line. It started again.

Anyway somehow I made it to a bench in the airport and laid down and slept until my plane started checking in. I was wiped out but seemed to be better.

It doesn't always happen but when it does, it is always in that week before my period starts.

I also developed tinnitus in one ear a couple of years ago and have unilateral hearing loss and just recently got a hearing aid.

I also had the MRI etc. and they couldn't find anything wrong with me.

I don't know what the answer is. I just try to stay healthy and take my vitamins. I am also trying Reiki and EFT.

Best wishes.
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Old 03-23-2009, 06:19 AM   #27
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Wow, that explains me exactly. The amount of research of done on this is mind boggling and I still cannot figure it out, but I have a few suspicions.
I think just maybe during PMS there is that increase in water retention and there are some incidences of vertigo that are caused by fluid in the ear canals. Also, some inflammation in the sinus cavity can be instigated from fluid retention.
I also have really bad tinnitus which ONLY started a few months after my first bout of the PMS vertigo. Last Nov I went for a hearing test and am was told I lost 30% of my hearing in my right ear as well.

I was going to try Reiki. How is that working? In fact, I’ve been looking into taking Reiki courses to add to the naturopathic cert I’m taking.
I’ve done EFT and it really helps my anxiety.

How old are you?
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Old 03-27-2009, 04:41 PM   #28
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Hi Peacesoul,

I am 46 now. I think I was 42 when the airport incident happened.

You may be on to something with the water retention. I do have that quite a bit during this time. I have taken a few water pills from time to time and but the entire week to see if it made a real difference or not.

Also my left sinus tends to feel funny a lot and this maybe be related to the water retention.

I started monitoring my blood pressure the past 2 months after a doctor said it was a little high. I managed to get it to normal within a month with proper diet, exercise, and supplements BUT it will spike during the 2 weeks before my period. Then after my period start and the water bloat is gone, it goes back to normal. This makes sense since diuretics are the first basic bp med prescribed.

It is so odd that the day before it was 126/66 and then the next day boom the spikes started with 147/80 etc.

I use EFT on this so much that I can get it back to normal within 5 minutes from tapping, It is just so amazing.

The Reiki class I was schedule to attend was postponed until the end of April but I will post back how that goes. I have had a few treatments at the student clinic and it does seem to help overall heath and well being for me.

Best wishes!
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Old 03-29-2009, 04:27 AM   #29
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I believe vertigo can be part of perimenopause. It's not at all uncommon to have increased dizziness as a part of peri. I'd work with an ENT; there is something they can do if you have crystals in the inner ear causing it where the ENT will position you to treat this crystal buildup and it does help get rid of vertigo, if that is what it causing it.

Perimenopause can be truly awful and when hormones go awry, there is no end to the things you can see happening to you.
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Old 03-29-2009, 12:36 PM   #30
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I believe vertigo can be part of perimenopause. It's not at all uncommon to have increased dizziness as a part of peri. I'd work with an ENT; there is something they can do if you have crystals in the inner ear causing it where the ENT will position you to treat this crystal buildup and it does help get rid of vertigo, if that is what it causing it.

Perimenopause can be truly awful and when hormones go awry, there is no end to the things you can see happening to you.
Hi, thanks for the reply.

I went to see two ENT's and both sent me for every test in the book and both sent me away with, you guessed it, an anti anxiety med, Which I will not take.

Unless dr's see a sure outline on some blood test of illness, they think everything is made up or not real.

I read a lot about the crystals in the ear and it makes total sense, but why would they go out of place just on PMS?!
Why not any other time of the month?!

This has baffled me. Do you think hormones knock the crystals out of place?

Oh why did I have to be a woman ;-)
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