Got the phone call I've been expecting

karenb · 09-14-2005, 09:56 AM

My sister got sick about 3 years ago, last 18 months in a nursing home. We moved her to Tx to be near me in April. Mom moved down just last week. Anyway my sister has been crying almost non stop since she's been here. And before moving here I think. Today they called and said her room mates family wants something done. I'm surprised they havent said something earlier! It's not quiet sobbing but pretty loud wailing most of the time. They tell us it is caused because of her illness. The doctor doesn't seem to be able to help it much. So I asked if he could consult with a shrink and they say he is a shrink. I don't want her totally drugged the entire time and they won't do that anyway. I asked them to have the doctor to call me but I have doubts that he will.

She;s not in pain I actually think it's just a part of her brain the has deteiorated.

Jessica · 09-14-2005, 10:04 AM

Oh my!

I'm sorry for you and your sister. This must be difficult. I'll keep you in my

in hopes that she finds some peace.

Sharon · 09-14-2005, 10:35 AM

My Mother is 95 and in a nursing home and we would never dare move her anywhere because it would so disrupt her life. I send you my prayers, positive thoughts for you in this time.

carebear · 09-14-2005, 10:38 AM

I have no advice but to hang in there...

karenb · 09-14-2005, 11:12 AM

Thanks. We moved my sister down here because I'm her only sibling and Mom is 90 and we thought she could get better care here in a much bigger city with more doctors. I think she had been crying a lot in Ia too. Mom is still sort of on her own in a retirement apartment complex not far from here. Sis wanted to come even if she knew she couldn't be helped. I think she wanted to move because she hated to have people see her so totally helpless compared to so independent like she always was. Too late to try to move her back now. You do what you think it right but sometimes it isn't.

max'smom · 09-14-2005, 12:55 PM

Blessings on you and your family! Having been a nursing home nurse for over 20 years, I have encountered what is called "labile crying" It is part of the brain syndrome she is suffering. It was explained to me that it doesn't mean that the person crying is unhappy, it is uncontrollable. We only encounterd it twice that I can think of, and the patients were given private rooms, medicaction really wasn't seen as warranted. Prayers go along with this reply..

allynnegirl · 09-14-2005, 02:16 PM

No advice, just

karenb · 09-14-2005, 03:04 PM

I stopped at the nursing home and all was quite so I didn't see my sister - didnt' want her to start up again. I talked to the head nurse and the shrink want's to put her in a psychicatric hospital for awhile, stop all her meds and start adding them back. Monday I'm seeing her neurologist and trying to get him involved.

gettingstrength · 09-17-2005, 09:24 AM

Mickey Lou · 09-22-2005, 07:28 PM

what's her diagnosis, did I miss it?

karenb · 09-23-2005, 01:25 AM

Central Nervous System Vasculitis. It's when you get a virus and in her case started attacking her blood system leading into the brain. It's sort of like she's had a stroke. One of those things they don't know much about.

karenb · 09-25-2005, 12:23 PM

We saw her neurologist on Monday and he gave us a prescription to help with her crying, evidently some doctor came across this by accident. Robitussin DM and quinine! We went to see her today and both her roommate and the nurse said she hasn't been crying since Tues!

max'smom · 09-25-2005, 03:26 PM

Great news, and so interesting! I know you are much relieved..Blessings

Joycelyn · 09-25-2005, 08:21 PM

I just prayed for you. Hope you feel all our prayers coming your way.

09-14-2005, 09:56 AM	#1
karenb Way too much time on my hands! Join Date: Jun 2002 Location: Texas Panhandle Between New Mexico and Oklahoma Posts: 13,559 Gallery: karenb	Got the phone call I've been expecting My sister got sick about 3 years ago, last 18 months in a nursing home. We moved her to Tx to be near me in April. Mom moved down just last week. Anyway my sister has been crying almost non stop since she's been here. And before moving here I think. Today they called and said her room mates family wants something done. I'm surprised they havent said something earlier! It's not quiet sobbing but pretty loud wailing most of the time. They tell us it is caused because of her illness. The doctor doesn't seem to be able to help it much. So I asked if he could consult with a shrink and they say he is a shrink. I don't want her totally drugged the entire time and they won't do that anyway. I asked them to have the doctor to call me but I have doubts that he will. She;s not in pain I actually think it's just a part of her brain the has deteiorated. Last edited by karenb : 09-14-2005 at 09:57 AM.

09-25-2005, 12:23 PM	#12
karenb Way too much time on my hands! Join Date: Jun 2002 Location: Texas Panhandle Between New Mexico and Oklahoma Posts: 13,559 Gallery: karenb	Wanted to update you! We saw her neurologist on Monday and he gave us a prescription to help with her crying, evidently some doctor came across this by accident. Robitussin DM and quinine! We went to see her today and both her roommate and the nurse said she hasn't been crying since Tues!

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09-14-2005, 10:04 AM	#2
Jessica Sweet Southern Loungie Join Date: Jun 2004 Location: Louisville baby!!! Posts: 12,188 Gallery: Jessica Stats: This time 190/PREGNANT/140 WOE: Healthy Start Date: March 25,2007	Oh my! I'm sorry for you and your sister. This must be difficult. I'll keep you in my in hopes that she finds some peace.

09-14-2005, 10:35 AM	#3
Sharon Come join us on the Game Board Join Date: Apr 2003 Location: retired now - I ski 40+ days annually and do marathons. 1st TIME GRANDMOTHER 6/18/07 Posts: 100,911 Gallery: Sharon Stats: 156/124/135 5'6" 63 y/o - GO UCLA - BEAT USC WOE: Atkins - low sodium and fresh food - STAY POSITIVE Start Date: 4/5/03	My Mother is 95 and in a nursing home and we would never dare move her anywhere because it would so disrupt her life. I send you my prayers, positive thoughts for you in this time.

09-14-2005, 10:38 AM	#4
carebear Very "Special" Loungie Brat Join Date: Sep 2003 Location: A little place I like to call Home Posts: 18,408 Gallery: carebear Stats: Size 24/ Size 16/ Size 8 WOE: Low-Carbin it! Start Date: Original start October 2003;Re-inducting 4/22/06	I have no advice but to hang in there...

09-14-2005, 11:12 AM	#5
karenb Way too much time on my hands! Join Date: Jun 2002 Location: Texas Panhandle Between New Mexico and Oklahoma Posts: 13,559 Gallery: karenb	Thanks. We moved my sister down here because I'm her only sibling and Mom is 90 and we thought she could get better care here in a much bigger city with more doctors. I think she had been crying a lot in Ia too. Mom is still sort of on her own in a retirement apartment complex not far from here. Sis wanted to come even if she knew she couldn't be helped. I think she wanted to move because she hated to have people see her so totally helpless compared to so independent like she always was. Too late to try to move her back now. You do what you think it right but sometimes it isn't.

09-14-2005, 12:55 PM	#6
max'smom Senior LCF Member Join Date: Jul 2003 Location: the beautiful north shore of Lake Superior Posts: 253 Gallery: max'smom Stats: 148.5/148.5/135 WOE: Low Carb Start Date: new start: 07/12/06	Blessings on you and your family! Having been a nursing home nurse for over 20 years, I have encountered what is called "labile crying" It is part of the brain syndrome she is suffering. It was explained to me that it doesn't mean that the person crying is unhappy, it is uncontrollable. We only encounterd it twice that I can think of, and the patients were given private rooms, medicaction really wasn't seen as warranted. Prayers go along with this reply..

09-14-2005, 02:16 PM	#7
allynnegirl MAJOR LCF POSTER! Join Date: Jul 2002 Location: Ohio Posts: 2,572 Gallery: allynnegirl Stats: 240/231/175 WOE: Low Carb Start Date: Restart: 11/28/08	No advice, just

09-14-2005, 03:04 PM	#8
karenb Way too much time on my hands! Join Date: Jun 2002 Location: Texas Panhandle Between New Mexico and Oklahoma Posts: 13,559 Gallery: karenb	I stopped at the nursing home and all was quite so I didn't see my sister - didnt' want her to start up again. I talked to the head nurse and the shrink want's to put her in a psychicatric hospital for awhile, stop all her meds and start adding them back. Monday I'm seeing her neurologist and trying to get him involved.

09-17-2005, 09:24 AM	#9
gettingstrength Big Yapper!!!! Join Date: Aug 2003 Location: Tennessee Posts: 9,523 Gallery: gettingstrength Stats: 184 / 170 / ? WOE: atkins Start Date: 6 / 1 / 2002

09-22-2005, 07:28 PM	#10
Mickey Lou Very Gabby LCF Member!!! Join Date: Apr 2003 Location: Broomfield, Colorado Posts: 4,159 Gallery: Mickey Lou Stats: 267/>150<200/150 WOE: death to the marcupial pouch Start Date: Early Spring 2000; 100#off	what's her diagnosis, did I miss it?

09-23-2005, 01:25 AM	#11
karenb Way too much time on my hands! Join Date: Jun 2002 Location: Texas Panhandle Between New Mexico and Oklahoma Posts: 13,559 Gallery: karenb	Central Nervous System Vasculitis. It's when you get a virus and in her case started attacking her blood system leading into the brain. It's sort of like she's had a stroke. One of those things they don't know much about.

09-25-2005, 03:26 PM	#13
max'smom Senior LCF Member Join Date: Jul 2003 Location: the beautiful north shore of Lake Superior Posts: 253 Gallery: max'smom Stats: 148.5/148.5/135 WOE: Low Carb Start Date: new start: 07/12/06	Great news, and so interesting! I know you are much relieved..Blessings

09-25-2005, 08:21 PM	#14
Joycelyn Senior LCF Member Join Date: Feb 2004 Location: CA Lady Posts: 829 Gallery: Joycelyn Stats: 202/198.5/140 WOE: The Insulin Resistance Diet Start Date: September 2008	I just prayed for you. Hope you feel all our prayers coming your way.