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-   -   Test said no Celiac Disease but... (http://www.lowcarbfriends.com/bbs/celiac-gluten-free/802811-test-said-no-celiac-disease-but.html)

sweetstuff68 04-25-2013 09:15 AM

Test said no Celiac Disease but...
 
Are the test always right?

zipp2play 04-25-2013 01:35 PM

Not always. YOu could also just suffer from intolerance which can't be detected with any tests necessarily. Confusing, huh?

sweetstuff68 04-26-2013 06:21 AM

Very. Maybe it's just mild, but enough to cause issues. Off to do more reading!

CurveControl 04-26-2013 06:47 AM

Which test? Did you actually have a sample of intestine taken to examine the villi? As far as I know that is the most accurate way to make or disprove the Celiac Diagnosis.

Blood tests are notoriously inaccurate.

cfine 05-04-2013 05:54 PM

Were you eating a lot of gluten before the test was done? From my understanding, that's the only way to get an accurate diagnosis. My DD was not willing to suffer through the pain of eating gluten for the test to tell her if she had celiac. She already knows that she is at the very least intolerant.

eterprincess 07-02-2013 05:30 AM

I had the blood tests and biopsy come back negative, but was told that the biopsy is t the "gold standard" it's made out to be, cause they may biopsy this area, but the damage is a little further down. So I was told that with my vitamin deficiencies and family history of autoimmune I was 99% positive on celiac, even tho tests didn't show it.

Criosa 07-20-2013 08:18 PM

My test showed negative too, which is weird. My mom, sister and brother all tested positive. I don't eat gluten anyway, as it makes me either throw up, or feel like throwing up. Not worth it.

GME 07-20-2013 08:34 PM

Quote:

Originally Posted by Criosa (Post 16524279)
My test showed negative too, which is weird. My mom, sister and brother all tested positive. I don't eat gluten anyway, as it makes me either throw up, or feel like throwing up. Not worth it.

Had you been eating it before the test? You have to have been eating gluten regularly for a number of weeks (6?) in order to get a positive.

Even at that, many people with clear problems still test negative.

Criosa 07-21-2013 01:06 PM

I took the test several years ago. I did eat low carb wheat (which is heavy in gluten!) every day for two weeks before the test. At the time I did the test, I mostly just felt mild nausea, and inflamation in my joints. Now if I eat it I feel violently ill. I don't want to go through the eating gluten for two weeks again to retake the test. So I live without a proper diagnosis.


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