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gastroparesis is a real bummer

Posted 10-27-2008 at 08:15 AM by raeofsonshine
Hi I am new to this site. I used it years ago when I was almost into a 2x size. Due to gastroparesis I am now a size 12. I had gall bladder surgery back in 1999 and the doctor cut my bile duct to almost nothing. Then I took Actos (which has a close cousins that was taken off the market for liver cancer). I was taking it even though my blood sugar was normal but the doctor wanted me on it for preventive reasons. It caused my bilirubin to sky rocket and pain like a gall bladder attack. I got off it after 2 weeks but it already killed my bile duct. I was put on Hyoscyamine which paralysis the stomach. I had a stent put in. Two years later I was in the ER and being told it looked like I had pancreatic and liver cancer and it appeared to be too late. I turned yellow and only had a few days to live and they decided to try to remove the orginal stent by going thru my mouth and they could not remove it so they put a new stent in where it was supposed to be since the old one had dislodged. So when my cancer markers went thru the roof 5 days later they went in. When they pulled at the orginal stent they were shocked to see pus and rocks (not stone or granules) pour out of the pancreis and liver. When that stupid stent was put in it had dislodged and it blocked two ducts. There are orginally three ducts 1. the pancretic duct, 2 the liver duct and the bile duct going into the gall bladder. So what appeared to be cancerous tumors in both those organs was really all this poison. They were then so glad they had not succedded in removing that stent in the orginal 1st surgery because all that pus would of pour into everything before they could open me up. God was surely watching over me. I was told with all the stuff and pus that was in me I should of died at least a month and 1/2 before. The surgeon was shocked I was still alive. So they had to remove the new stent due to infection and they dared not to take any tissue to test for cancer because they thought it was way too risky. I had to wear a bile bag for 9 weeks and then they put me out again to take that bag off my side. I had $15,000.00 in co pays after 5 weeks in the hospital and 3 surgeries and no income. I wrote all 21 agencies that billed me and they forgave my debt and I only have about $880.00 left to pay. Welfare would not help. They said I could only make 311.00 a month and thru disability I made 511.00 a month but my rent was 500.00. God had alot of people come along side me and help with the bills. I go to a church of 17 people and they raised almost a $1000.00 even though they were greiving for our pastor's wife who had pancrectic and liver cancer. That's why when I was told I probably had that I totally lost it. Gastroparesis is a bummer. I take stool softners and laxatives daily and I am starting to juice to get some veggies in me. All I used to eat was veggies fruit and beans. I miss the veggies and beans so much. But I was so ill yesterday that I have to just do what I need to do. I hate taking the stuff for the bile duct but I am in pain most of the time so that helps that but ruins my stomach. Can I use the fiber I lose from juicing and use it in making carrot cake or is that still going to cause problems. Thanks for having this site. I won't be so long winded but thought you would find my story interesting. I am hoping when the pace maker for the stomach is developed I would like to try that. I am allergic to alot of med's so would rather avoid that . Thanks Rae

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